Do What You Can

I certainly agree with everything you wrote. I remember a few years after diagnosis watching "Dancing with the Stars", marveling at how the couples were able to do what they did. I no longer had the ability and worst yet, no memory of ever being able to dance. I am still able to visit Costco occasionally, but am thankful for Amazon Prime and home delivery of so many items. My rugged electric scooter gets me out in the woods, and that is a nice way to view the local scenery. We put in a therapy pool, a substantial hit to the budget, but what a wonderful treat during our long winters.

I simply love your writing. That's an ability you surely haven't lost. Keep it up.

It's hard to ask for help.l did things for people who I thought were my friends and they disappeared. Never charged them. That's what friends are supposed to do. I will only do for children and the elderly now, whatever I can still do. I still can walk, barely but I keep going dreading the day I will need a wheelchair. I have always been a giving person but beware of so called friends. I never was one that asked for help and I the time I did nothing was done. Even worse, these so called friends are fellow firefighters.

Thank you John Connor for sharing your experience. I too share your age level and many of the emotional gymnastics in dealing with the day to day challenges sandwiched together with the sometimes agonizing thoughts of what I used to be able to do. I go through my mental list of the things I did before the MS D Day and my new life post the “why me” moment of no return. It’s difficult to let go of this stranglehold that keeps me from living this new but tainted life. I finally found new ways of dealing with this unwelcomed visitor in my life including Amazon and Paratransit to name al few. It’s a challenge every day but we just on going on hoping for a better next day, like I did before, whenever I had to meet a challenge in my life that at the time seemed hopeless.

love your great sense of humour , John....it's what gets us through , eh ?
keep on ''keepin' on ''
thanks for your posts

I don't think MS will ever take away your ability to write and make people laugh. Thanks so much!

Yes, I certainly agree John. I think back and remember telling myself "well if this stuff doesn't get any worse than this I'll be ok", but it did. I've gone from doing the light farm work, landscaping our home, driving my truck and trailer, hauling horses half way across the US to typing online left handed one handed.

I want to thank John and all of you who shared your feelings and circumstances. I am new to this group but an 'old-timer' to MS, having been diagnosed in 1982 when I was a busy 34 year-old mother of two toddlers. The youngest had just been diagnosed with a severe mental impairment as well as Autism, so my life became very complicated and demanding. Fortunately, my MS went into remission and I was able to resume my new life. I now use a cane but continue to take one day at a time and begin each day with prayer. gratitude

Thank you for writing here, as it's kept me (and many many many others) on an even keel as we forge on through choppy waters.

I have a different problem. I have secondary progressive MS. I move slowly and have a walker. I don't need help most of the time, but when I do, I ask. My problem is that I don't want everyone to help me all the time. I am a private person and I have never liked people helping me, even since I was a little kid. One thing I've noticed about people helping you is that a lot of people keep score and if they help you, they feel like you owe them. Some people seem to be trying to buy their way into heaven. I don't want any part of that. I hate it when I have someone coming up behind me run to open the door when I can open it myself. I hate it when people just assume I need their help. What I wonder is am I really obligated to accept help from people? I've had people get really angry with me when I told them I didn't need help. The other day some people wanted to hold open an automated door for me. I don't like people holding doors open for me because I move slowly and they have to wait for me. So I said, "It's an automated door, you don't need to hold it open." The woman glared at me and said they were just trying to be nice and next time they wouldn't help. I said that was fine, I didn't need help. I always end up apologizing to people because I move slow and they have to wait. They invariably say, "Oh, that's OK, just take your time." My comment that I don't have any choice about taking my time is confusing to them. It's tiring. It's bad enough I have this stupid disease without having to be embarrassed daily by everyone having to hold the door open for me, or asking if I need them to put my groceries on the counter at the store. I'm glad they get a charge out of helping, it just depresses me.

I have another question about treatments. I don't do any of the current treatments because I have the JC virus, and I don't want to end up brain dead. I use biotin and alpha lipoic acid, honey, vitamin D. Does anyone know where to get bee sting therapy? I've watched some videos on it and I'd like to try that. It seems to work. If you have any information on that, please let me know.

Thanks