I was struck down by sclerosis in 2006 — literally. I was playing tennis and ran to return a drop shot. I never made it, but I did drop myself and rupture my right shoulder. It was so severe that it took two operations to rectify.
The first few years of living under the shadow of possible MS were ameliorated by the intense shoulder pain. The second operation was successful, and just in time for my MS diagnosis in the summer of 2009.
It was incredibly complicated to get a diagnosis. I had to take over, find my own neurologist, and make everything happen.
I’ve often ruminated about writing something like “The Rough Guide for the Disabled.” Instead of handy tips for the traveler, it would offer a glimpse of what the future holds for someone who is disabled.
Sure, everything is on the internet these days. But you have to know what to ask.
I had no idea that help existed. That is, until I got my own MS specialist nurse.
In the U.K., MS specialist nurses offer support and clinical advice, as well as connecting people with needed services, as the MS Trust explains.
I was at the annual general meeting of my local MS Society, tucking into a fish-and-chip lunch. Being of a garrulous nature, I chatted with everyone at my table. One turned out to be the local MS nurse.
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