I Make Myself OK: Musings with Secondary Progressive Multiple Sclerosis

Amen to that sister!I don't stand for any pity parties because I'm the only one that goes and they're typically very boring and lame. Everyday I thank the good Lord that I can open my eyes see sit up stand up and take a few steps and I realized God ain't finished with me yet. life is giving me lemons but God gives me the sugar in the water so I can pass out lemonade to everyone I meet. My glass is half full and overflowing. and yes I am transitioning to secondary progressive but I've had a good strong run for 23 years from my diagnosis date 29 if you consider when I had my first flair. I'm a pitbull I've grabbed onto life took a big chunk locked my jaws and I ain't shaking away I'll take a laws rocket between my forehead to get me to stop. And I don't take anything for granted anymore. I've had my highs and I've had my lows. and I told my doctor Hit me with your Best shot cuz if it keeps me stable great if it kills me I already know where I'm going and I'm ready to get there. Your musings was such an inspiration to me thank you so much :-)

I get it. A great article and I can understand your reason for the way the article ended. Good for you, sometimes trying to move forward is all we can do. But I am very glad to hear you have people in your life that love you. Take care and keep on writing. :)

I am your unknown twin. Thank you for posting. I'm 55, have spms, former marathon runner, disabled and find struggles everywhere I look, but I am grateful , keep a smile on my face and laugh as much as possible. Thank you for posting!

Felt very inspired reading your blog . I am like wise living with MS – Primary Progressive since 2004 I was in my late 30’s then . The journey was not easy , learning to remain strong and to keep going forward was a challenge . I had to provide for my family and two children . Failing and giving up was not an option. By the grace of God I pulled through . Though my mobility has been severely impaired I still manage to drive to work . My daughter is in Med School and my son has completed his masters and is pursuing a Phd in Chemistry . I know I am an inspiration to most of my colleagues , friends and acquaintance’s . I pray that by the grace of God I continue to live a life that will bring faith , joy & a smile to all whom I come in contact with … I wish you the same .

Jennifer,
I'm right there with you. Thank you for sharing, I'm 75 was diagnosed 28 years now. I'm so thankful for all the good in my life and the KAFO that keeps me walking and out of a wheelchair. I drive with a left foot gas pedal. Driving is wonderful. I enjoy each day and ignore my ever present symptoms. God is good.

Thanks , Jennifer
I have had MS for 50 years now.....first RRMS and now SPMS. Many challenges, but have been on Fampyra for a few years...and still on my feet . God is good.
Always enjoy your posts...thanks.

Thank you for sharing. I to have SPMS but have lived a wonderful life. I am a retired Fam. Med. doc who has an still enjoy seeing people and entering in their lives. I still see patients at an immigrant clinic, teach Fam med clerkship at a university and work at a food pantry. I still can drive with hand gears and have a handicap van. Right now I use AFO on both legs and a walker to get around. If I have to go long distances in walking I have a power chair. But, most of all I agree with you attitude. God gives us the graces to walk our journey with grace and dignity. And a good laugh is the best medicine I have found. Thank you for sharing.

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I always hit a rough patch in November, and I usually bounce back, but a little gets lost each time. This past fall was the same November like the ones before it, but the bounce back wasn’t the same. I know this is my future, and I think I’ve accepted it, but it still makes me cry over my lost self. My comfort is God didn’t bring me this far to let me fail now. I'll be 60 in a few months, 25 years of it with ms. I look back and I'm in awe what of what I've accomplished. There is nothing like a ticking clock to motivate someone. So I sit here waiting for my husband to retire to figure out where to go from here. Waiting is something I was never good at, so I try not to listen to that ticking clock. But it’s always there in the back of my head.