If You Don’t Know Me, Please Don’t Judge Me

If You Don’t Know Me, Please Don’t Judge Me

Patiently Awakened

Those of us with “invisible illnesses” are no strangers to this subject. Most of us have experienced situations in which we were judged, insulted and scorned based on people’s opinions and perceptions. We are told that we don’t look sick and we are placed in situations where we feel as if we have to justify or explain our illness. As a result, we are often compelled to hide or disguise our maladies, if that is possible.

Societal biases are obvious and unfortunately too easily accepted. People have irrational notions of what illness and disability encompasses. I wrote another article similar to this subject and it never gets old or banal. And there are many others who write about their experiences on this topic.

At this juncture of my illness, many of my MS symptoms are invisible. My gait appears normal and unless I announce it, my pain is invisible. No one can see the lesions on my spine or in my brain, or how my heart functions and feels. Cognitively, with the exception of “brain fog” moments, I am functioning well.

There is no intended concealment, I’ve just gotten to a point where my pain has become a normal part of my existence and complaining about my ailments is not beneficial to my physical, emotional and mental well-being. I have resolved that these symptoms are not going away, so I had to find a way to manage and co-exist with them. They cannot prevent me from living. This is the tragic reality for many of us, and so it is unfair to further subject those of us with invisible illnesses to further condemnation.

Writing, speaking, advocating and community activism takes a lot of time and effort. It is what I have been called to do. There are also some days when getting out of bed is a venture in itself. MS fatigue is debilitating and it comes without warning. If I received a stipend for every time someone asked why am I tired, maybe I would not mind answering the question. I’m being facetious but I’m sure you understand what I mean.

A difficult feat

Explaining an illness to anyone who does not know, probably are uninterested, or who has already formed their own opinions is a difficult feat. Dealing with these people is exhausting in itself. Thankfully, my family and true friends know my struggle and even if they are not well versed in the language of MS and heart disease, they know that I labor every day. They empathize and they don’t push me. My tenacity is respected.

For the most part I have learned to politely dismiss the ignorance of others who hurl indignities or accusations and have discussions about something they have no knowledge of. I also have moments where there are verbal exchanges. Some people undoubtedly need to be enlightened. Ableism permeates our culture and the onus is on each of us to combat and dispel this societal ill.

I enjoy walking and exercising and I try to do it as much as I can. Walking is one of my favorite activities — I don’t take the use of my legs for granted. I recall a day where I was having a difficult time. I drove to the mall and parked in a handicapped space and was immediately approached. The obnoxious man yelled that I should not park there and he said that I looked fine to him. I asked the man if he was a police officer or if he was my doctor. Before he could utter a word I told him to mind his business and that I was going to report him for harassment! He drove away.

Unfortunately I can recall several other similar situations, not to mention the incongruous stares I often receive. I am constantly asking myself if I would react this way if I were not ill. My answer is absolutely not. Admittedly, I have been guilty of saying or thinking that someone doesn’t look sick. There were times when I actually thought it was a compliment. I have become much more conscious of saying things like this. There would never be a time where I would confront someone who parked in a handicapped parking space.

The plot of a story cannot be determined by looking at the cover. The book must be read in its entirety. The message here is to reserve your judgment. If you are not walking in our shoes, we are not interested in what you think or assume. Intelligent people don’t make assumptions. They learn and teach.

“Those that know, do. Those that understand, teach.” (Aristotle)

Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis.

Teresa I. Wright-Johnson is a married Multiple Sclerosis Warrior and Congenital Heart Disease Survivor. She was born with a heart murmur and an Aortic Valve Defect. Teresa has endured multiple open heart surgeries and cardiac procedures. She was diagnosed with MS in November of 2014 and is under the care of an esteemed MS Specialist. Teresa knows there is a calling on her life and she fully embraces that. Teresa uses her illnesses as opportunities to further rely on her faith, walk in her truth, raise awareness and educate others. She believes that she is purposely on purpose. Teresa offers a solid background in Criminal Justice and Social Services. A graduate of Rutgers University in New Brunswick, NJ and a retired Sr. Parole Officer for the State of New Jersey, Teresa uses her life to empower and inspire others. She embodies community service, is a member of Zeta Phi Beta Sorority, Inc and is active with several other organizations. Teresa aspires to be a light that shines in dark places. Teresa is an author, poet, inspirational speaker and a community activist. She enjoys writing, reading, listening to music and spending time with her family and friends. Teresa acknowledges the unwavering love of her wonderful parents throughout her life and her supportive and loving husband Marvin who is beside her through every trial and triumph.
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Teresa I. Wright-Johnson is a married Multiple Sclerosis Warrior and Congenital Heart Disease Survivor. She was born with a heart murmur and an Aortic Valve Defect. Teresa has endured multiple open heart surgeries and cardiac procedures. She was diagnosed with MS in November of 2014 and is under the care of an esteemed MS Specialist. Teresa knows there is a calling on her life and she fully embraces that. Teresa uses her illnesses as opportunities to further rely on her faith, walk in her truth, raise awareness and educate others. She believes that she is purposely on purpose. Teresa offers a solid background in Criminal Justice and Social Services. A graduate of Rutgers University in New Brunswick, NJ and a retired Sr. Parole Officer for the State of New Jersey, Teresa uses her life to empower and inspire others. She embodies community service, is a member of Zeta Phi Beta Sorority, Inc and is active with several other organizations. Teresa aspires to be a light that shines in dark places. Teresa is an author, poet, inspirational speaker and a community activist. She enjoys writing, reading, listening to music and spending time with her family and friends. Teresa acknowledges the unwavering love of her wonderful parents throughout her life and her supportive and loving husband Marvin who is beside her through every trial and triumph.

3 comments

  1. Cheryl Feinberg says:

    I am an MS warrior and know of what you speak. At this point, I need too use a cane and have difficulty walking. I was at a very large conference last year where security lines sometimes took an hour or more to get through. Guards allowed me to enter the convention center without having to stand in line and one very obnoxious woman said that she would bring a cane the following year so that she also could skip the security lines. I was angry at myself for not saying something to her.I have made a decision that if a situation like that again, arises, I will tell the offender that I would gladly give them my cane if they would also take my MS.

    • Teresa Wright-Johnson says:

      Hi Cheryl,

      Thanks for your response. People can be very inconsiderate and rude at times. Ignorance is not bliss. I remind myself that life has a way of teaching others what we cannot. There are times when I just say keep living. Continue to do all that you can to live in peace and purpose. We are warriors! Blessings to you.

  2. Sheri says:

    I have had so Many people comment on “Laziness”. I know that all of you with the Fatigue can relate to this one!!! I have grown really “Deaf” to a lot of comments, you can’t argue with “stupid”!!!! Next time you encounter someone in that bracket, just smile and shake your head!! You will never win an arguement with all of the “Stupids” out there!!!! Lol

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