March 5, 2020 News by Mary Chapman MS Society Spotlights Patient Stories for MS Awareness Week, March 8-14 The National Multiple Sclerosis Society (NMSS) is marking Multiple Sclerosis Awareness Week, March 8-14, by sharing patients’ stories and encouraging participation in fundraising and advocacy efforts. Each year, a week is set aside to heighten awareness of multiple sclerosis (MS), a neurodegenerative disorder that affects nearly 1 million people in…
February 19, 2020 News by Mary Chapman Bike MS Fundraiser Will See Tri Global Energy Back on Saddle for 5th Year Tri Global Energy is again joining with fellow Texans for Bike MS, the nationwide fundraising cycling series of the National Multiple Sclerosis Society (NMSS). Team Wind Force will saddle up May 16-17 for Bike MS Round-Up Ride 2020. Now in its fifth year, the Dallas area team has…
January 30, 2020 News by Mary Chapman Nonprofits RARE Courage, All Wheels Up Partner on Survey Seeking to Improve Air Travel for Wheelchair Users Kevin Schaefer hadn’t been in an airport since he was 4 years old, so he had been looking forward to flying from his home in Cary, North Carolina, to Anaheim, California, in June for the 2019 Cure SMA Conference. As it turned out, his experience didn’t go as expected.
January 22, 2020 News by Mary Chapman Pilot Study Participant Helping Test Exoskeleton Device for MS Therapy Encouraged by Results Since being diagnosed with multiple sclerosis (MS) 20 years ago, Kathy Miska’s ability to walk has steadily worsened, especially in recent years. As a participant of a pilot study at the Cleveland Clinic Mellen Center for Multiple Sclerosis, however, she is cheered by the effect of…
January 13, 2020 News by Mary Chapman MyHealthTeams, EMD Serono Launch Online Family Planning Resource Center for MS Patients To empower and support prospective mothers with multiple sclerosis (MS), MyHealthTeams — a free social network for people with chronic medical conditions — and pharmaceutical EMD Serono have launched the online Family Planning Resource Center. The new center operates within the network’s MyMSTeam, and is sponsored in…
December 18, 2019 News by Mary Chapman BrainStorm Cell Therapeutics Wins 2020 ‘Buzz of BIO’ Award For its promising investigational therapeutic approach to neurodegenerative diseases, including progressive multiple sclerosis (MS), BrainStorm Cell Therapeutics is the Buzz of BIO 2020 winner in the Public Therapeutic Biotech category. The Buzz of BIO contest identifies U.S. companies with groundbreaking, early-stage potential to improve lives. The…
December 11, 2019 News by Mary Chapman Sara Loud to Lead Accelerated Cure Project for MS as New CEO Leadership changes at the Accelerated Cure Project (ACP) for Multiple Sclerosis aim to enhance the nonprofit patient-founded organization’s research focus. Robert McBurney has stepped down as president and CEO after eight years to become ACP’s first chief research officer. He will continue in the position of research lead for the…
December 4, 2019 News by Mary Chapman National MS Society Establishes Partnership with Jon Strum’s ‘RealTalk MS’ Podcast When Jon Strum began his “RealTalk MS” podcast two years ago, he did not imagine he soon would have thousands of regular listeners in more than 60 countries. Now, Strum’s popular online audio series has a new partner: the National Multiple Sclerosis Society (NMSS). Strum uses his weekly…
November 13, 2019 News by Mary Chapman Sativex, Cannabis Extract for MS Spasticity, Now Available to Select Patients in England The cannabis sativa plant extract Sativex is a cost-effective therapy for spasticity in multiple sclerosis (MS) and can be offered to patients in England needing it on at least a monthlong trial basis, the National Institute for Health and Care Excellence (NICE) said in issuing a…
November 8, 2019 News by Mary Chapman ‘Soothie Cushion’ Designed to Regulate Body Temperature in Travelers With MS, Other Disabilities Newly launched, the Soothie Cushion is designed to provide seating comfort and help regulate the body temperature of travelers with disabilities, including multiple sclerosis (MS) and myasthenia gravis, says its official retailer, Special Needs Group/Special Needs at Sea (SNG). The product is said to offer enduring comfort…
October 23, 2019 News by Mary Chapman MS Among Research and Discussion Topics at 24th World Congress of Neurology Some 4,000 science experts from 126 countries will gather at the 24th World Congress of Neurology (WCN 2019) to discuss cutting-edge research, including advances in diseases such as multiple sclerosis (MS). Hosted by the World Federation of Neurology (WFN) and the Emirates Neurology Society, the conference will run Oct.
October 11, 2019 News by Mary Chapman MS Society in UK Opens ‘Stop MS Appeal,’ £100M Fundraiser to Better Treat Disease Through its Stop MS Appeal campaign, the United Kingdom’s MS Society seeks to raise £100 million (almost $125 million) within the next decade to advance research and treatments that will stop multiple sclerosis (MS) progression. Over the next three months, the organization will run an extensive advertising campaign…
September 27, 2019 News by Mary Chapman Michigan’s Memorial Healthcare First in US to Test NfL in MS Patients Memorial Healthcare Institute for Neurosciences and Multiple Sclerosis announced it will become the first U.S. hospital to test a nerve cell-derived component known as neurofilament light chain (NfL) in multiple sclerosis (MS) patients. Led by the Owosso, Michigan, hospital’s chief of neurology and MS director, Rany Aburashed, DO,…
September 24, 2019 News by Mary Chapman MS Society of Canada Running Online Letter Campaign Ahead of Oct. 21 Election Leading up to Canada’s Oct. 21 federal election, the Multiple Sclerosis Society of Canada is urging citizens to write their local candidates, asking for greater support of those living with the neurodegenerative disorder. Called #MakeMSMatter, the Sept. 4 through Oct. 21 online letter-writing drive is an effort…
August 14, 2019 News by Mary Chapman ‘Burgers to Beat MS’ Fundraiser Set for Aug. 22 at A&W Restaurants Across Canada The 11th annual “Burgers to Beat MS” day is set for Aug. 22 in Canada, with $2 from each purchase of an A&W Teen Burger going to the MS Society of Canada to support people living with multiple sclerosis (MS). Supporters may also round up their in-restaurant bill to the nearest…
July 10, 2019 News by Mary Chapman My MSAA Community Marks 3 Years of Supporting and Connecting People with MS This summer marks three years since the Multiple Sclerosis Association of America (MSAA) launched its free online forum, designed to support, inform, and uplift members of the multiple sclerosis community. The organization encourages all affected by MS to make use of this resource. Called My MSAA Community, the platform…
July 1, 2019 News by Mary Chapman PathMaker Neurosystems Wins France’s Top Prize for Innovation for Spasticity Treatment The developer of an innovative, first-in-class, noninvasive device for the treatment of spasticity in multiple sclerosis (MS) and other conditions has won the 2019 CCI France International Trophy for Innovation. PathMaker Neurosystems was selected from a list of eight finalist companies, which were distinguished among 150…
June 5, 2019 News by Mary Chapman 12-part Video Series, ‘Understanding Multiple Sclerosis,’ Available Online In partnership with @Point of Care, the Multiple Sclerosis Association of America (MSAA) is offering a comprehensive educational video series about multiple sclerosis (MS). The concise, 12-part series — titled “Understanding Multiple Sclerosis” — features neurologist and MS expert Michelle T. Fabian, MD, and covers…
May 29, 2019 News by Mary Chapman Corrona Expands MS Patient Registry to Include Genentech Corrona has expanded its collaborative multiple sclerosis (MS) U.S. patient registry to include Genentech, the first pharmaceutical company to participate. Established in 2017, the Corrona MS Registry is a real-world U.S.-based registry, developed in collaboration with the National MS Society. Its goal is to help guide treatment decisions based on…
May 6, 2019 News by Mary Chapman Artists and MSAA Mark 10 Years of Showcasing Original Works A bird in flight, a field of flowers, a dog surrounded by butterflies, a portrait of a toddler — they’re all part of the artwork by the multiple sclerosis (MS) community done for a Multiple Sclerosis Association of America (MSAA) showcasing program, now marking its 10th year. Through its…
May 3, 2019 News by Mary Chapman MS Patient and Advocate ‘Longhaulpaul’ Raises $18,500 for Disease Research and Patient Support As his moniker suggests, multiple sclerosis (MS) patient Paul Pelland is in it for the long haul. Known as “Longhaulpaul,” Pelland recently set a world motorcycling endurance record — his third — on a dynamometer while raising $18,500 for MS research and patient support. Pelland rode his Yamaha Star Venture for…
April 3, 2019 News by Mary Chapman Veterans Affairs and National MS Society Team Up to Better Care for Vets with This Disease Complementing its nationwide network of multiple sclerosis (MS) research and clinical services centers, the U.S. Department of Veterans Affairs (VA) has teamed up with the National Multiple Sclerosis Society (NMSS) to improve care for the veterans it serves and their families. The VA and the NMSS partnership was formalized…
March 29, 2019 News by Mary Chapman Mediaplanet Features MS Patient and Former NHL Player Bryan Bickell in Awareness Effort MediaPlanet has launched a robust multimedia campaign aimed at calling attention to multiple sclerosis (MS) and similar diseases and featuring MS patient and former professional hockey player Bryan Bickell. The kickoff was timed for March, which is Multiple Sclerosis Awareness Month. MediaPlanet specializes in content creation and…
March 25, 2019 News by Mary Chapman Physicians’ Education Resource Holds 2-Day Conference on Neurological Disorders Like MS in September The Physicians’ Education Resource (PER) will host its first international conference on the future of neurological disorders such as multiple sclerosis (MS), including prospective therapies. Set for Sept. 27–28 at the InterContinental New York Times Square, the continuing medical education (CME) conference will feature more than…
March 13, 2019 News by Mary Chapman On the Heels of New MS Prevalence Study, the National MS Society Marks MS Awareness Week with Patient Stories Spurred on by a recent multiple sclerosis (MS) prevalence study, which revealed that the number of MS patients in the U.S. is double (nearly one million) what had been previously thought, the National Multiple Sclerosis Society is marking MS Awareness Week by sharing stories of those affected…
March 6, 2019 News by Mary Chapman Multiple Sclerosis Association of America Putting Focus on Family for MS Awareness Month In recognition of March as Multiple Sclerosis (MS) Awareness Month, the Multiple Sclerosis Association of America (MSAA) is calling attention to the disease’s impact on families. More specifically, the nonprofit organization is focusing its awareness campaign on the topics “Relationships and MS” and “Spotlighting Care Partner Needs,” according…
December 12, 2018 News by Mary Chapman GB Sciences, LSU Partner on Cannabinoid Research and Development Project for MS, Other Diseases As debate continues about the effects of medical marijuana on multiple sclerosis (MS) and other diseases, cannabis company GB Sciences and Louisiana State University (LSU) have agreed on a cannabinoid research and development project. This collaboration between a public and a private enterprise is a first in the therapeutic cannabis…
December 10, 2018 News by Mary Chapman Research Team Chosen to Lead to Novel Research Project in Canada into MS Progression With a renowned researcher and her team chosen to lead it, work can now begin on the first project of its kind in Canada designed to shed more light on multiple sclerosis progression, and better ways of diagnosing and treating it. Leading the pioneering $7 million project — the Canadian…
December 3, 2018 News by Mary Chapman Mumford & Sons Bassist Helps UK MS Society Tackle Patient Loneliness with New Exhibit A musician, a member of Parliament, and the Multiple Sclerosis Society in the United Kingdom have joined forces to increase awareness on the social isolation that often accompanies multiple sclerosis (MS). The campaign grew from the society’s research, which found that up to 60 percent of MS patients, or…
November 19, 2018 News by Mary Chapman Accelerated Cure Project, National MS Society Pair to Advance Research, Patient Input Hoping to expedite multiple sclerosis (MS) research and boost patient participation, the Accelerated Cure Project (ACP) for Multiple Sclerosis is teaming with the National Multiple Sclerosis Society. As part of the collaboration, the MS Society will make use of ACP’s iConquerMS, a research initiative to increase the engagement…