living with MS

Having grown up in the countryside, I’ve been around animals my entire life. We always had dogs and cats, and I learned how to ride horses. It was tranquil and storybook. When I left home to take a trip or attend university, I experienced a void only the animals in…

In this installment of our “Expert Voices” series, Multiple Sclerosis News Today asked Tanuja Chitnis, MD, to answer some of your questions about pediatric multiple sclerosis (MS). Chitnis is a board-certified neurologist specializing in multiple sclerosis-related neuroimmunological disorders. Chitnis’s interest in children with MS led her to create…

People with multiple sclerosis (MS) are absent from their places of employment nearly twice as often as individuals without the neurodegenerative disease, according to a new study based on U.S. data. The results also showed missing work is significantly more common for MS patients who are unmarried, experience…

Tysabri (natalizumab) outperforms other disease-modifying therapies (DMTs) in its ability to lessen a range of patient-reported symptoms in people with multiple sclerosis (MS), according to data from a large real-world study. These symptoms include balance difficulties, sensory problems, feelings of anxiety, bladder problems, vision problems, and…

Adding a specialized nurse practitioner (NP) to a neurologist-based standard care team was found to significantly lessen depression and anxiety in patients with multiple sclerosis (MS), according to data from a six-month study in Canada. People with multiple sclerosis — dubbed “PwMS” by researchers — who received the add-on…

Unless you’ve been living under a rock or are somehow lucky enough to live on your own desert island, you’ve probably noticed that things are kinda difficult these days. I mean, COVID-19 is still a thing, and now we have monkeypox to deal with. Everyone seems to be…

My multiple sclerosis medications cost me a lot, even with good insurance. Yours probably do, too, if you don’t live in a country where the government picks up your drug costs. But now billionaire entrepreneur Mark Cuban is taking a big bite out of the cost of some…

If I were a superhero (or a supervillain, for that matter), I’d have an origin story. As it stands, I’m not even a minor hero in real life, and only a mediocre one when appearing in my own stories. I’m just a guy with multiple sclerosis, and all I…

My brother is getting married in two weeks, so last weekend, I attended my future sister-in-law’s bridal shower in London. When it came to managing my relapsing-remitting MS (RRMS) on the trip, I pretty much broke every rule I live by. Surprisingly, taking risks paid off for me, which…

No Link Between MS Severity, Vitamin D-related Mutations: Study Several studies over the years have indicated that there could be a link between a person’s vitamin D level and the risk of multiple sclerosis (MS). This study is slightly different. Researchers looked at whether genetic variations related to vitamin…

When Sarah Garcia was diagnosed with the relapsing-remitting form of multiple sclerosis (MS) at age 13, she didn’t know any other young Latino women with the neurodegenerative disorder. Garcia grew up in a tight-knit Hispanic community in Socorro, Texas, near El Paso. Most of her doctors were white,…

The other night I dreamed I was standing in a military formation when my leg began to twitch with an MS spasm. I couldn’t stay in line. The top sergeant yelled while the other soldiers laughed. Suddenly, the scene shifted to a balance beam, where I desperately tried to…

Oh, brother, it’s hot! How hot? Well, my thermometer hit “are you kidding me” levels. My experience with primary progressive multiple sclerosis (PPMS) has taught me that an 0.5-degree rise in body temperature is enough to cause a shutdown. Allow me to explain what it’s like when my…

Breakthrough Health, a startup company that created the Emilyn mobile app to help people with multiple sclerosis (MS) manage their disease, has been acquired by Mymee to further its support to the MS community. A provider of specialized support for those with autoimmune diseases and long-term symptoms…

Intermittent Fasting in MS Leads to Immune Cell, Metabolic Changes Although the National MS Society will tell you there is no such thing as an “MS diet,” many people follow various diets that seem to help them. One that’s been around for several years is intermittent fasting. In…

Leading a healthy cognitive and physically active lifestyle, including having a normal body weight and well-controlled blood pressure, may increase brain reserve — the brain’s ability to adapt after damage — and delay disability progression in multiple sclerosis (MS), according to a new study. The study, “Lifestyle factors…

Back in November, I told you all about my decision to start taking vocal lessons with a coach. Well, I’ve been at it for about eight months or so, taking an hour-long lesson every other week, and while I can tell that I’ve made some progress, I’m still not…

Greater feelings of social support predicted better sleep quality in people with multiple sclerosis (MS) during the COVID-19 pandemic, a study shows. Specifically, greater help with daily tasks and more leisure activities with others were the types of social support identified, after adjusting for potential influencing factors, as…

It seems to me from my anecdotal observations that a fair number of people living with multiple sclerosis (MS) have a gun. When I wrote about the issue a few years ago, I discovered that more people than I expected had both a gun and MS. Additionally, many…

Degree Deodorant wants people to have the confidence to persevere in the face of obstacles or self doubt. To that end, the leading antiperspirant company is introducing its Not Done Yet Marathon Team, composed of individuals, including a multiple sclerosis (MS) patient, who did not finish their marathon.

In my last column, I mentioned that I had an intrathecal baclofen pump. I’d make a bad pun, but I don’t have it in me. Spasticity, spasms, and hyperreflexivity were some of my first symptoms, which steadily got worse as my multiple sclerosis (MS) progressed.

Note: This story was updated on July 25, 2022, for the headline to reflect researchers gave this information in a perspective paper, not a study.  Bans on abortion and other reproductive care limitations are likely to have a profound impact on the care of people with multiple sclerosis (MS)…

As anyone with chronic illness knows, leaving the house requires planning. There’s much more to think about than what’s visible, especially if you’re relying on public transport. In the days preceding last week’s appointment with my multiple sclerosis (MS) nurse, I was contemplating just how long it’d been since…

Hello, all. It’s been almost a year since I’ve written a column, and I missed connecting with you. I’ve been processing the grief of losing my mother in September 2020, withstanding the challenges of living with multiple sclerosis and chronic pain, and valiantly attempting to find the message…

An eight-week calorie-restricted diet plan — known as intermittent fasting — led to immune and metabolic changes among people with multiple sclerosis (MS) in a small pilot clinical trial, data show. The findings could underlie some of the proposed benefits of calorie restriction on MS disease course, the researchers…

The presence of iron rim lesions (IRLs), which are regions of chronic nervous system damage with ongoing inflammation, visible on MRI scans, is linked with more substantial disability in people with multiple sclerosis (MS), according to a new study. However, the connection between these lesions and worse disability does not…

The case of Women’s National Basketball Association star Brittney Griner is an important reminder for all of us who travel internationally with our medications: What you might be able to do in your home country, might not be the case in another. And the penalty could be severe. Griner was…

On Feb. 28, 2021, my wife and I visited the MS clinic where I was diagnosed with primary progressive multiple sclerosis (PPMS). After receiving this life-changing news, I was an emotional wreck. While touring the clinic, I saw a person in a wheelchair go into an exam room.

A six-week program combining yoga and group discussions about resilience led to significant reductions in fatigue and anxiety, and improvements in well-being, for people with multiple sclerosis (MS), according to results from a pilot study. Researchers noted that the program, known as LoveYourBrain Yoga, “may improve a range of…

“So can you lift me up/ And turn these ashes into flames/ ‘Cause I have overcome/ More than words will ever say.” — Kate Voegele My relapsing-remitting multiple sclerosis (RRMS) diagnosis stole my life from me. The reverberations of this unwelcome thunderbolt were astounding. Coming to terms with a…