The MS Wire - A Column by Ed Tobias

Florida, MS biomarker, Lemtrada, nasal spray

Diagnosed with MS at age 32 in 1980, Ed has written the “MS Wire” column for Multiple Sclerosis News Today since August 2016. He presents timely information on MS, blended with personal experiences. Before retiring from full-time work in 2012, Tobias spent more than four decades in broadcast and on-line newsrooms as a manager, reporter, and radio news anchor. Heā€™s won several national broadcast awards. As an MS patient communicator, Ed consults with healthcare and social media companies. Heā€™s the author of ā€œWeā€™re Not Drunk, We Have MS: A tool kit for people living with multiple sclerosis.ā€ Ed and his wife split time between the Washington, D.C. suburbs and Floridaā€™s Gulf Coast.

Take Your MS for a Swim

I love the water.Ā  Good thing, since I live at the beach. Being in a swimming pool is also good therapy for my MS. It strengthens my core and arms and, when I do a little pool walking, my legs feel a bit stronger.Ā  But, I’ve never done any…

Doc Leaves MS Patient ‘Horrified’ ā€¦ and Me Too!

The other day I received a very troubling direct message from someone on another Multiple Sclerosis website: “I was diagnosed with MS in 2004 but, foolishly, dismissed it. Other than bad spacisity [spasticity] and a few little episodes, I was relatively symptom free. That is until…

Multiple Sclerosis Fatigue: Puzzling over the Jigsaw

Feeling tired?Ā  No surprise there.Ā  Fatigue is as much a part of living with Multiple Sclerosis as sand is a part of the beach where I live. It’s interesting, then, that neurologists seem to have no good system for measuring levels of MS fatigue or any treatments that are…

An MS Advocate for Those Who Really Need One

You probably haven’t heard of Edward Dowd. I hadn’t until I read about him in the latest issue of the National MS Society’s magazine, Momentum. I learned that Ed is a big-time landlord. The company he founded operates about a thousand rental apartments in the San Francisco area.