There’s something we need to address, right here, right now. Not all of you will like it or agree with what I’m about to say, and that’s OK. I need to get this off my chest, so here it goes. I hear so many people with…
Therapy and counseling
Music is a spiritual experience. I love music in all of its forms. I grew up being serenaded by parents harmonizing everything from the Phi Gam fight song to Peter, Paul and Mary. After crucifying the clarinet, I played the piano until my late teens. I have fond memories of…
I hate needles. Being told I’d need to do injections was the worst news ever, second only to my diagnosis of multiple sclerosis. Sitting in the neurologist’s office with my husband, Paul, was terrifying. I was 22 and newly diagnosed with…
Bookmark this page! Why? Because in this column, I’ll give you three techniques to help manage your anxiety. Anxiety and stress are unhelpful for anyone’s mind or body, particularly with a chronic illness like multiple sclerosis. Feeling anxious or stressed is our brain’s mechanism to prepare the body…
XRHealth has raised $7 million to expand its telehealth platform, with the goal of providing clinicians and patients with virtual and augmented reality therapy. The funding will also increase access to virtual support groups for people with multiple sclerosis and other diseases. Telehealth broadly refers to the…
News that Caught My Eye Last Week: Ocrevus Infusion Time, Monocytes as a Therapy Target, MS and Work
Shorter Ocrevus Infusion Time Up for Approval in US and Europe One of the drawbacks to infusion therapies is the time a patient spends in a recliner receiving the medication. For Ocrevus (ocrelizumab), nearly half a day is required for the infusion itself. Add on pre-infusion care and post-infusion…
Editor’s note: “Need to Know” is a series inspired by common forum questions and comments from readers. Have a comment or question about MS? Visit our forum. This week’s question is inspired by the forum post “An Open Letter to a Newly Diagnosed Patient” and this column by John…
A subset of monocytes (a type of immune cells) that can infiltrate the central nervous system and drive nerve cell damage in multiple sclerosis (MS) may be a better target for preventing disease progression than the cells of the immune system that are currently targeted with MS therapies,…
Well, this is super weird. Being told to stay home and leave our houses only for food, medication, or exercise is bizarre for those of us in England. It’s starting to take a toll on my mental health. The other day, I stood in line at…
Are people with MS more susceptible than the average person to the coronavirus that causes COVID-19? And if COVID-19 attacks them, what’s the likely course of their illness? What about COVID-19 and disease-modifying therapies? Doctors from around the world are collecting information right now to try to answer these…
With everything being so awful, the goal is to write uplifting copy. OK, sounds like my sort of gig. One way of dealing with things is to become self-absorbed with the old MS. I think it’s getting jealous. How can a mere virus get all this attention? MS: “I’m far…
The U.S. Food and Drug Administration (FDA) has approved Zeposia (ozanimod) oral capsules to treat adults with relapsing forms of multiple sclerosis (MS), including relapsing-remitting MS (RRMS), active secondary progressive MS (SPMS), and clinically isolated syndrome (CIS). Due to the COVID-19 pandemic, however, when it will arrive in clinics…
An investigational therapy that uses nanocrystals of gold to help the brain repair itself represents a breakthrough in the multiple sclerosis (MS) field, says Clene Nanomedicine‘s chief medical officer Robert Glanzman. Glanzman, MD, recently presented promising results at the ACTRIMS Forum 2020 indicating that Clene’s lead…
I know the new strain of coronavirus is bad, but in the face of impending doom, I’m likely to find humor. Anyone who has had more aggressive disease-modifying therapies (DMTs) like Lemtrada (alemtuzumab) and Ocrevus (ocrelizumab) likely has a compromised immune system. After all, this is exactly what…
Potential Therapy, Anavex 2-73, Shows Ability to Protect Neurons and Promote Myelin in Early Tests
Anavex Life Sciences‘ investigational therapy Anavex 2-73 (blarcamesine) showed an ability to protect, repair, and induce the formation of oligodendrocytes — the cells that produce the protective myelin layer around neurons — in early cell testing, researchers reported. These findings, which further establish the therapy’s potential as a treatment…
The Spanish version of the modified Story Memory Technique improves learning and life satisfaction of Mexican patients with multiple sclerosis (MS), a new study suggests. The tool, developed by the Kessler Foundation, has the potential to address the lack of cognitive rehabilitation interventions that are culturally…
Scientists discovered new interaction between immune cells from the central nervous system (CNS) — consisting of the brain and spinal cord — and immune cells from the blood that may lead to new treatments for multiple sclerosis (MS) and other neurological diseases.
People with multiple sclerosis (MS) who complete training through a method called the modified Story Memory Technique (mSMT) show a decrease in brain activity after training, which could indicate more efficient brain processing, a recent study shows. The study, “Brain activation patterns associated with paragraph…
An ability to speak more than one language may help to protect people with multiple sclerosis (MS) against the cognitive decline caused by the disease, new research suggests. The study, “Multiple sclerosis and bilingualism: Some initial findings,” showed that MS patients who speak two languages (bilingual speakers)…
Learning a second language can bolster the health-related quality of life and mental well-being of people with multiple sclerosis (MS) by working to expand areas of the brain involved in language and damaged by MS, especially in early disease stages, a study suggests. These findings were reported in the…
MetP Pharma Awarded US Patent for Potential Remyelination Therapy Mention remyelination and the reaction from most of us with multiple sclerosis is probably, “How soon?” This announcement makes me hope that it’s now a little sooner. The process combines testosterone with a compound that changes the activity of something…
TD Bank Group has donated $1 million to the Multiple Sclerosis (MS) Society of Canada to support research projects aiming to use artificial intelligence to create tools enabling better use of disease-modifying therapies (DMTs) in multiple sclerosis (MS) patients. MS Society will channel these funds into its Acts of Greatness campaign,…
A small RNA molecule found in high levels in the gut of people with multiple sclerosis (MS) could be used to develop a new therapy for MS in the future, an early research study reports. Orally giving this microRNA — called miR-30d — to mouse models of…
The levels of the inflammatory molecule interleukin-22 (IL-22) may be used as a potential biomarker to evaluate disease severity and the effectiveness of treatments in patients with relapsing-remitting multiple sclerosis (RRMS), a new study shows. The study, “Impact of interferon β-1b, interferon β-1a and fingolimod therapies on serum…
It’s Not All in Your Head
Several days ago, the headline “It’s All in Your Head” jumped out at me. The author of the Journal of the American Medical Association article, Matthew Burke, is a neurologist at Harvard Medical School who specializes in neuropsychiatry. According to Burke, the problem of physicians telling patients that unexplainable…
At 17, I began a 20-year odyssey with endometriosis. The doctor’s platitudes and disbelief were astonishing and leveled my sense of self. The findings of severe endometriosis served as a painful “I told you so.” My life became a whirlwind of physical and emotional upheaval. For a young woman,…
I saw a praying mantis this morning. The long, leaf-like oddity caught me off guard. I was transfixed by the beautiful specimen, its prayerful state contrasting starkly with its violent mating ritual. The female is known to eat the head of the male — a shift in temperament at…
Feeling tired, depressed, or anxious? Maybe it has to do with your social cognition. Social cognition involves empathy and recognizing the emotions that are revealed by someone’s facial expression. That expression may show fear or disgust. Or it may warn us of danger. Social cognition also involves the…
The out-of-pocket costs for self-administered disease-modifying therapies (DMTs) for multiple sclerosis (MS) patients on Medicare increased more than sevenfold from 2006 to 2016, according to a new study. This was reported by researchers at the University of Pittsburgh in a…
Choosing which MS medication to use is one of the most difficult decisions for someone with MS and their neurologist. After 39 years with MS, and with four disease-modifying therapies (DMTs) on my medical chart, I’m definitely on the hit-it-fast, hit-it-hard side of that treatment decision. So, I was…