living with MS

Three innovative projects aimed at addressing unmet needs in multiple sclerosis (MS) and fostering new perspectives on the disease have received incubator grants from the nonprofit MS Australia. Totaling AU$74,813 (or about $48,700), the grants will support one-year projects that focus on MS social needs, disease biomarkers, and…

While watching the Olympics recently, l found myself reminiscing about the days when I played sports. I used to dream about becoming the next Shannon Miller in gymnastics or Mia Hamm in soccer. A more realistic dream was playing sports in college, but that goal quickly became unattainable. In eighth…

I spent the majority of my life wearing an Army uniform. As a result, I never had to worry about what I’d wear to work all those years. Come to think of it, I never had to worry about that during my civilian years, either. I’m the middle…

About a year after I was born, my parents decided to get my ears pierced. Little did they know, it would become an obsession of mine years later. But little did I know, my piercings would pose problems when it was MRI time. When I was 13, I continued…

My last magnetic resonance imaging (MRI) scan was on May 1, just ahead of an appointment with my multiple sclerosis (MS) healthcare provider six days later. The MRI showed that my MS was stable, meaning I had no new or active lesions. I was pleasantly surprised by these…

With just four more summers with all my kids still living at home, I’ve been making the most of our time together by throwing everyone in our trailer to visit state and national parks in the U.S. This summer we’re overseas in Europe, experiencing the lesser-known sights only accessible by…

I almost didn’t write this column. It might be a sensitive topic, but I’m not afraid of offending anyone. Even if I do, it’s not intentional. It’s not that I don’t understand the subject, either. I think I do, but I’ve been having a lot of trouble putting it into…

Searing pain and tears characterized my life for years because of multiple sclerosis-associated migraines. I remember those feelings as clearly as day because they diminished my quality of life. One radiant morning, my mom, friend, and I went to a coffee festival in our hometown. It was…

Like so many others, I have a bedtime routine. There’s bedside water to fill, sleep attire to change into, and bedtime stories to read. These days I’m not much more than a bystander, as nearly everything I do requires the help of another person. I suppose I should really say…

Multiple sclerosis (MS) patients exhibited greater resistance to the effects of insulin — the hormone responsible for keeping the body’s blood sugar levels within a healthy range — and had higher overall insulin levels compared with people without the neurodegenerative disease, a meta-analysis of published studies found. These findings…

I’ve been on the same disease-modifying therapy (DMT), Gilenya (fingolimod), for my multiple sclerosis (MS) for several years. It’s worked well for me, as my last exacerbation was at least five years ago. I credit this DMT for stabilizing my MS and allowing me to live better with my…

A disease-modifying therapy (DMT) for multiple sclerosis (MS) is a form of treatment that alters how the disease develops over time. DMTs have the potential to impede the progression of MS and decrease the number of relapses a patient experiences. In MS, the immune system is…

I’ve been betrayed by my breakfast cereal. Other than eating it, I’m not sure what I did to deserve this. I always liked cereal and thought we had a good relationship. The only disagreement we’ve had was when I tried mixing two high-fiber cereals. The result was a bowl of…

Can Do Multiple Sclerosis is putting together a two-day program to help newly or recently diagnosed patients and their caregivers learn more about multiple sclerosis (MS), meet others with the disease, and find strategies to adapt to a new lifestyle. Called Take Charge, the free program will…

Let me paint you a picture of a scenario that has stuck with me for years. It was my sophomore year at the University of Texas at Austin and I was having lunch with my best friend at the time. We were discussing my journey with relapsing-remitting multiple sclerosis…

I was once very good at getting out of the way. This skill served me well in dodgeball games when I was younger, and then later during my military career. Given my various injuries, you might be skeptical about that last comment, but I was actually renowned for my ability…

Note: This column describes the author’s own experiences with sleep medications and antidepressants. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Many years ago, it was brought to my attention that I suffer from insomnia and chronic fatigue.

I choose to fundraise for the National Multiple Sclerosis Society through Bike MS, which the society’s website says is “the largest fundraising cycling series in the world.” Approximately 50,000 cyclists and 5,000 teams ride each year, and the community has raised $1.4 billion to support the society’s…

A trip to Taiwan this summer has been years in the making for our family. Our kids have been in Mandarin immersion since preschool, so when their school offered a three-week program for true immersion in Taipei, we jumped at this once-in-a-lifetime opportunity. But dang it is hot and humid…

I had surgery on my right shoulder last month. I didn’t write about it at the time because compared with a shoulder replacement, the quick arthroscopic clean-out procedure wasn’t a big deal. The orthopedic surgeon removed some loose material from the joint area and cleaned it up without having to…

June is a special month for me. Eight years ago I had an autologous hematopoietic stem cell transplant (aHSCT) in Moscow to treat my multiple sclerosis (MS). On June 22, I celebrated my eighth stem cell birthday! A stem cell transplant, or “stemmie day,” is when patients…

Dear younger self, As I sit down to write this letter, I can’t help but tear up at the thought of you. First and foremost, you’re an amazing soul, full of life and with a bright future ahead of you. But you’ve just received life-changing news, and it feels…

People with multiple sclerosis (MS) who have cognitive impairment tend to report worse mental and physical quality of life than patients who don’t have cognitive issues, a study reports. Adults with MS who have cognitive problems are also less likely to be employed. The study, “Association…

Cionic has added three renowned institutions on the East Coast to its national Centers of Excellence program, a move that expands the availability in the U.S. of the Neural Sleeve to people with multiple sclerosis (MS) and other neurological conditions that affect mobility. The program represents a key…

I spent a few of my years in the Army working as an instructor. It was never boring because I think I learned as much from teaching as my students did from being taught. My students weren’t new to the Army. For the most part, they were my peers…

My mom always wished for a son and a daughter. Ten years after I was born, her dream became a reality with the arrival of my baby brother, Michael. Because I was the only child for so long, I had never considered becoming a big sister, nor did I understand…

I received a copy of “The Dictionary of Obscure Sorrows” for Christmas two years ago. It provides names for emotions that need defining, and I’ve thoroughly enjoyed leafing through it. I’m not particularly sorrowful, and I don’t really find the majority of the text to be sorrowful, either.

A large clinical trial to test online programs for treating fatigue in people with multiple sclerosis (MS) will launch in the U.S. in the coming months. The study — the largest of its kind — will be funded by a nearly $4.5-million grant from the U.S. Department of…

I have a doctor’s appointment coming up soon. It isn’t with my neurologist or another specialist. It’s a routine visit with my primary care physician and, other than the regular schedule, isn’t really routine at all. There’s a lot more to me than my multiple sclerosis (MS), a fact…

Resistance training by middle-aged people with multiple sclerosis (MS) was linked with significant improvements in muscle strength in a recent meta-analysis of previous clinical trial data. The analysis indicated the benefits of such training, which is designed to boost strength and endurance, were more variable in fatigue and quality…