Columns

I almost didn’t write this column. It might be a sensitive topic, but I’m not afraid of offending anyone. Even if I do, it’s not intentional. It’s not that I don’t understand the subject, either. I think I do, but I’ve been having a lot of trouble putting it into…

Searing pain and tears characterized my life for years because of multiple sclerosis-associated migraines. I remember those feelings as clearly as day because they diminished my quality of life. One radiant morning, my mom, friend, and I went to a coffee festival in our hometown. It was…

Like so many others, I have a bedtime routine. There’s bedside water to fill, sleep attire to change into, and bedtime stories to read. These days I’m not much more than a bystander, as nearly everything I do requires the help of another person. I suppose I should really say…

I’ve been on the same disease-modifying therapy (DMT), Gilenya (fingolimod), for my multiple sclerosis (MS) for several years. It’s worked well for me, as my last exacerbation was at least five years ago. I credit this DMT for stabilizing my MS and allowing me to live better with my…

A disease-modifying therapy (DMT) for multiple sclerosis (MS) is a form of treatment that alters how the disease develops over time. DMTs have the potential to impede the progression of MS and decrease the number of relapses a patient experiences. In MS, the immune system is…

I’ve been betrayed by my breakfast cereal. Other than eating it, I’m not sure what I did to deserve this. I always liked cereal and thought we had a good relationship. The only disagreement we’ve had was when I tried mixing two high-fiber cereals. The result was a bowl of…

Let me paint you a picture of a scenario that has stuck with me for years. It was my sophomore year at the University of Texas at Austin and I was having lunch with my best friend at the time. We were discussing my journey with relapsing-remitting multiple sclerosis…

I was once very good at getting out of the way. This skill served me well in dodgeball games when I was younger, and then later during my military career. Given my various injuries, you might be skeptical about that last comment, but I was actually renowned for my ability…

Note: This column describes the author’s own experiences with sleep medications and antidepressants. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Many years ago, it was brought to my attention that I suffer from insomnia and chronic fatigue.

I choose to fundraise for the National Multiple Sclerosis Society through Bike MS, which the society’s website says is “the largest fundraising cycling series in the world.” Approximately 50,000 cyclists and 5,000 teams ride each year, and the community has raised $1.4 billion to support the society’s…

A trip to Taiwan this summer has been years in the making for our family. Our kids have been in Mandarin immersion since preschool, so when their school offered a three-week program for true immersion in Taipei, we jumped at this once-in-a-lifetime opportunity. But dang it is hot and humid…

I had surgery on my right shoulder last month. I didn’t write about it at the time because compared with a shoulder replacement, the quick arthroscopic clean-out procedure wasn’t a big deal. The orthopedic surgeon removed some loose material from the joint area and cleaned it up without having to…

June is a special month for me. Eight years ago I had an autologous hematopoietic stem cell transplant (aHSCT) in Moscow to treat my multiple sclerosis (MS). On June 22, I celebrated my eighth stem cell birthday! A stem cell transplant, or “stemmie day,” is when patients…

Dear younger self, As I sit down to write this letter, I can’t help but tear up at the thought of you. First and foremost, you’re an amazing soul, full of life and with a bright future ahead of you. But you’ve just received life-changing news, and it feels…

I spent a few of my years in the Army working as an instructor. It was never boring because I think I learned as much from teaching as my students did from being taught. My students weren’t new to the Army. For the most part, they were my peers…

Note: This column describes the author’s own experiences with an autologous hematopoietic stem cell transplant (aHSCT). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. In June 2016, I traveled to Moscow with two friends. The first evening we were…

My mom always wished for a son and a daughter. Ten years after I was born, her dream became a reality with the arrival of my baby brother, Michael. Because I was the only child for so long, I had never considered becoming a big sister, nor did I understand…

Note: This column describes the author’s own experiences with high-dose steroids to treat multiple sclerosis (MS). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. My first experience treating an MS relapse with intravenous steroids was interesting.

I received a copy of “The Dictionary of Obscure Sorrows” for Christmas two years ago. It provides names for emotions that need defining, and I’ve thoroughly enjoyed leafing through it. I’m not particularly sorrowful, and I don’t really find the majority of the text to be sorrowful, either.

I have a doctor’s appointment coming up soon. It isn’t with my neurologist or another specialist. It’s a routine visit with my primary care physician and, other than the regular schedule, isn’t really routine at all. There’s a lot more to me than my multiple sclerosis (MS), a fact…

In previous columns, I’ve shared that I’m a graduate student at the University of Texas at Austin, but what exactly does that entail? Almost every time I tell someone I’m pursuing a doctorate in educational psychology, I’m met with the question, “What do you do?” Let’s unpack the answer.

I’d tricked myself into thinking I was a night owl for decades. Studying came more easily during those dark, quiet, and still hours. So did going out to nightclubs to dance, meet strangers, and feel a little more anonymous and a lot less self-conscious. When that phase of around-the-clock studying…

By the time this column is published, I’ll be at the Consortium of Multiple Sclerosis Centers‘ annual meeting in Nashville, Tennessee. I’m honored to be attending as a representative of the Paralyzed Veterans of America (PVA) Multiple Sclerosis Committee. Along with the other committee members, I’ll help spread…

I try not to attribute every new symptom I experience to multiple sclerosis (MS). When I was younger, I had an easier time attributing the cause of a new symptom: It was MS or something else. As I age, this differentiation is becoming more difficult. Recently, I experienced new-onset…

As I’ve mentioned in previous columns, I’m now pursuing a doctorate in educational psychology at the University of Texas at Austin. Given that work, 99.9% of my day revolves around typing, despite my multiple sclerosis (MS). My journey as a typist began in high school, when I enrolled…

If I haven’t warned you that bits of my past in the military would sometimes leak into my present as a Multiple Sclerosis News Today columnist, consider yourself warned. I was in the U.S. Army for almost 22 years, so it’s bound to happen occasionally. If I’d become an…

There have been so many times I’ve started something but was unable to finish it. There have been so many things I’ve intended to do, but somehow never followed through on them. The gate of my mom’s backyard privacy fence is broken. Half of it is missing. A dear friend…

Recognizing and valuing authenticity is an aspect of life I began to grasp only a few years ago. During the peak of quarantine restrictions due to COVID-19, I was forced to move back home to San Antonio from my on-campus dormitory at the University of Texas at Austin. Like many…

I turn 49 next week. The fact that I’m in middle age already is unbelievable. I don’t think of myself as old. My mileage might be a little high, but I’m not old. I suppose I could consider myself to be vintage, like clothing, or perhaps even classic, like a…

I have several big milestone events coming up, all within a week. My son is graduating from college and my daughter from high school. Additionally, we have my son’s nurse pinning ceremony, a graduation lunch, two graduation parties, Mother’s Day, and lots of family and friends in town for these…