technology

This Week, MS Takes a Back Seat

The vagaries of multiple sclerosis are always present, but this week, my waking hours have been consumed by something far more important. I say waking hours, but we have to discount much of that time, because I’m put to bed at the early hour of 10 p.m. and spend several…

AI Proposed to Help Thwart MS Treatment Delays, Discontinuation

Patientsā€™ underestimation of their own disease and the cost and side effects of disease-modifying therapies (DMTs) are among the main causes of delayed treatment initiation and non-adherence in multiple sclerosis (MS) patients, according to a report from OptimizeRx. These findings help uncover areas for improvement, which the health…

MedTech Breakthrough Cites RxMx and Roche for MS Patient App

For a comprehensive support app developed for multiple sclerosis (MS) patients,Ā RxMxĀ and Roche have won the Patient Engagement Innovation Award from Medtech Breakthrough. The fourth annual awards program recognized top health and medical technology products and companies. Healthcare company RxMx and pharmaceutical company Roche collaborated to produce…

Novartis, Pear Collaborating on Digital Therapeutics to Treat MS, Schizophrenia

Novartis and Pear Therapeutics are joining forces to develop novel prescription digital therapeutics to treat patients with schizophrenia and multiple sclerosis (MS). Digital therapeutics are software applications designed to treat diseases and improve clinical outcomes for patients.Ā Combining Novartisā€™ expertise in biomedical research and clinical development with Pearā€™s…

A Wheelchair that Drives Itself

I never thought I’d find a subject for this MS column in the technology magazine Wired. But, what do you know? A recent article suggested that the same technology being used to create self-driving cars could (and should) be used to create self-driving wheelchairs. Artist and…

Write On: Let Your Voice Do the Typing with Voice-to-Text Technology

ā€œO-cree-VUS,ā€ I said, clearly and naturally into the headset. I had recently purchased the device for use with the voice-to-text software I need to type (MS, right-hand weakness, loss of finger dexterity and motor skills). ā€œOkra busā€ slowly appeared on my computer screen. It was late March, and I was working on my first column for Multiple Sclerosis News Today. The Food and Drug Administration (FDA) had just approved Ocrevus (ocrelizumab) for use in the United States, making it the only drug to receive the agency's blessing for treating primary progressive multiple sclerosis. It was a big deal ā€” so big that even my friends and family were aware of the announcement. Naturally, I wanted to write about it. I tried again. ā€œOh-CREV-us,ā€ I repeated. Clearly, yet naturally. I use Dragon for Mac speech-recognition software to write \. ā€œClearly and naturallyā€ is part of the softwareā€™s mantra. ā€œO Christmas.ā€ ā€œOhhhh-creeee-VUUUS,ā€ I said. Very. Clearly. Very. Naturally. ā€œOkra vest.ā€ The weakness in my right foot that led to foot drop began in the early 2000s. The weakness in my right hand didnā€™t present itself until late 2015. At first, I tried using Appleā€™s Scribe feature, largely because it was already installed on the Mac I had purchased that year, and also because Mac and Apple products are easy to use and intuitive ā€¦ most of the time. Scribe seemed clunky, and the lag time between saying a word and Microsoft Word recognizing it and ā€œtypingā€ it was significant. At one time, I had written 5,000-word feature stories, time-consuming projects that demanded long hours of composition, editing, typing, and writing. Iā€™ve written for so long that writing and typing and my fingers were woven together, a symbiotic relationship that I couldnā€™t fathom ending. Yet, it became clear that this was going to be a new hurdle (foolishly, one I hadnā€™t anticipated) and would require a different way of thinking about writing, of what I ā€œdoā€ in life, and in that way, of who I was versus who I am. By spring of 2016, it was obvious that my typing days were coming to an end, and I began using Dragon for Mac. (Full transparency: The folks at Dragon provided a review copy for me to try for free.) But I didnā€™t want to read the instructions for using Dragon. And I didnā€™t want to practice. I just wanted it to work, and I just wanted to be the ā€œmeā€ I remembered. As long as I was only writing short emails and could live with sketchy grammar, it was awesome. Drunk from my regained capacity, I began writing and sending emails to everyone for everything. The sobering reality that came with writing anything of substance or craft ā€” hands-free ā€” was equally spectacular. Slowly, I came to understand that Dragon (and all such software and, frankly, all such assistance for better managing my MS and helping myself) was no better than the effort I put into making it work. The people at Dragon asked if Iā€™d write a review of the product, which youā€™ll find here. The short story is that Dragon is a dictation ā€œrobot.ā€ It can format, and cut and paste, and carry out so many of the functions that we take for granted, or at least, once did. With time, commitment, and effort, Dragon learns usersā€™ voices, and within reason, can get the job done even for longer, more complex composition. It even offers a ā€œcustom word bankā€ in which users may add frequently used words, like Ocrevus or ocrelizumab. But I hadnā€™t made the effort. ā€œOh-KRA-liz-ooh-MABā€ I said, switching it up and hoping Dragon would finally recognize the word. ā€œOak Grove Missoula lab.ā€ My deadline was looming and I could hear the clock ticking. Clearly and naturally, I screamed ā€œOCREVUS!ā€ into the headset. ā€œOh crap this.ā€ At that moment I realized how valuable the software was and is. No, it didnā€™t get the spelling correct, but it did help make that first column possible and it did help me hang on to something I still find very valuable. And, in its own way, Dragon seemed to understand not just the word but also the context. ā€œOh crap this indeed,ā€ I thought, smiling. And then Dragon and I finished my column.

Would You Share Your Info with an MS App?

A smartphone app has been designed to collect lots of information related to your multiple sclerosis ā€“Ā things such as physical and cognitive test results, MRI images, and even genetic data. The hope is that via the app researchers will be able to collect a lot of patient data…