April 13, 2023 Columns by Benjamin Hofmeister Multiple sclerosis might be the ‘uncanny valley’ of diseases I recall a conversation I had with an acquaintance soon after my diagnosis. I hadn’t progressed to a wheelchair yet, but my limp was noticeable, and he’d heard talk from mutual friends. “What is it that you have?” he asked. “Multiple sclerosis.” A moment of wide-eyed silence…
December 17, 2020 Columns by Jennifer (Jenn) Powell What Do You See When You See Me? If I were using a wheelchair, would you question why I use a handicapped placard? Perhaps some (or all) of the condemnation I now receive would diminish. Maybe the notes left on my windshield would not be written. Perchance, it might temper some of the ugly comments spoken to my…
May 14, 2020 Columns by Tamara Sellman Need to Know: How Calling Cards Help to Explain Invisible Illness Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post “Is your MS Invisible or is it obvious?” published on Feb. 15,…
October 31, 2017 Columns by Teresa Wright-Johnson Invisible Illness Awareness: The Struggle Continues Last week was Invisible Illness Awareness Week, which ran from Oct 14-20. Awareness weeks are designed to bring attention to certain conditions, issues and situations. They are directed at creating consciousness and disseminating information. Sadly, invisible illness is a subject that needs much more attention. Those of…
July 18, 2017 Columns by Teresa Wright-Johnson The Emotional Roller Coaster of Managing Emotions with MS I am an emotional, sensitive woman. I like to believe that I have a warm heart in a very cold world. Isn’t this what the world needs? Love, warmth, acceptance and transparency? Recently I find that my emotions change within a millisecond. So, instead of being sensitive, I…
May 30, 2017 Columns by Patricia Silva, PhD ‘Disabled? You Seem Perfectly Fine to Me!’ The casual remark, “You seem perfectly fine to me!” bothers me (and others) because eligibility for Social Security Disability benefits requires proving we are not fine. In fact, we must prove that we are disabled, which is no small burden when we “seem perfectly fine.” ‘Looking’ disabled An acquaintance of mine…
December 5, 2016 Columns by Teresa Wright-Johnson If You Don’t Know Me, Please Don’t Judge Me Those of us with “invisible illnesses” are no strangers to this subject. Most of us have experienced situations in which we were judged, insulted and scorned based on people’s opinions and perceptions. We are told that we don’t look sick and we are placed in situations where we feel…
November 2, 2016 Columns by Teresa Wright-Johnson MS and the Art of Pretending – Beyond the Smile This photo was taken more than a year ago and I remember it as if it were yesterday. There was so much going on behind the smile captured in this picture. Smoky Robinson serenaded about “the tears of a clown.” I definitely played the role of the clown that…
