January 10, 2019 Columns by Laura Kolaczkowski STEP for MS to Study ‘Telerehab’ Exercise Programs Exercise and multiple sclerosis are a natural pair and shown by research to be an important part of our MS care plan. We all can benefit from getting an assessment by a professional therapist and having an exercise plan customized for our MS, but accessing exercise in a…
November 19, 2018 News by Mary Chapman Accelerated Cure Project, National MS Society Pair to Advance Research, Patient Input Hoping to expedite multiple sclerosis (MS) research and boost patient participation, the Accelerated Cure Project (ACP) for Multiple Sclerosis is teaming with the National Multiple Sclerosis Society. As part of the collaboration, the MS Society will make use of ACP’sĀ iConquerMS, a research initiative to increase the engagement…
October 22, 2018 News by Jose Marques Lopes, PhD #ECTRIMS2018 – Finding Best Treatment for ‘Right Patient’ and Progressive MS Among Work of Interest, Cleveland Clinic Doctors Say Tailored, highly effective therapies early in the disease’s course may be a way forward in multiple sclerosis (MS)Ā treatment, according to Cleveland Clinic neurologist Robert Bermel. Another neurologist with the Cleveland Clinic,Ā Robert Fox, talked about potential and upcoming progressive MS treatments.Ā In interviews with Multiple Sclerosis News…
February 1, 2018 Columns by Laura Kolaczkowski Minority Engagement in MS Research Engaging all types of people for research isnāt just a nice thought. It is critical to obtaining research results that will be meaningful. Middle-aged white women are often the people who volunteer for studies. Men, young people, and most significantly, people of color, lack representation in studies. According…
September 20, 2017 News by Patricia Silva, PhD Winner of $4.9 Million Research Award Tests Online and Teleconference-based Methods to Reduce MS-related Fatigue People withĀ multiple sclerosis (MS)Ā often face geographic barriers that end up limiting their treatment options. That has led a Case Western Reserve University researcher to test online- and teleconference-based methods of reducing fatigue and improving patients’ quality of life. Matthew Plow, assistant professor at the university’s Frances Payne Bolton…
September 15, 2017 News by Alice MelĆ£o, MSc Five Research Projects Totaling $38 Million to Compare Effectiveness of MS Treatment Strategies The Patient-Centered Outcomes Research InstituteĀ has awarded $38 million in grants for five projects that compare the effectiveness of different multiple sclerosis treatment strategies. A key aim of the research is to improve knowledge about the therapiesĀ to help doctors and patients choose the healthcare option that best meets patients’ needs.Ā The…
October 27, 2016 News by Patricia Silva, PhD Getting More Blacks and Other Minority MS Patients into Clinical Studies Is Goal of ACP Project Getting more African-Americans and other minority groups to take part in clinical research into treatments for multiple sclerosis (MS), andĀ identifying and tackling continuing disparities in efforts that affect patient care, will be the focus of a project led by the nonprofit groupĀ Accelerated Cure Project for Multiple Sclerosis (ACP)Ā and supported…
August 25, 2016 News by Charles Moore Patient-led Study, REAL MS, Invites Adults to Help Advance and Direct MS Research An innovation in multiple sclerosis (MS) research has been launched byĀ the iConquerMSĀ initiative ā a longitudinal, prospective study called “REAL MS,” an acronym for “Research Engagement About Life with Multiple Sclerosis,” with aĀ goal of accelerating research into personalized treatments for MS patients. This type of study collects repeat…
August 15, 2016 Columns by Laura Kolaczkowski REAL MS Research Needs You You want to help find answers about multiple sclerosis but donāt know how, and I hear your frustration about being unable to contribute in meaningful ways. Let me share with you the news that REAL MS (Research Engagement About Life with MS) was launched this summer, and I…
August 9, 2016 News by Patricia Silva, PhD PCORI Awards $2 Million to Study Treatments for Fatigue in MS Patients The Patient-Centered Outcomes Research Institute (PCORI) recentlyĀ awarded a sum of $5.5 million to two researchers at the University of California, San FranciscoĀ (UCSF). Bardia Nourbakhsh, MD. (Credit: UCSF) Bardia Nourbakhsh, MD, a clinical fellow in Neurology, receivedĀ aĀ $2 million grant to conduct a randomized, double-blind, placebo-controlled clinical trial to…
July 27, 2016 News by Patricia Silva, PhD PCORI Awards $20M to 4 Studies Comparing Current Drug and Rehab Therapies for MS The National Multiple Sclerosis Society reported that the Patient-Centered Outcomes Research Institute (PCORI) has granted nearly $20 million in funding to four research projects assessing various multiple sclerosis (MS) therapies for their clinical effectiveness. Two of the grants will cover studies comparing disease-modifying treatments, looking to identify differences…
October 6, 2015 News by Patricia Silva, PhD PCORI Board Approves $83 Million for Research on Multiple Sclerosis, Hepatitis C and Rare Diseases The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors recently approvedĀ an $83 million grant to support 26 patient-centered, comparative effectiveness clinical research (CER) studies on a range of diseases and patient groups. Two of these grants, totaling $29.5 million, will fund research intoĀ the care of patients infected with hepatitis…