Columns Fall Down, Get Up Again- a Column by John Connor No Crisis, No Column? OK, Fine: Everything Takes So Long With MS No Crisis, No Column? OK, Fine: Everything Takes So Long With MS by John Connor | May 13, 2022 Share this article: Share article via email Copy article link This weekās been a relief. I havenāt had to dash to casualty or fallen over in my chair. Nor have I stirred up a ruckus with the health powers that be or bumped into a fellow MSer with an interesting tale. My knockabout personality undoubtedly has much to do with this. Now that I have to get about in a powered chair, I keep forgetting just how powerful it is. In the early days I even ended up tearing my brand-new shower apart. Also, thereās no wing mirrors, so I’m oblivious to anything behind me. If I canāt see it, it aināt there. Thatās ego for you. Before you write in, albeit in a drove of one, that I should have some mirrors fitted, I’ve thought of that. But thereās no point, as Iād not only tear them off but do even more damage to the lintels in my house ā even if I remembered to fold ’em in. So there. Everything takes me so damn long ā well, not quite everything. Writing doesnāt. Except I can now only type with one hand and one arm. Fortunately for me, they happen to be attached to each other. Recommended Reading February 15, 2022 News by Lindsey Shapiro, PhD Neurodynamic Therapy Found to Reduce Pain, Improve Dexterity in Trial I was only ever a “pecker” ā no touch-typing for me. I presume most people are the same these days. Pre-computer ubiquity, few could touch-type. Thankfully, university educations allowed some of us to go off-piste. And yes, that is piste! Then again, I always contended that this was a happy harmony, as it meant I could type about as fast as I could think. Now, between age and MS (it turns out you do need to cook for me now that Iām 64, and that has nothing to do with me being a bloke), the same is true as I type one-handed. And forget artificial intelligence verbal typing systems. They won’t be any good until they reach the level of Skynet, and then they’ll start exterminating us anyway. See? You just canāt win. My trouble is mainly dexterity. It can take me hours to accomplish what the able-bodied can do in minutes, nay, seconds. Putting away my innumerable medical supplies ā the drugs, catheters, and various supplements that arrive like Iām a sort of port ā is usually a whole afternoonās work. Yes, I can ask for help, but there has to be some self-reliance, if only for my family’s and my own sanity. I rely on three sticks, a Swiss Army knife, and a handheld vacuum cleaner as my new tools of the disabled trade. The tools of my disabled trade. (Photo by John Connor) Walking stick: This acts as a great floor cleaner if I push a baby wipe around and will reach objects that Iād otherwise have no hope of getting at. There is also the not-small matter of it having the strength to pick up heavy objects, as long as the handle has something to latch on to. Soft, blue, rubber-coated pincers: This tool can pick up just about anything from the floor. About the only item that confounds this beauty is the humble paper clip, which turns into an infernal creation. There is still a solution. Handheld vacuum cleaner: My first one died recently, but it proved so useful that I bought another really strong one. It eats those infernal paper clips. And it also cleans my wooden floor. Black claw rubbish collector: Itās amazing what this can deal with ā everything but the smallest item. Drop a pill and the blue claw has to be deployed, but this tool replaces everything else my hand can no longer reach. Itās my favorite. Swiss Army knife: I’ve had this for years. When it was confiscated at the airport (in my able-bodied days, no less), I paid to have it shipped back to me. That was in the far-off days before Iād adjusted to the new anti-terror paradigm. Now, besides it being an admittedly over-the-top letter opener, it attacks tape-strewn packaging with ease and still allows me to cut my own fingernails. Somehow. The scissor blades havenāt dulled a jot. Iām not exaggerating about the yawning gap of time these last vestiges of self-sufficiency take. I spilled nearly a whole packet of pads on the floor yesterday and resigned myself to a slow and agonizing retrieval process. I returned to my desk to continue this column. My wife walked in and stowed them away within seconds. As Kurt Vonnegut would aptly put it, “So it goes.” Note:Ā Multiple Sclerosis News TodayĀ is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those ofĀ Multiple Sclerosis News TodayĀ or its parent company, BioNews, and are intended to spark discussion about issues pertaining to multiple sclerosis. Print This Page About the Author John Connor In the ā80s, John Connor created the first regular column about the burgeoning London stand-up scene. In 1990 he wrote a book about its effect on the Edinburgh Festival: āComics: A Decade of Comedy at the Assembly Rooms.ā That year he also devised and ran a live topical stand-up team show at The London Comedy Store, The Edge (It was destroyed in 2020!). In 2009 John was diagnosed with relapsing-remitting MS, which cut short his main job as a TV casting director for āBlack Books,ā āMy Family,ā et al. Now, John writes āFall Down Get Up Again,ā an irreverent journey with MS. Tags independence, power wheelchair, writing Comments Mark ...even my dad, who, when I was first diagnosed in 2009 said 'it's all psychological' said the other day to me 'everything is hard work for you now isn't it?'. 'Yes dad, everything takes ages now and is really hard work' VERY FRUSTRATING!!! Reply John Connor Yup. Luckily one of my past trades is writing. Many bang on about it being beyond them. Physically - even one handed - it's dead easy. As long as MS hasn't effected your intellect. And those forgotten words r only a google away. Reply Leave a comment Fill in the required fields to post. Your email address will not be published. Your Name Your Email Your Comment Post Comment