Keep Taking the Tablets

Four years ago, I went numb from the waist down. After quite a few MRI’s, spinal tap, I was diagnosed with Multiple Sclerosis. I was on Avenox for almost 2 years, i had 1 year of monthly steroids IV, had to stop due to hip pain. Through my physiotherapist i learnt about a MULTIPLE SCLEROSIS HERBAL TREATMENT from R.H.G. (Rich Herbal Gardens) and their success rate with the treatment, I immediately started on the MS treatment. I experienced decline in major symptoms including hand tremor, back pain, difficulty walking, muscle paralysis and weakness, uncomfortable tingling and burning, fatigue, urinary retention,double vision, slurred speech difficulty swallowing, numbness. Visit www.richherbalgardens.com. I knew that a positive attitude is everything and to just believe, I’m in control of my life again….

After taking the second half dose of Ocrevus last April my husband, who has had MS for 50 years, came down with a bad UTI and was hospitalized for 5 days while receiving IV antibiotics. We were told that Ocrevus can cause UTIs. I called in my husband’s urologist for a consult and asked what, if anything, I could give him to help prevent these frequent UTIs. He prescribed Methenamine Hippurate 1GM tablets once daily. The doctor said that he MUST also take one 500mg tablet of Vitamin C with it. My husband has been taking this combo every morning since April and has not had any UTIs since.

2019 was the year of almost constant UTI's for me. Had heaps of high dose keflex over many months but am now on Hiiprex x 2 a day with vitamin C 500 gm plus one 250 gm of keflex at night.

My big whinge is the heat. I do love Sydney, where I live, but the heat and smoke this month have been unbearable. My MS, as it is for many people, is affected by temperature particularly heat. When the A/C gave up on Saturday, so did I. I was an absolute zombie. But at least the UTI's are at bay for the time being thanks to Hipprex.

This comment about Herbal Treatments is just one of a range of spam comments which turn up frequently in a variety of forms in numerous places on the internet (e.g. on various forums and Facebook pages etc). They usually promote assorted herbal and other "treatments" and "cures" which don't have any evidence to back up the claims made.

Note that just enough info is included in the comment to make it sound legitimate e.g. a reference to an MS drug is included (but with the name mis-spelt). Steroids are also mentioned but the dosing regime quoted is not that which is actually used in MS i.e. relapse dependent. The hip pain cited ties in with avascular necrosis, which can be a side effect of ongoing steroid use. There's just enough info to make it sound like the person posting the comment is a real PwMS, but rest assured they are not - these comments are posted by people who are being paid to sit on a computer and prowl the internet for places to upload comments using false names created to suit the target languages/cultures.

Basically, the glossy looking websites which these spam comments lead people to are scams designed to tempt desperate people to part with money. It's not worth "biting" or asking questions as you won't get further information - they just want you to take their bait and buy their "products" - which probably won't ever turn up for you to try. It's easy to set up these websites and make them look professional, but as with all of these "miracle" treatments, it's caveat emptor. People with incurable chronic diseases are just an easy "target market" for unscrupulous rip-off merchants.

What people should also be very concerned about is that some of these sites are fronts for malware and hackers - remember the advice that you endlessly hear about not clicking on links in e-mails - well the same advice applies for these "miracle treatment/cure" comments.

(And "No", I've not been caught out by such scams, but know of people who are more trusting who have been ripped off)

Anyone taking a DMT, especially Ocrevus & having UTI's should be tested for BK virus activation.

I use to had an UTI twice a year, then one lady with MS advised me to use D-Mannose, and I haven't had a UTI since then (over a year). I take 2 times a day 1g of D-Mannose. In 95% of cases, UTIs are caused by E. coli bacteria and, according to studies D-Mannose is even more effective in preventing UTIs than ATBs. And unlike ATBs, D-Mannose has absolutely no side effects. In addition, ATBs lose their effect over time.
Highly reccomend to try it.