April 25, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: Bone Marrow Infusions, ATA188, Enhanced MRIs, Costs Progressive MS Trial Finds Repeat Bone Marrow Infusion Safe, Feasible Two bone marrow transplant studies are reported in this story. The first, a tiny trial of just six people, assessed the safety of this procedure, which involves harvesting…
April 22, 2022 Columns by Ed Tobias The High Cost of Living With MS I always knew that living with multiple sclerosis (MS) was super-expensive, but a new study is a real eye-opener. The study, published in…
April 18, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: Deep Brain Stimulation, IMCY-0141, Foralumab, Vumerity Select Brain Stimulation May Ease MS Tremor, But More Study Needed This is encouraging news for the large group of people with MS who are bothered by some sort of tremor. But the procedure to suppress these tremors…
April 15, 2022 Columns by Ed Tobias Upon Reflection, I’m Determined to Seize the Day Do you think about death? I do — a lot. I mean, like almost every day.
April 11, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: Herpes, COVID-19, Exercise, DMT Studies No Link Between Herpes Infection and MS Risk in Genetic Study This is interesting because the Epstein-Barr virus is a member of the herpes family, and recently, a major study indicated a link between Epstein-Barr and MS. Yet,…
April 8, 2022 Columns by Ed Tobias Crossing the Lemtrada Finish Line I’m marking a big anniversary this month. It’s been four years since I finished the second round of treatment with Lemtrada (alemtuzumab), my final disease-modifying therapy (DMT). That means that, after about 60 monthly blood draws, I’m finished…
April 4, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: GA Depot, Blood-brain Barrier, Mindfulness Use of GA Depot in Treating Progressive MS Given US Patent In the area of MS treatments, one major need is for medications that treat more than just the relapsing form of our disease.
April 1, 2022 Columns by Ed Tobias Dr. Glaucomflecken and Other Healthcare Jokers This column is being published on April 1. When I was in the journalism profession, that was a day we had to be on guard against pranksters who would try to trick us into reporting phony April Fools’ Day…
March 28, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: aHSCT, Cannabis, Smell Test, Telemedicine Stem Cell Transplant Gaining Ground as MS Therapy Option This comprehensive look at stem cell transplants by Multiple Sclerosis News Today writer Hawken Miller is one of the best overviews of the possible…
March 25, 2022 Columns by Ed Tobias One Month of MS Awareness Isn’t Enough I’m changing my mind about MS Awareness Month — at least a little — thanks to “31 Days of MS.” Whether it’s an awareness month or a week, or whether it’s for MS or disabilities in general, I’ve never…
March 21, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: SPMS Transition, NVG-291, PIPE-307, Foralumab MS Doctors, Nurses in UK Struggle With Marking Transition to SPMS The issue highlighted in this story isn’t just a problem in the U.K.; it’s a universal MS problem. People with MS often ask…
March 18, 2022 Columns by Ed Tobias MS Nurses in UK Burdened by Heavier Caseloads, Survey Shows You might be wondering why a Yank like me is writing about multiple sclerosis care in the United Kingdom. It’s because a survey caught my eye the other day that I think deserves a closer look. The survey,…
March 14, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: Keto Diet, Milk and MS, Disability Progression, Neural Sleeve Ketogenic Diet Eases Symptoms, Aids Life Quality in Small RRMS Study This new report says that a ketogenic diet might help people with MS. It’s certainly helped my wife lose weight, but will it…
March 11, 2022 Columns by Ed Tobias Can My Wife’s Keto Diet Help My MS? For the past few months, my wife, Laura, has been following a ketogenic diet, and she’s lost a bunch of weight. But in addition to helping people slim down, the low-carb keto diet may have other benefits, including potentially…
March 7, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: ‘Cog Fog,’ Tolebrutinib, Ublituximab, Spinal Atrophy #ACTRIMS2022 – Cognitive Training Paired With tDCS Aids Patients A treatment to clear “cog fog” would be welcomed by many people with MS. Over 75% of us are troubled by cognitive problems. In this…
February 28, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: aHSCT, Skin Cancer, Spasticity, NfL Blood Test #ACTRIMS2022 – Immune System ‘Reset’ by Stem Cell Transplant At the University of Ottawa, autologous hematopoietic stem cell transplantation (aHSCT) has been used to treat people with aggressive MS since the early 2000s, MS…
February 25, 2022 Columns by Ed Tobias A Health Insurance Address Change Sends Me Down the Rabbit Hole For my wife, Laura, and I, trying to change our address on our health insurance accounts last week was like following Alice down the rabbit hole. As Lewis Carroll wrote in the classic children’s novel “Alice’s Adventures in Wonderland”:…
February 21, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: Brain Atrophy, CD25, Neurodynamic Therapy, Anxiety Fatigue Severity in MS Predicted by Shrinkage of Certain Brain Regions For several years, I’ve been a believer, along with many neurologists, in the theory that it’s best to treat MS as quickly and…
February 18, 2022 Columns by Ed Tobias AXS Map Helps Crowdsource Venue Accessibility Across the Globe If you’re like me, you’re always wondering what obstacles you’ll need to overcome if you eat at a new restaurant or visit another venue you’ve never been to before. Will you physically be able to…
February 14, 2022 Columns by Ed Tobias MS News That Caught My Eye Last Week: aHSCT, Myelin Vaccine, Bone Health, MIND Diet Blood Stem Cell Transplant May Help Immune System Longer I’m a proponent of autologous hematopoietic stem cell transplant (aHSCT) to treat MS. The process entails extracting a patient’s own stem cells, usually from the…
April 25, 2024 Columns by Benjamin Hofmeister Finding safety while living with the constant threat of MS progression
April 22, 2024 Columns by Desiree Lama Learning to manage cognitive impairment with multiple sclerosis
April 18, 2024 Columns by Benjamin Hofmeister Learning how to write a ‘SOAP’ note feels different after an MS diagnosis