I’ve Nothing Awful to Write About My MS This Week
A teacher’s favorite devilish ruse was telling us to write about being in an enclosed white space. They all did it. In their version of hell, it probably snowed a lot! Newbies groaned while we old lags were simply doing our time.
I had so many detentions that I basically had a novel going and would simply pick up where my last splurge ended. Nothing original mind you, probably my precocious take on Orwell’s “1984.” Not that most of my teachers had even heard of it, let alone read it.
So, I’m well-versed in having nothing to write about.
As I sit here with my bedroom walls closing in.
OK, OK, my desk is downstairs at the front of our house. It’s located in a lovely bay window, and I get to sit at it and watch the world saunter by. Usually a particular urban fox will lollop across my front garden at 5 p.m. Not today, though. That reminds me, I have to take my concoction of drugs for my numerous comorbidities. Back in a bit.
Thankfully, there’s even a new comorbidity to report. See, an autoimmune disease will never let you down! It seems I have a touch of vitiligo. It was spotted and diagnosed by my wife, Jane. Why bother a doctor when you have the power of the internet? It also might be triggered by trigeminal neuralgia. As I have both, come on in my bodies, lovely!
Thankfully, vitiligo doesn’t seem to be particularly serious, and as it’s only on the sides of my neck, Dracula might find it a trifle off-putting.
Onto some good news: I’ve finally got round to having a hoist fitted so I can actually get into the pool in our back garden. I know that having a pool is de rigueur in many U.S. states, but here in the U.K., it’s somewhat unusual. We didn’t install it, it was here when we moved in. Honest, guv!
Pools don’t add any value to a house, either, as the cost of maintaining them is steep. Since the effects of MS began to take hold, these costs increased significantly, as I could no longer be our pool boy. Synchronistically, a close school friend of my son ended up working for a pool company and is now ours. Handy.
Maybe it was because he spent so much time in our pool when he was a kid. It was a great boon for us and our large extended family.
Anyway, the cost of the hoist itself is beyond staggering (something I used to be good at). I put off buying it, wondering if I’d be in any state to actually use it. I haven’t so far, as the weather this week has been terrible.
So, when I finally take the plunge — I’ll report if I surface!
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