About 48 hours ago as I’m writing these words, I began to hear a strange, high-pitched tone. At first I thought it was one of the dog collars we use with our invisible fence, but it was a little odd that I heard it inside while the dogs were in…
Daily living
Before 2016, I didn’t need to take any prescription medications, at least not regularly. But during my first episode of optic neuritis and a few years later, after my diagnosis of relapsing-remitting multiple sclerosis, I was forced to create a new habit. During that first episode of optic…
Here in the U.S., today is the last day that someone out there will have all 10 fingers. It’s probably wishful thinking to suggest that it’ll be only one person, but I’m trying to be optimistic. In anticipation of the holiday tomorrow, fireworks sales started picking up about a month…
For many Americans, the July 4 holiday is a joyful celebration filled with fireworks, barbecues, parades, and time spent outdoors with family and friends. However, for me, it can present unique challenges due to my multiple sclerosis (MS). From heat sensitivity and sensory overload to difficulty participating in…
I have a kilt. It’s just a simple, olive-colored utility kilt, and I don’t wear it because of family or cultural tradition. I wear it because it’s comfortable, looks right with my knee-high compression socks, is nearly perfect for wheelchair use, and quite frankly, makes me look even cooler than…
Dear current me, Not that long ago, I wrote a letter to our younger self, newly diagnosed with relapsing-remitting multiple sclerosis (MS). That letter was intended to let her know that her diagnosis was not the end-all, be-all and wouldn’t take away from the beautiful and…
Aranzazu Calzado, known to friends as Zazu, has lived in Houston, Texas, since 1996 after moving from Spain. She was diagnosed with primary progressive multiple sclerosis in 2021 and faces the challenge with resilience, faith in God, family, and friends as her support network. She finds joy in helping…
My family and I just returned from a vacation to the place I wrote about in my very first column for Multiple Sclerosis News Today, only not to the same house. I can’t make it up and down the stairs there anymore, so my wife found us a wheelchair-accessible…
For many years after being diagnosed in 1992 with relapsing-remitting multiple sclerosis (MS), Carolyn Cannistraro didn’t want to think about having MS, let alone tell others about her condition. But now Cannistraro is aiming to complete three races across New York City within 60 days using a handcycle. She…
Half of multiple sclerosis (MS) patients in the U.K. who work have compromised their health by staying in jobs that didn’t fully support their MS needs, and nearly a third are in roles below their skill levels. That’s according to “No compromises: supporting people with MS to thrive…
My youngest child is home from college for the summer. She had a fantastic freshman year, or as I tell others, “She’s living her best life.” I missed her this past year in so many ways. She never went through the “bad” teenage years. She actually enjoys spending time with…
On May 10, surrounded by my loved ones, I received my Master of Arts in educational psychology from the University of Texas at Austin. As I heard the words of love and encouragement from my family and friends, I realized just how difficult my educational journey has been because of…
Rest isn’t optional in this house. It’s practically an Olympic event! And I live with five feline competitors. They’re furry, opinionated, and deeply committed to the art of doing nothing, whether it’s melting into a patch of sunlight, sprawling across my keyboard, or staging a nightly takeover of the recliner.
This past weekend, my partner and I went for a walk to soak up what might be the last of the pleasant weather before the sun begins to melt Florida. Since my hip revision, I’ve struggled to make movement a consistent habit as my right leg remains a little…
An online training program for managing memory and cognitive difficulties may help people with multiple sclerosis (MS), a study suggests. The program, delivered entirely through virtual sessions, taught participants practical strategies to boost memory then guided them about using the techniques in real-world situations, such as organizing errands, planning…
I’m sure the same thing happens in a lot of professions, but combat medics, which I was, often zoom in on the job at hand and lose sight of everything else. I know that when I was treating a casualty, I’d sometimes get in the zone and lose track of…
When I learned to cook, I didn’t attend a class or have formal lessons. I learned the basics as a child from my mother in our home kitchen. At first, everything was structured: follow the recipe to the letter, precisely measure everything, and use only the recommended tools for a…
April showers bring May flowers. However, I do not have a green thumb. No matter how hard I try, I continuously seem to murder my plants. My mom, on the other hand, is an avid gardener. When my plants show signs of distress, I take them to her for remedial…
Natasha Quariab relaxes in her garden in Amman, Jordan, in 2023. (Photos courtesy of Natasha Quariab) Day 29 of 31 This is Natasha Quariab’s story: I woke up and tried to move my right leg. Nothing. My heart pounded. This couldn’t be happening. Not here, alone in a snowy…
More Stamina, a gamified mobile app, helped a small group of people with multiple sclerosis (MS) better manage their fatigue by becoming more aware of their energy levels and planning their activities more effectively, according to a study from Finland. “Fatigue is an invisible but life-altering symptom…
Ena Salcinovic celebrates her birthday three years after her MS diagnosis. (Photos courtesy of Ena Salcinovic) Day 22 of 31 This is Ena Salcinovic’s story: Saturday. Finally. A good day. I still believe that even though I overslept and missed the Red Cross and our weekly international cooking. I…
Sacral neuromodulation (SNM), in which an implanted device delivers mild electrical pulses to the nerves that control the bladder, led to sustained improvements in urinary function in half of people with multiple sclerosis (MS) who underwent surgery to have the device put into place, according to a review of…
Ross smiles for a photo. (Photos courtesy of Ross) Day 21 of 31 This is Ross’ story: I was diagnosed with relapsing-remitting multiple sclerosis (RRMS) in 2007 when I was a senior in college. I had been very sick with vertigo and gastrointestinal issues for a year…
Latifa Janahi takes a five-day course of corticosteroids to reduce inflammation in her body. (Photos courtesy of Latifa Janahi) Day 19 of 31 This is Latifa Janahi’s story: I am a woman from Bahrain Island who’s passionate about technology and baking. After working in the tech field for 10…
Dee Ecklund, riding her Alinker, finishes a Turkey Trot on Thanksgiving 2024. (Photos courtesy of Dee Ecklund) Day 18 of 31 This is Dee Ecklund’s story: I am a firm believer everything happens for a reason. Maybe we have some things to learn, teach, or even both. With the…
I flew to Detroit for work this month, then on to Phoenix to see my parents, and then back home to Kansas City, Missouri. But traveling by airplane has gotten more complicated for me because of my multiple sclerosis (MS). I don’t need assistive devices, so I know my…
Ronald Harris shows off his new power wheelchair. (Photos courtesy of Ronald Harris) Day 17 of 31 This is Ronald Harris’ story: Harris is seen working from home, using a desk that accommodates his power chair. My journey with multiple sclerosis (MS) began with an unexpected diagnosis…
Sterling Hofmeister is pictured here at 6 months, carried in a backpack by his father Ben Hofmeister. (Photos courtesy of Ben Hofmeister) Day 15 of 31 This is Sterling Hofmeister’s story: Sterling Hofmeister, far right, is pictured with his brothers and father in 2018. My name is Sterling…
When I could still drive, I enjoyed the experience. A car or truck was not just for getting from point A to point B. It was also about the thrill of the journey itself, and I wanted to coax as much as possible from the trip. That meant driving high-performance…
Nanette Lai locks eyes with her chihuahua Fanny. Lai says mutual gazing between humans and dogs can cause synchronization in areas of the brain. (Photos courtesy of Nanette Lai) Day 12 of 31 This is Nanette Lai’s story: My name is Nanette, and I have lived with relapsing-remitting…