Turn It Off, Then On Again

Turn It Off, Then On Again
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There’s always something!

As a columnist, that comes in handy, as then I don’t have to think too much.

Stop snickering at the back for thinking that I never think. How very dare you?

If any of my fellow Brits are reading this, yes, I’m liberally nicking comedy catchphrases. Why not? (You’d really have to be a deep aficionado of alternative comedy to get that one!)

I’ve spent a lifetime accruing them, and it cheers me up to use them. You lucky people!

OK, enough.

Yesterday, good news was tempered by bad news. Is there such a thing as neutral karma?

It had been a good day. My physiotherapist had called last week when things were still pretty bad. She returned to see if my recent exercise program already needed changing.

She was pleased to find that I had pretty much returned to the baseline she’d observed about a month ago. Hurrah! I now have official support to use my Molift, and at least I can do a standing transfer and partially support myself. This is all very exciting.

”Look at me, Ma, I’m on top of the world!” (Photo by Jane Davies)

In the past few days, I’ve recovered a lot. But there’s obviously still a bit of the ol’ relapsing-remitting MS in this bowwow yet.

Recently, I started writing my column the day before my Wednesday deadline. Previous to “that which can’t be named,” I was working every Tuesday. Our world was struck down, and MS floored me. I was diagnosed with the disease in 2009, so I seem to be some sort of MS disaster vane!

Now, I have carers coming at 11 a.m., five days a week. So, my mornings are gone. Yes, I could have them in earlier, but I’ve spent my entire working life endeavoring to sleep in. I’m not going to change if I’m actually paying for it. Which at least proves I’m no sadomasochist!

So why did Tuesday become a bad day?

The electronic control thang (I believe the official name in the U.K. is “remote”) on my power wheelchair went so much up the swanny it turned into a dead duck! Too much?

As my wife wryly put it, “You’ve got some mobility back, and then it was taken away!” Everyone’s a comedian — at least in our house.

I spent hours trying to fix the thing, endlessly exploring the internet to discover what the flashing error codes actually meant. All of it seems to be so secretive that I’d need to work at GHCQ to break them!

I really should have spent those hours writing.

Yesterday, a repairman really asked me over the phone if I’d turned it off, then on again. He couldn’t work out what the codes were, either.

This morning, another turned up and said the batteries were dead, even though they show a full charge.

Confused — moi? (That one’s me own write-phrase!)

***

Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, BioNews, and are intended to spark discussion about issues pertaining to multiple sclerosis.

‘In 1982 John Connor was a stand up, sketch writer & journalist – crap at all three he decided whilst watching a man performing with a paper bag on his head that as nobody else was going to write about stand up he would’. ‘Comics’ Papermac 1990. In 2009 John Connor was diagnosed with MS. In 2017 John Connor still produces/directs his own live 27 year old resident topical comedy show at London’s Comedy Store – ‘The Cutting Edge’. He was also a leading UK Casting Director specialising in comedy – including one of the hippest shows ‘Black Books’ [double BAFTA winning Situation Comedy Award] & for at least a decade the biggest sitcom on British TV ‘My Family’. TV & MS was a step too far – and we know how hard any step can be. Luckily his satirical show was a built in part time job & with the election of Trump is now in the zeitgeist. John now writes “Fall Down Get Up Again” – an irreverent journey with MS.
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‘In 1982 John Connor was a stand up, sketch writer & journalist – crap at all three he decided whilst watching a man performing with a paper bag on his head that as nobody else was going to write about stand up he would’. ‘Comics’ Papermac 1990. In 2009 John Connor was diagnosed with MS. In 2017 John Connor still produces/directs his own live 27 year old resident topical comedy show at London’s Comedy Store – ‘The Cutting Edge’. He was also a leading UK Casting Director specialising in comedy – including one of the hippest shows ‘Black Books’ [double BAFTA winning Situation Comedy Award] & for at least a decade the biggest sitcom on British TV ‘My Family’. TV & MS was a step too far – and we know how hard any step can be. Luckily his satirical show was a built in part time job & with the election of Trump is now in the zeitgeist. John now writes “Fall Down Get Up Again” – an irreverent journey with MS.

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