And a good time was had by the sclerosis boys

I haven’t seen my mate Nige for years. Actually, to his face I call him Nigel, but it’s Nige when I, or anyone else, talk about him in the third person. It’s weird — I’d never thought about that before typing his name just now. And it’s not like he…

Old Friends, Broken Chairs, UTI Admissions, and Redemption

The week started with a bang, albeit with a hint of underlying anxiety. Friends and former work colleagues gathered during the first days of spring to chat in my sun-lathered back garden in South London. COVID-19 lateral flow tests had all been passed. Previously, we’d spent years working together on…

It Was a Lazy Sunday Afternoon — Not!

It all started on the hottest day of the year here in the U.K. My phone said it was 99 F. An old friend was coming over, and my youngest son, Jack, had kindly cleared a route to the garden. So, when she arrived, I took the route. We all…

The Importance of Cultivating Your Circle

Support is a crucial component in fighting chronic illness and adversity. Our humanity connects us and we thrive on relationships. Support may come in the form of family, friends, social services, groups and countless other methods. I have been fortunate to have an abundance of support for which…

There’s Something Wrong with Both of Us

There are a few moments when life changes. In my day, it was meeting your partner across a crowded room. Now it’s sadly the flick of an app. What hasn’t changed is that only later do you realize this really was a moment. This isn’t a story about romance…

Going All In for Ocrevus — Together

“Is the MS drug news good for u?” my friend’s text asked. It was Wednesday morning, March 29. Genentech had just announced  that Ocrevus, the “First and only approved disease-modifying therapy for primary progressive form of multiple sclerosis (PPMS) – one of the most disabling forms of…