living with MS

Faith Agauas takes a stroll by the waterfront. (Photos courtesy of Faith Agauas) Day 11 of 31 This is Faith Agauas’ story: My 70 years of life have been an amazing journey. I grew up in Detroit in a neighborhood filled with love and protection, music from Motown, and…

Brittany Quiroz poses in a self-promotion photo for AHotMS.com. (Photos courtesy of Brittany Quiroz) Day 10 of 31 This is Brittany Quiroz’s story: It’s uncommon for your brain to willingly transition utter disaster into a greater purpose or even God’s calling for you. But for me, my diagnosis…

Tori Henderson receives her monthly infusion at an appointment. (Photos courtesy of Tori Henderson) Day 9 of 31 This is Tori Henderson’s story: Henderson, left, poses with her daughter, Kerriyah, for her birthday at Disney World. Thanksgiving 2017 will forever hold a special place in my memories. I…

Amanda Olivier, left, and Sagirah Ahmed Norris pose with their medals at the Athletes with Disabilities Half Marathon in The Woodlands, Texas, in 2023. (Photos courtesy of Amanda Olivier and Sagirah Ahmed Norris) Day 8 of 31 This is Amanda Olivier and Sagirah Ahmed Norris’ story: AO: I awoke…

The U.S. military loves abbreviations and acronyms. So many of these are learned during a soldier’s first year that, to civilians, a conversation between service members might sound like a foreign language. It can be amusing, but the intention of this method of condensing words is not to confuse. It’s…

Antonio Perez walks with his cane in the summer of 2022, saying his illness wasn’t that bad during that time. (Photos courtesy of Antonio Perez) Day 7 of 31 This is Antonio Perez’s story: Perez enjoys a glass of red wine. Hello, my name is Antonio Perez and…

Sam Roman, MD, travels to Montana to conduct home visits for patients enrolled in the TREAT-MS clinical trial. (Photos courtesy of Sam Roman) Day 6 of 31 This is Sam Roman’s story: It was during a particularly stressful period of medical school in 2015 when I had my first…

Julie Stamm was diagnosed with multiple sclerosis in 2007. (Courtesy of Colorado Parent magazine) Day 5 of 31 This is Julie Stamm’s (@iamstamm) story: I was officially diagnosed with multiple sclerosis (MS) on Jan. 8, 2007. While I can date my symptoms back to six years before that,…

Bethany Carman runs her first 10K at the Mornington Running Festival in Australia. (Photos courtesy of Bethany Carman) Day 4 of 31 This is Bethany Carman’s story: Hello, I’m Beth. I’m 30 years old, based in Melbourne, Australia, and I was diagnosed with relapsing-remitting multiple sclerosis (MS)…

Sarah Doherty is shown in a selfie. (Photos courtesy of Sarah Doherty) Day 3 of 31 This is Sarah Doherty’s story: I never in a million years expected to have to deal with a chronic health diagnosis at age 28. What started as the loss of vision in…

Alexis Mendiola is shown during a treatment infusion in March 2023. (Photos courtesy of Alexis Mendiola) Day 2 of 31 This is Alexis Mendiola’s story: March 2021 will forever be bittersweet to me. Though my heart sank when my neurologist said those words we all hate to hear, I…

Multiple sclerosis (MS), a neurodegenerative disease thought to affect more than 1.8 million people globally, can impact many aspects of daily life. So for Multiple Sclerosis Awareness Month, observed each March, this year’s focus is on the MS experience and the importance of social connections. Multiple Sclerosis…

Getrude Kamuyu, in her cap and gown, stands with her mother, Grace Kamuyu. (Photos courtesy of Getrude Kamuyu) Day 1 of 31 This is Getrude Kamuyu’s story: At Easter in 2022, I developed sudden pain in my left eye. Then blindness started to creep in, moving in quickly. Three…

There are several good reasons why you won’t see me in television commercials for multiple sclerosis (MS) treatments anytime soon. For one, I’m not much of an actor, despite my brief moment of high school fame. For another, even though I wouldn’t go so far as to say that…

We’ve all heard comments from people who aren’t educated about multiple sclerosis (MS). Some that I’ve heard include “My friend had that and is fine now,” “Eating better will fix you,” and “Try a parasite cleanse.” I have to chuckle at these statements.  With March not far…

Both balance and endurance training can help to ease fatigue in people with multiple sclerosis (MS) — but if problems with balance are a concern, then balance training would be the best choice as it targets both fatigue and balance, a small study found. The study, “Fatigue may…

Just three years before I was diagnosed with multiple sclerosis (MS), I was on what was to be my last overseas tour with the U.S. Army. One day while dozing during a lull in a mission, I was awakened by the sensation of someone standing over me.

Taking melatonin before bedtime may help balance and muscle strength in people living with multiple sclerosis (MS), according to a study from Tunisia. Those benefits are in addition to making for more restful sleep. While the findings come from a small number of patients, they suggest melatonin supplements may…

Nabiximols, a cannabis-based oral spray sold as Sativex, was reported to considerably ease spasticity — unusual muscle tightness or stiffness — in about two-thirds of the multiple sclerosis (MS) patients using it for three months in a real-world study in Germany. For most patients, the treatment also…

COMPASS, a digital tool that provides support for managing the daily challenges of living with a long-term health condition such as multiple sclerosis (MS), significantly reduces psychological distress and improves mental health in these patients, data from a randomized clinical trial show. The intervention consists of multiple online modules…

An intermittent fasting (IF) diet may lead to immune and metabolic alterations that ease multiple sclerosis (MS) symptoms and improve quality of life, a recent review of published studies suggests. While evidence from these few small clinical trials indicates an IF diet…

Last month, I told you that while I’m not a psychologist, I’m fascinated by the subject. I should probably make a list of things I don’t do but still find interesting. One of those professions we can add to the list is historian. I enjoy reading and learning about…

As those of us with multiple sclerosis (MS) know, every so often a call comes or a letter arrives telling us we have a date with an extraordinary friend: the magnetic resonance imaging (MRI) scanner. For me, it seems that time has arrived again. Just a few days…

Under a new agreement, Biogen is transferring ownership of certain digital health solutions — including two existing mobile applications, or apps, offering lifestyle support to people with multiple sclerosis (MS) — to Aptar Digital Health. The collaboration calls for Aptar, part of AptarGroup, to handle product design…

Valentine’s Day is less than a week away. If you haven’t gotten anything for your significant other yet, let me add to the holiday’s commercialization by reminding you that time is running out. It really wasn’t my foremost intention to spur anyone into panicked action. This column isn’t even about…

Summer planning has started for my family, which means trying to arrange trips and time together. Before I was diagnosed with multiple sclerosis (MS), we could simply book an excursion that looked enjoyable. But now, thanks to my mobility issues, planning is slightly tricker. In the…

Pelvic floor exercises, which strengthen the muscles around the bladder, bowel, and vagina, can help with sexual health and lessen sex-related distress in women with multiple sclerosis (MS), a small study found. Women reported increased sexual desire, arousal, and better overall satisfaction after engaging in a 12-week training program,…

Real-world data collected from a registry can be used to reliably compare the effectiveness of different multiple sclerosis (MS) treatments, so long as appropriate methodologies are employed to account for the messiness — what researchers call confounding bias — of real-world data, according to a new study. While registries…

Because multiple sclerosis (MS) has changed much of my life in a short amount of time, I’m now fighting mental health issues. Things have been especially tough since the start of the new year. Usually, I’d spend January working, planning holiday time, and looking at my calendar to…

People with multiple sclerosis (MS) who received a university-level education are more likely to be on disease-modifying treatment (DMT) in regions with a publicly funded healthcare system, a U.K.-based study suggests. Advanced education was also linked to treatment starting faster and high-efficacy…