Pip, Pip, Hooray! Months of Work and Worry Pay Off

Pip, Pip, Hooray! Months of Work and Worry Pay Off

By 2017, over 50,000 people with disabilities in the U.K. had lost their accessible vehicles due to reassessments required by Personal Independence Payment (PIP), a financial assistance program for people with disabilities.

Motability Scheme is a program that provides financial assistance to help people lease an accessible vehicle. My second Motability Scheme vehicle was recently delivered to deal with my now increased disability. The innumerable adaptations cost a significant amount of dosh, so the prospect of losing the vehicle was deeply worrying.

A few years ago, PIP replaced an older financial assistance program called Disability Living Allowance (DLA). I could quote countless horror stories about how complex and awful PIP was back then. Instead of getting political, though, I will discuss how I survived my PIP assessment.

If only I had two Motability vehicles like this, then I’d really have cool Vans! (Photo by Jane Davies)

I was informed about six months ago that I had to apply for PIP. I’ve been dreading this for three years. Dealing with a major chronic disease is chaotic enough, but then we are thrown into a Kafkaesque nightmare of bureaucracy. Disasters are everywhere: insurance claims, transportation, blue badges (accessible parking placards), and on and on.

No wonder I had trouble sleeping.

My first DLA application had been rejected. Instead of funneling all my energy into it, I treated the original application as just another grenade. All grenades need to be treated tentatively and with respect, but this one already had the pin pulled out. I needed to be careful and shove at least a paper clip in it!

I now had to wait nearly a year for a tribunal. This time, I took it seriously and won with a lot of help. People with disabilities often don’t have the financial resources to get through this. Luckily, I’d spent my able-bodied life in relatively high-profile jobs. In the end, I even got paid well!

PIP replaced DLA, and I was in the back of the queue. Due to the year’s delay, I received the DLA award in the last possible month. I think Brexit also may have stretched government resources just a tad.

PIP decided I needed a house visit by an assessor. PIP assessments had a terrible reputation, so I was worried. Stacks of documentation and a report from my neurologist weren’t enough, and I feared the worst.

I decided to do the journalistic thing and record the interview. I went by the government’s book and informed them, only to plunge into a beautiful and bureaucratic Catch-22: I could record it, but only if I had a dual cassette recorder. Anything else would be breaking the rules. And I’d only have five days to find one. Who has that kind of ancient equipment anymore?

If I used anything else, the assessment would be canceled, so I had no choice. Losing my blue badge, my accessible van, and my Access to Work grant would make life impossible.

Fortunately, the PIP assessor had a medical background. She was also sympathetic — and a day early! She screwed up her own timetable and was grateful that I was cool about it.

Of course I was cool about it. It gave me the upper hand. Given the way my body works, it was definitely my left hand.

I just heard that my application was accepted. The downside is that I should have applied for a DLA reassessment a year ago, after my last major relapse. I would’ve been completely covered, but I just couldn’t face the prospect of another assessment!

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Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis.

‘In 1982 John Connor was a stand up, sketch writer & journalist – crap at all three he decided whilst watching a man performing with a paper bag on his head that as nobody else was going to write about stand up he would’. ‘Comics’ Papermac 1990. In 2009 John Connor was diagnosed with MS. In 2017 John Connor still produces/directs his own live 27 year old resident topical comedy show at London’s Comedy Store – ‘The Cutting Edge’. He was also a leading UK Casting Director specialising in comedy – including one of the hippest shows ‘Black Books’ [double BAFTA winning Situation Comedy Award] & for at least a decade the biggest sitcom on British TV ‘My Family’. TV & MS was a step too far – and we know how hard any step can be. Luckily his satirical show was a built in part time job & with the election of Trump is now in the zeitgeist. John now writes “Fall Down Get Up Again” – an irreverent journey with MS.
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‘In 1982 John Connor was a stand up, sketch writer & journalist – crap at all three he decided whilst watching a man performing with a paper bag on his head that as nobody else was going to write about stand up he would’. ‘Comics’ Papermac 1990. In 2009 John Connor was diagnosed with MS. In 2017 John Connor still produces/directs his own live 27 year old resident topical comedy show at London’s Comedy Store – ‘The Cutting Edge’. He was also a leading UK Casting Director specialising in comedy – including one of the hippest shows ‘Black Books’ [double BAFTA winning Situation Comedy Award] & for at least a decade the biggest sitcom on British TV ‘My Family’. TV & MS was a step too far – and we know how hard any step can be. Luckily his satirical show was a built in part time job & with the election of Trump is now in the zeitgeist. John now writes “Fall Down Get Up Again” – an irreverent journey with MS.
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