February 7, 2023 Columns by Jamie Hughes Marching onward: What MS has taught me and trained me to bear Well, dear readers, I took a bit of time off from writing this column, but not by choice. January was an incredibly hectic 31 days, and I spent most of them living with my parents in Florida. Why? Well, because my mother has been dealing with some health issues…
May 3, 2022 News by Marta Figueiredo, PhD Uncertainties of MS Challenging in Scary Ways: UK Patient Survey The uncertainties that accompany multiple sclerosis (MS) are among the biggest challenges faced by people with the disease, with two-thirds of patients in a recent survey saying “they’re scared for the future” because of such unknowns, the MS Society, which conducted the U.K. survey, reports. “We may all think the…
March 23, 2021 Columns by Jessie Ace How an MS Episode Gave Me Mental Strength and Clarity “Is this the real life? Is this just fantasy?” The other night I watched the movie “Bohemian Rhapsody,” and seeing the portrayal of the late Queen frontman Freddie Mercury as he faced an HIV/AIDS diagnosis brought my own MS diagnosis…
March 16, 2021 Columns by Jessie Ace How I Find Certainty While Living With an Unpredictable Illness I glanced at the clock: 15:51. I was relieved. For some reason, I’ve been obsessed with time lately. I’m not sure if it’s due to lockdown anxiety or the ups and downs of my multiple sclerosis, but time has…
October 27, 2020 Columns by Jessie Ace Managing Feelings of Uncertainty It doesn’t take much for us to feel uncertain. It could be the result of a new symptom or doing something you’ve never before done, such as attending a telehealth appointment. Maybe the election causes you uncertainty. Perhaps current events or new…
February 1, 2017 Columns by Tamara Sellman Living with Uncertainty is an MS Superpower Recent weeks have been filled with enough political drama to last a lifetime. Wherever I go virtually (and now, even in “real life”), ideological division has been amplified to the extreme. Except … when I go to the multiple sclerosis online forum I co-administrate. Meet the people in my neighborhood The…
July 28, 2016 News by admin There’s a Lack of Communication by Multiple Sclerosis Healthcare Providers, Study Indicates New research from England indicates that healthcare providers do not communicate enough with their patients about the possible outcomes for their multiple sclerosis (MS). The study, “How Do People with Multiple Sclerosis Experience Prognostic Uncertainty and Prognosis Communication? A Qualitative Study,“ appeared in the journal PLoS One.
