March 4, 2020 News by Kellie Benn Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare In recognition of Rare Disease Day Feb. 29, BioNews Services launched a social media campaign last month asking patients to describe what makes them rare. Running Feb. 7ā29, the #WhatMakesMeRare campaign was aimed at uplifting people with rare diseases by encouraging them to share their stories and perspectives. The…
January 23, 2018 News by Patricia Silva, PhD Online Video Aims to Show How ‘Invisible’ Disabilities Affect Lives The Invisible Disabilities Association (IDA) has created a video to raise awareness about the hardships of disabilities that are real but not readily evident to passersby, and often complicate life for people with multiple sclerosis (MS) and other disorders. The video, called āI Am Invisible No More,ā features…
November 21, 2017 News by Larry Luxner Patients Tell Their Stories in Consortium of Multiple Sclerosis Centers’ Online Videos Maryland special education teacher Ingrid Hanson says that since she was diagnosed with multiple sclerosis five years ago, sheās developed a better understanding of her students’ needs and the importance of teamwork. Flavia Nelson helps treat MS in the Hispanic community in Houston. Flavia Nelson, an MS specialist at…
November 15, 2017 Columns by Mike Knight 3 Tips for Explaining MS to Others Face it: Understanding MS isnāt easy ā even if you have it. Thereās no known cause, no cure, no predictability in progression, and while there are common symptoms and manifestations, they affect everyone differently. Some symptoms come and go with no rhyme or reason and…
October 18, 2017 Columns by Cathy Chester New Video Series Features ‘It Takes a Team’ Thereās a difference between being lucky and being blessed. I learned that difference in 1992, after giving birth to our son. Once the doctors counted 10 toes, 10 fingers and we heard the babyās first cry, I remarked to my husband how lucky we were.
September 27, 2017 Columns by Cathy Chester New Video Series Aims to Lift the MS Community When youāre living with multiple sclerosis, itās important to surround yourself with a community of people who give you the kind of support and understanding you need. When I was diagnosed in 1986, there was no internet to help me find a community,…
March 2, 2017 News by Patricia Silva, PhD MSAA Releases Promotional Video to Mark Multiple Sclerosis Awareness Month On a Monday in July, the Multiple Sclerosis Association of America (MSAA) gave Kathy, who loves to hike in the woods, a cooling vest that reduces heat stress ā a common issue for people with multiple sclerosis (MS).Ā On a Wednesday in October, the nonprofitĀ funded an MRI for Sarah,…