Optic neuritis is one of the symptoms of which those of us who live with multiple sclerosis on a daily basis know can set us apart from others. We are fully, and often painfully, aware that everyone is different. We all experience a different array of symptoms to similarly different…
Columns
Alone with MS? Are You? Really?
Am I alone with MS? I do wonder that, sometimes; at those times of fatigue and frustration when the darkness envelopes you. When you pound the floor having fallen again; when you curse this monster inside you; and when you cry out “Why me?” But, of course, I am not…
Medical cannabis is subject to laws relating to the growing, possession, transport, and use of marijuana. These vary from country to country and, in the United States, from state to state. There are also differences between marijuana for general and recreational use and for the same product for medical use.
Processed foods have been added to the list of “no-no” items that we are not supposed to eat if you, like me, are unfortunate enough to have MS. We were already warned against gluten, salt and various other ingredients in our diet; now it’s processed foods and additives. This is…
People with MS who were involved in a long-term clinical trial are out and about enjoying a full and normal life with no signs of the disease. This follows their recovery from the stem cell transplants involving aggressive chemotherapy, or aHSCT as the procedure is known. Results of the clinical…
When talking about how treatments affect MS life expectancy, it’s wrong to leave out HSCT. Sorry, but it’s just plain wrong. How can anyone write a supposedly authoritative article about MS and life expectancy, talk about modifying how the disease affects people who have it, yet totally ignore potentially the…
Some forms of multiple sclerosis are hereditary after all. After many years of saying that MS is not passed down the generations, new research now says the opposite. Although past studies have suggested that genetic risk factors could increase the risk of developing the disease, up until now, there has been…
MS is a lonely road. No kidding!
Being lonely can be very difficult to define as it is not only the popularly assumed situation of being alone. You can be lonely in a room full of people if you don’t know anyone well enough to speak to them; conversely, you can be happy when alone, in your…
MS does not remit and the out dated term causes many people to delay taking medication, says Dr Patricia Coyle, Founder and Director of Stony Brook’s MS Comprehensive Care Center. Dr. Patricia Coyle. Last week, at the CMSC Annual Meeting in Maryland, during a live-streamed presentation covered by Multiple Sclerosis News Today, she…
Stem cell treatment of MS, which came under the spotlight at last week’s 16th Annual Meeting of the Consortium of Multiple Sclerosis Centers (CMSC) when Dr. Mark Freedman discussed the procedure, is an exciting area within the development of therapies. Dr. Freedman, professor of medicine (neurology) at the…
By the time I went through various tests that led to being diagnosed with multiple sclerosis 14 years ago, epilepsy had already been part of my life since the age of 19. No one mentioned any link. The neurologist’s words still ring in my ears. Having already told me that MS was the diagnosis,…
There has been a great deal of talk and conjecture about the relationship between multiple sclerosis (MS) and vitamin D, often linked to living in an area lacking sunshine. Indeed, when I lived in the United Kingdom, which is notorious — or should be — for seemingly endless gray skies and…
I’m sure I’m not alone when I say that I’m glad to be done with cold and dreary weather. Bring on the sunshine! But my excitement is tempered a bit because, like many people with MS, I find the heat exhausting; it saps my energy and makes it even harder…
Editor’s Note: The opinions expressed in this blog post are not the opinions of Multiple Sclerosis News Today. Our MS Blog series offers patient experts to engage in patient-focused topics that are meant to spark discussion and debate in the Multiple Sclerosis community. The opinions of our bloggers are entirely…
How would you feel about following a calorie-restricted diet, if it might reverse the symptoms of multiple sclerosis and help repair the damage caused by the disease? Scientists are so excited about the findings achieved so far that they are moving to large-scale human trials, and have already taken the unusual…
Run to Win the Race Against MS
Welcome to this, the very first installment of my new regular column for Multiple Sclerosis News Today. Here, you can join the race to beat this disease. Run to win. First, let me introduce myself. I am, shall we say, mature — aged 63; having spent my working life doing what…
There are lots of so-called “MS diets” out there, each one claiming to ease the difficulties of living with MS. This, despite the fact that neurologists don’t often address nutrition when discussing disease management with their patients. Why is diet so rarely discussed by medical practitioners? And why hasn’t there…
MS research shows that adipose-derived mesenchymal stem cell therapy may potentially repair the damage and inflammation seen in the nervous system of patients with MS. During an autoimmune reaction, the myelin sheath coating which is formed around the axons of neurons slowly deteriorates, thus causing physical and cognitive impairments. By…
I just picked up a T-shirt that says, “Eat Well and Travel Often.” It was obviously made just for me. Traveling to new places and seeing new things is something I enjoy tremendously. And enjoying delicious meals makes me feel pampered and cared for. But since I can’t travel to…
Oh sugar, sugar… Diet Coke is my “thing.” I have a love/hate relationship with it – I hate being without it but I know I need to end our affair. I like to think that it helps me stay awake, but in reality it gives me headaches and an upset…
MS Patients: Support Yourself
At various times during my life with MS, I’ve reached out for support from people with experience and knowledge about multiple sclerosis. Although sometimes I wanted to learn more about this unwanted illness that had burst into my life, I was also looking for people with MS to tell me…
Complementing Your MS Care
Although it was over a decade ago, I still vividly remember the first questions I asked my neurologist after learning I had Multiple Sclerosis, “What can I do? Should I change my diet? Exercise more? Or less?” My first instinct was to look for a holistic way to minimize my…
My MS Diagnosis (How I Got Here)
Elissa Holzman is an MS Health Coach who specializes in nutrition and a healthy lifestyle for supporting those with the disease. She was diagnosed with multiple sclerosis in 2005, which led her to pay closer attention to how she treats her body. In her new column for Multiple Sclerosis News…
You probably haven’t heard of Edward Dowd. I hadn’t until I read about him in the latest issue of the National MS Society’s magazine, Momentum. I learned that Ed is a big-time landlord. The company he founded operates about a thousand rental apartments in the San Francisco area.
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