I imagine MS as the uninvited guest permanently at my dinner table

Ronald Harris shows off his new power wheelchair. (Photos courtesy of Ronald Harris)

Day 17 of 31

This is Ronald Harris’ story:

Harris is seen working from home, using a desk that accommodates his power chair.

My journey with multiple sclerosis (MS) began with an unexpected diagnosis in March 2024 of primary progressive MS. The surprising news landed like a ton of bricks and I began a steep learning curve to understand my new copilot. The following months were filled with numerous medical appointments while navigating the many emotions of my changing life.

I had spent two decades masking symptoms of gait imbalance, muscle weakness, and mental/physical fatigue. The diagnosis amplified the emotional toll of these symptoms as it now had an ominous name.

The emotional toll of being differently abled and living with a chronic illness like MS challenged my self-identity. My weekly therapy sessions helped me process the anger, sadness, grief, and loss MS brought to my life.

As the emotions lessened and I began accepting my new reality, I reframed my diagnosis and imagined MS as a permanent dinner guest at my table. MS is the company I’m not happy to see, though I know my guest is always there and I try to consistently offer the Southern hospitality with which I was raised.

Harris hangs out with a penguin while grocery shopping.

Adapting has been a powerful tool as I navigate MS. I’ve had to learn to modify my activities, prioritize my energy, and find new ways to do the things I love. My hobbies of painting, reading, and cooking require new approaches, which can be frustrating at times, though I adapt to find the joy. My caregiver acts as my hands when cooking, and I now do more audiobooks. It hasn’t always been easy, but it has made me more resilient and resourceful.

There are also moments of hope, resilience, and gratitude for the support of my loved ones. My family, friends, and healthcare providers have been there for me every step of the way, offering encouragement, understanding, and practical assistance. I’ve also gained a cadre of MS warriors like the Speak MS group.

To anyone else who is on their own MS journey, I want to say this: You are not alone. There are many resources and support systems available to help you navigate the challenges of MS. Don’t give up hope, and remember that you are stronger than you think.

In recognition of Multiple Sclerosis Awareness Month in March, the MS Community Spotlight campaign features a series of stories highlighting the real-life experiences of people affected by MS, written in their own words. Follow us on Facebook, Instagram, X, and Pinterest for more stories like this, using the hashtag #MSSpotlight, or read the full series.