living with MS

My wife and I both have medical backgrounds. She is a registered nurse and has actual credentials that have to be renewed periodically. At one time I had a card that said advanced tactical practitioner, but even when it was current, it didn’t count for much outside of…

As a native Floridian, I’ve been through my fair share of hurricanes. Because they’re so familiar, I’m probably a bit too indifferent to them. But in many ways, hurricanes parallel my life with relapsing-remitting multiple sclerosis (RRMS); each involves preparation, weathering of the storm, and adjusting to the aftermath.

As all good things must come to an end, so did our epic overseas adventure in a recreational vehicle that was too tiny to live in and too big to drive into any European village. We devoted those five weeks to quality time with family, unplugging from devices, and…

Like so many others, I have a bedtime routine. There’s bedside water to fill, sleep attire to change into, and bedtime stories to read. These days I’m not much more than a bystander, as nearly everything I do requires the help of another person. I suppose I should really say…

A disease-modifying therapy (DMT) for multiple sclerosis (MS) is a form of treatment that alters how the disease develops over time. DMTs have the potential to impede the progression of MS and decrease the number of relapses a patient experiences. In MS, the immune system is…

I received a copy of “The Dictionary of Obscure Sorrows” for Christmas two years ago. It provides names for emotions that need defining, and I’ve thoroughly enjoyed leafing through it. I’m not particularly sorrowful, and I don’t really find the majority of the text to be sorrowful, either.

By the time this column is published, I’ll be at the Consortium of Multiple Sclerosis Centers‘ annual meeting in Nashville, Tennessee. I’m honored to be attending as a representative of the Paralyzed Veterans of America (PVA) Multiple Sclerosis Committee. Along with the other committee members, I’ll help spread…

If I haven’t warned you that bits of my past in the military would sometimes leak into my present as a Multiple Sclerosis News Today columnist, consider yourself warned. I was in the U.S. Army for almost 22 years, so it’s bound to happen occasionally. If I’d become an…

There have been so many times I’ve started something but was unable to finish it. There have been so many things I’ve intended to do, but somehow never followed through on them. The gate of my mom’s backyard privacy fence is broken. Half of it is missing. A dear friend…

Recognizing and valuing authenticity is an aspect of life I began to grasp only a few years ago. During the peak of quarantine restrictions due to COVID-19, I was forced to move back home to San Antonio from my on-campus dormitory at the University of Texas at Austin. Like many…

Many of my personal breakthroughs and discoveries occurred during college, when I was living in a new city as a young adult with relapsing-remitting multiple sclerosis (RRMS). One of those “aha!” moments was understanding that saying no takes practice, but it’s a necessary aspect of life. A few…

As an active 3-year-old, I spent every minute of recess on the monkey bars. I was hyperfocused on getting to the other side. I’d fall and try again until my hands blistered from the hot metal in the Florida sun, and then repeat this cycle the next day. Grit is…

There are several good reasons why you won’t see me in television commercials for multiple sclerosis (MS) treatments anytime soon. For one, I’m not much of an actor, despite my brief moment of high school fame. For another, even though I wouldn’t go so far as to say that…

Last month, I told you that while I’m not a psychologist, I’m fascinated by the subject. I should probably make a list of things I don’t do but still find interesting. One of those professions we can add to the list is historian. I enjoy reading and learning about…

My father taught me to play chess when I was barely old enough to say the names of the pieces.  I wasn’t a child prodigy or anything like that. I never joined a chess club or competed in a single tournament. I simply enjoyed the game…

“I’m so tiredThe hammer’s coming down againI’m hardwiredAll the signals cross and double backBroken insideThere’s no fixing anythingHow do i explainI’m fighting every day to do the simple things?” The lyrics to “Hammer,” written by singer Susie Ulrey and the band Pohgoh,…

Recently, I was asked about the design on the left side of my “Chairborne” banner. A friend from my previous occupation humorously noted that in the original graphic, there’s a skull in the center where the wheelchair now resides. I pointed out that in my current state, a wheelchair…

Years before joining the Army crossed my mind, I was a Boy Scout. We learned all sorts of skills, earned merit badges, and, of course, spent lots of time hiking and camping. I have many fond memories of those scouting years, but one lesson I remember in particular was…

By now, I’m sure you’ve seen the pictures of the wildfires that charred Maui, Hawaii. As I write this, a week after the blaze, The Associated Press reports that more than 100 people have been killed, and the governor expects “scores more.” Some neighborhoods are gone. People literally…

Ten minutes away from the drop zone, we stood up and began the final preparations for the jump. The aircraft flew in anything but a straight line as it turned, banked, and swiftly changed altitude. This unpredictable flying technique was tactically sound, as it made the plane difficult to target,…

A few — OK, many — years ago, I played the lead in a production of “Oklahoma!” Don’t get excited; it wasn’t on Broadway or anything like that. It was a high school production, and I suspect I only landed the role because I could sing — and probably…

So I’m back home. Four months’ worth of bureaucracy lay in front of me. In truth, quite a wodge had grown before I went into the hospital. Hey, I hadn’t been well in the months leading up to my hospitalization late last year. Thankfully Saint Jane — my…

The online platform DrTalks is offering a free virtual summit this summer aimed at helping multiple sclerosis (MS) patients and their caregivers better manage daily life with the progressive neurodegenerative condition. The event is slated for July 5-11, and has more than four dozen speakers lined up. Talks…

The “invisible” symptoms that are common with relapsing-remitting MS and many other chronic illnesses can be the bane of our lives. It’s difficult enough to manage them, as they’re constantly fluctuating like a changing tide. But in some ways, it’s even more difficult to explain them to…

“scabulous adj. proud of a scar on your body, which is an autograph signed to you by a world grateful for your continued willingness to play with her, even when you don’t feel like it.” — John Koenig, “The Dictionary of Obscure Sorrows“ I’ve managed to amass quite the…

The wing of the small aircraft dipped below the horizon, revealing a strip of sand in the middle of the Bering Sea. On one side, miles of ocean. On the other, a lagoon. It was 1995, and Melissa Cook, her husband Elgin, and their three small children were beginning an…

I had a glass of wine thrown in my face on the evening of my wedding anniversary. I was taken completely by surprise — well, maybe not completely. After all, the person who threw it has a reputation for that sort of thing. I was pretty irritated, though, because a…

In the five years I’ve been tapping away at this multiple sclerosis (MS) column for MS News Today, I’ve so far written during one FIFA World Cup. My oft used trope is that “it’s football, not soccer,” for our many U.S. readers. That is, at least, how…

What do you do to make living with multiple sclerosis (MS) easier? A similar question was posed to readers of the MS News Today Facebook page recently, and about 175 people responded. Even an MS old-timer like me (I’ve been living with the disease for 42 years and…

“You married a husband and ended up with a child,” quipped I. It was first thing Sunday morning, and I was addressing my wife of 30 years, Jane. She stood with blue, latex, hypoallergenic gloves on her hands, ready to deal with my sopping wet pad. More on that…