You’re chronically ill, super anxious, crazy shy, unconfident, and have no interviewing skills. To some, that recipe may sound like a terrible concoction to start a podcast. However, for me, I knew it was something I had to do. I had to share people’s stories. I had to raise awareness of different conditions.
On May 30, 2019 — World MS Day — we launched our podcast. It’s been a crazy whirlwind of a year, and I’m so proud that my podcast has blossomed into a platform that raises awareness of different illnesses and makes the invisible visible. It’s not what I expected to do after a multiple sclerosis diagnosis in my 20s!
My previous experience with podcasts was listening to business podcasts in a van while driving up and down the country. My husband was a wedding singer, and every weekend we were at one event or another. Often we were at multiple functions in a single weekend at completely different locations.
I remember listening to an episode of a podcast called “Entrepreneur on Fire,” a business podcast we both enjoyed. At the end of the show, the guest would say what their favorite book was and some other useful tidbits. I always frantically pulled out my phone at this point to write in my notes what the books were so I could read them later. It saved me hours of searching for my next book.
I also loved the lightheartedness of the podcast. The host always focused on what “lights up the guest” rather than concentrating on what was super hard.
I thought: “How cool would it be if a chronic illness podcast existed that acknowledged hardships, but focused on the right side of what someone has managed to do since their diagnosis, as well as changing how people think about their illness by focusing on the positive side of the story and what they learned?”
When I get my heart set on an idea, it’s the only thing I can see. Questions followed, flying around in my head 24/7. What should I call this podcast? Whom would I interview? How do I even start a podcast?
I was so excited.
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