Columns Fall Down, Get Up Again- a Column by John Connor Down and Out in London Town Down and Out in London Town by John Connor | July 16, 2021 Share this article: Share article via email Copy article link Last month, my brother-in-law finally managed to return to Thailand and his lovely wife. He’d been trapped in the U.K. for over a year due to COVID-19. Thailand has quite rightly imposed a Kafkaesque set of rules about entering the country on an extended immigrant visa. Luckily, we had a room to spare in our old office in the attic. My brother-in-law is quiet yet intensely sharp-witted. Not one prone to effusion, I was surprised in his last few days here that he complimented me on handling MS “… with equanimity, grace and good humor. I doubt I could do that!” I certainly didn’t feel that way last week, and it has nothing to do with England failing to win in the final of the European Championship. Though that would have cheered me up! It was the realization that without my family, I’d be helpless. Sure, I could live on my own at home, but only with a constant stream of carers. My morning (well, 11 a.m.) carers are incredibly friendly, but I would feel as trapped as we all have during the recent shenanigans imposed on us. Why did these morbid thoughts impinge on me? Maybe it was because I had to see a consultant at my local hospital at 9:45 a.m. on Friday. My wife, Jane, always accompanies me, not just as my carer but as someone else who can take everything in and ask pertinent questions. We’d been sent by my general practitioner, who was worried that my lymphedema was stopping the circulation to my feet. Thankfully, I still had a pulse down there. Recommended Reading September 7, 2018 Columns by John Connor Lymphedema: A Growing Problem? The consultant’s only suggestion was that I should keep my feet up at all times. I pointed out that this would take away my last bit of freedom: the ability to roam around at will in my power wheelchair. My plea was ignored. I’ve decided I’ll risk the circulation issues before MS overwhelms me! Sure, I’ve only got the lower floor to play in, but even that’s restricted, with limited access to the kitchen. My wife had to use it as her office while her brother was here. I’m hardly about to limit myself just as I get more acreage. Now that I’m fully vaccinated, I can also go outside more to eat or visit the occasional pub. Well, this column hasn’t been at all humorous. Sorry, folks! Becoming inert the afternoon after my hospital visit didn’t help my mood. I had to be hoisted into bed at 4 p.m. Would this be my new life? Thankfully not. I fully recovered by the next day. I’ll cheer up this week. It’s finally turning to summer in London, though much of the city flash flooded with 3 inches of rain in 90 minutes this Monday. Oh, the joys of our new climate. I didn’t notice here at home in very, very South London, as I’m one of the “fools” who lives on a hill! I won’t be incapacitated by the onset of heat, either, as I’ll now be able to cool off in my pool. We all get down. It’s getting back up again that’s the trick. *** Note:Ā Multiple Sclerosis News TodayĀ is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those ofĀ Multiple Sclerosis News TodayĀ or its parent company, BioNews, and are intended to spark discussion about issues pertaining to multiple sclerosis. Print This Page About the Author John Connor In the ā80s, John Connor created the first regular column about the burgeoning London stand-up scene. In 1990 he wrote a book about its effect on the Edinburgh Festival: āComics: A Decade of Comedy at the Assembly Rooms.ā That year he also devised and ran a live topical stand-up team show at The London Comedy Store, The Edge (It was destroyed in 2020!). In 2009 John was diagnosed with relapsing-remitting MS, which cut short his main job as a TV casting director for āBlack Books,ā āMy Family,ā et al. Now, John writes āFall Down Get Up Again,ā an irreverent journey with MS. Tags disability, lymphedema, power wheelchair Comments Jenny Orlov Hello John Have you tried raising your legs at a ninety degree angle to your trunk while lying in a supine position and resting your legs against a wall? You could do this for about ten minutes a day. Also ask your wife to massage your legs with the massage direction towards the trunk (not the feet). In this way lymph will be directed against gravity and could possibly help a bit? I am not sure if you have tried the above. Best Wishes. Jenny Reply John Connor Hi Jenny nice idea. But if I could do something like that I'd be back to playing wheelchair tennis! It would need an ambulance call out to pick me up again.... Reply Abbey Turner-Watson As a regular reader of your column, I understand, empathise and (almost always) agree with you. Only because of way it was listed, I had started reading today's MS email with the Positive Toxicity story, finished reading, then forgot it - negativity has no part in my life.. 'Moving on', I was SO happy that your REALITY CHECK Fall Down Get Up Again was still there to be enjoyed, laughed at and maybe even learned from(?).. Thanks, John, having MS is cruel and unnecessary but, because of people like you, it kind of, almost makes having it worthwhile. Maybe! Keep On Keeping On, John - you're doing great. Wishing you the very best of everything, Abbey x Reply John Connor Ta v. much Abbey. Your comment also did cheer me up. x Reply Leave a comment Fill in the required fields to post. Your email address will not be published. Your Name Your Email Your Comment Post Comment
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