living with MS

You know what they say about assuming? You don’t? Well, I just assumed that you did, so I guess the joke’s on me. I was going to start this column off by saying that people make a lot of assumptions about the disabled, but now I’m not sure that “assumption”…

Jenn Powell wears her MS ambassador shirt with pride. (Photos courtesy of Jenn Powell) Day 20 of 31 This is Jenn Powell’s story: Hosting The Multiple Sclerosis Podcast has been eye-opening, exposing me to the diverse and inspiring voices within the multiple sclerosis (MS) community. Every guest I…

Cognitive impairment is common in people with multiple sclerosis (MS) who have not previously received treatment, affecting about 1 in 4 patients, and rates are particularly higher in those with secondary progressive MS (SPMS), a new study found. “The current study demonstrates that a significant portion of MS…

Latifa Janahi takes a five-day course of corticosteroids to reduce inflammation in her body. (Photos courtesy of Latifa Janahi) Day 19 of 31 This is Latifa Janahi’s story: I am a woman from Bahrain Island who’s passionate about technology and baking. After working in the tech field for 10…

Dee Ecklund, riding her Alinker, finishes a Turkey Trot on Thanksgiving 2024. (Photos courtesy of Dee Ecklund) Day 18 of 31 This is Dee Ecklund’s story: I am a firm believer everything happens for a reason. Maybe we have some things to learn, teach, or even both. With the…

I flew to Detroit for work this month, then on to Phoenix to see my parents, and then back home to Kansas City, Missouri. But traveling by airplane has gotten more complicated for me because of my multiple sclerosis (MS). I don’t need assistive devices, so I know my…

Ronald Harris shows off his new power wheelchair. (Photos courtesy of Ronald Harris) Day 17 of 31 This is Ronald Harris’ story: Harris is seen working from home, using a desk that accommodates his power chair. My journey with multiple sclerosis (MS) began with an unexpected diagnosis…

Tom Anderson, 67, was diagnosed with multiple sclerosis at about 30 years old. (Photos courtesy of Tom Anderson) Day 16 of 31 This is Tom Anderson’s story: I may be the dimmest star, but don’t get all hokey on me. There are lots of us. The following are the…

Sterling Hofmeister is pictured here at 6 months, carried in a backpack by his father Ben Hofmeister. (Photos courtesy of Ben Hofmeister) Day 15 of 31 This is Sterling Hofmeister’s story: Sterling Hofmeister, far right, is pictured with his brothers and father in 2018. My name is Sterling…

Yara Essam takes a selfie in a mirror during one of her many gym sessions. (Photos courtesy of Yara Essam) Day 14 of 31 This is Yara Essam’s story: I’d always been fairly healthy as a child — barely getting sick, eating well, and constantly moving my body. That’s…

When I could still drive, I enjoyed the experience. A car or truck was not just for getting from point A to point B. It was also about the thrill of the journey itself, and I wanted to coax as much as possible from the trip. That meant driving high-performance…

Christy Hoffman poses for a picture with her husband Mike, who has MS. (Photos courtesy of Christy Hoffman) Day 13 of 31 This is Christy Hoffman’s story: Anxious. Blessed. Curious. Daring. Excited. Frustrated. Gregarious. Happy. Isolated. Jovial. Kind. Loving. Moody. Numb. Opinionated. Pumped. Quiet. Restless. Strong. Trusting. Underrated. Valiant.

Nanette Lai locks eyes with her chihuahua Fanny. Lai says mutual gazing between humans and dogs can cause synchronization in areas of the brain. (Photos courtesy of Nanette Lai) Day 12 of 31 This is Nanette Lai’s story: My name is Nanette, and I have lived with relapsing-remitting…

I spent most of February staring at a blank screen, the blinking cursor mocking me. Despite having a solid idea to convey and a column deadline looming, my brain was stuck in the mud of cognitive fog. I tried to force my mind to cooperate, but it was like trying…

Izzy Abbas loves to go camping, but he also enjoys traveling internationally, Here, he is shown visiting Turkey. (Photos courtesy of Izzy Abbas) Day 11 of 31 This is Izzy Abbas’ story: Camping — being out in the woods and mountains — is something I’ve always loved. Despite all…

Sarah Zichterman poses for a photo one year after her MS diagnosis. (Photos courtesy of Sarah Zichterman) Day 10 of 31 This is Sarah Zichterman’s story: Getting diagnosed with MS was not something I thought would happen to me at age 24. One day in January 2024, I woke…

Naty Caez shares about her life with MS on Instagram. (Photos courtesy of Naty Caez) Day 9 of 31 This is Naty Caez’s story: In September 2024, I was diagnosed with multiple sclerosis (MS). Everyone’s diagnosis story is going to look a little different, but for me, it took…

Edward Radford gives a thumbs-up while running The Great North Run half-marathon in 2024. (Photos courtesy of Edward Radford) Day 8 of 31 This is Edward Radford’s story: People often say F**k MS, like it’s a battle cry. I get it. For a long time, I saw it that…

Amy Behimer sits in a rocking chair in her home. (Photos courtesy of Amy Behimer) Day 7 of 31 This is Amy Behimer’s story: When I was first diagnosed with multiple sclerosis (MS), I thought my chance at a healthy, happy life was gone. As a pharmacist,…

The Army took me to a lot of different places around the world, and if I spent enough time in any one of them, I often found myself adopting local customs. In the deserts of Afghanistan and Iraq, for example, if circumstances allowed, I usually wore a shemagh, and sometimes…

Anne Rosales is a mother, grandmother, and community volunteer, as well as a certified Aging in Place specialist. She was diagnosed with MS in her mid-50s. (Photos courtesy of Anne Rosales) Day 6 of 31 This is Anne Rosales’ story: My handicap parking placard arrived a few months ago.

People with multiple sclerosis (MS) who eat more fish are significantly less likely to see confirmed disability progression and the greater the intake, the lower the progression risk, a study in Sweden finds. The dietary habits of patients were assessed at the time of their diagnosis and disability progression…

Brittany Boudreau attends the MS Dream Center of Rhode Island’s An Evening to Remember gala. (Photos courtesy of Brittany Boudreau) Day 5 of 31 This is Brittany Boudreau’s story: In August 2021, my life was going according to a plan I’ve had since I was 10. However, two days…

Melinda Livermont, an MS Ambassador with MS4MS, is shown representing for the nonprofit while attending an NHL hockey game. (Photos courtesy of Melinda Livermont) Day 4 of 31 This is Melinda Livermont’s story: After the initial MRI scans, spinal tap, and blood work, hearing the actual words from…

A neurodegenerative disease, multiple sclerosis (MS) is estimated to affect more than 1.8 million people worldwide — across all ages, races, sexes, and geographical regions. During Multiple Sclerosis Awareness Month this March, patients, caregivers, and other advocates are coming together to provide opportunities to connect, educate, inspire, empower, and…

I’ve noticed a lot of people with multiple sclerosis (MS) report that their disease worsens in the summer months, with fatigue and heat intolerance as common complaints. Not me. I seem to thrive in warmer weather, and I enjoy going outside for the heat. Instead, I struggle in the…

A young Michael Lama Jr. poses with his sister, Desiree Lama, at Christmastime years ago. (Photos courtesy of Michael Lama Jr.) Day 3 of 31 This is Michael Lama Jr.’s story: Growing up, my sister Desiree and I used to play video games and sports in our grandma’s backyard.

Sanam Saeedi resolved not to allow a diagnosis of MS to determine the course her life could take. (Photos courtesy of Sanam Saeedi) Day 1 of 31 This is Sanam Saeedi’s story: For years, I lived with numbness and tingling in my toes, but dismissed it as a result…

I was driving home the other day when something in my rearview mirror caught my attention: A giant pickup truck had flipped over in the fast lane of the highway. It did not look good. I pulled over on the left shoulder and ran to help, completely forgetting the back…

A friend of mine went hiking alone during the warmer months of early autumn. Before he left, he contacted several of his friends via a group chat and let us know when and where he intended to start and the location where he planned to camp for the night. He…