September 6, 2022 News by Margarida Maia, PhD Research Collaboration to Study COVID-19 Vaccine Dosing, Timing The Accelerated Cure Project (ACP) for multiple sclerosis (MS) is teaming up with Quest Diagnostics to study how MS patients respond to COVID-19 vaccines. āUnderstanding the immune response to the COVID-19 vaccine doses in a longer-term study in people with MS will provide tremendous insights into not…
May 11, 2021 News by Hawken Miller Minority Representation in MS Research Still Lacking, but There Is Hope Although multiple sclerosis (MS) affects many different races and ethnicities and may even be more aggressive in some of these patient populations, minority representation in MS clinical trials remains critically low. Black patients made up only a fraction of the total enrollment in large-scale Phase 3 trials for three…
December 11, 2019 News by Mary Chapman Sara Loud to Lead Accelerated Cure Project for MS as New CEO Leadership changes at the Accelerated Cure Project (ACP) for Multiple SclerosisĀ aim to enhance the nonprofit patient-founded organizationās research focus. Robert McBurney has stepped down as president and CEO after eight years to become ACPās first chief research officer. He will continue in the position of research lead for the…
November 29, 2018 Columns by Laura Kolaczkowski iConquerMS, National MS Society Collaborate to Amplify Patient Voices I am excited andĀ thankful to share with you a new collaboration between iConquerMS and the National Multiple Sclerosis Society (NMSS). For several years, I have worked with the people at the Accelerated Cure Project (ACP), a nonprofit organization that is the overseeing body for iConquerMS, to…
October 12, 2018 Columns by Ed Tobias MS Patients Capture the Ear of a Pharma Company People with multiple sclerosis (MS) rarely get the opportunity to talk to the people who design their medications. But a new collaboration is providing that opportunity to a few of us. The Accelerated Cure Project for Multiple SclerosisĀ (ACP) and pharmaceutical manufacturer EMD Serono have begun working together…
October 9, 2018 News by Janet Stewart, MSc EMD Serono, ACP Work Jointly to Make MS Clinical Trials More Patient-focused The Accelerated Cure Project (ACP) for Multiple SclerosisĀ andĀ EMD Seronoā a unit of Merck KGaA ā Ā will jointly incorporate the perspectives of U.S. and CanadianĀ multiple sclerosis (MS) patients into the design and implementation of clinical trials. The ACP, a nonprofit group based in Waltham, Massachusetts, strives to accelerate…
June 1, 2018 News by Patricia Silva, PhD MS Groups Working to Advance Patient-Reported Outcomes in Research, Patient Care and Treatment Development Two groups working to collect and promoteĀ patient-reported outcomes (PROs) in research and treatment forĀ multiple sclerosis (MS)Ā announced they will jointly explore ways to “standardize and harmonize” these measures so as to make them more effective. The effort brings theĀ iConquerMS People-Powered Research Network, managed by the nonprofitĀ Accelerated Cure Project…
February 19, 2018 News by Patricia Silva, PhD Accelerated Cure Project, Regeneron Unit to Sequence Coding Portion of MS Patients’ Genes The Accelerated Cure Project for Multiple SclerosisĀ and a Regeneron unitĀ are teaming up to sequence the coding portion of genes in DNA samples ofĀ multiple sclerosisĀ and other patients in the project’s repository. The cure project is a non-profit organization whose goal is to accelerate research to improve MS diagnosis and…
October 17, 2017 News by Patricia Silva, PhD Biogen, Others Working with ACP to Analyze and Use MS Data to Advance Research BC PlatformsĀ announced that Biogen and the Accelerated Cure Project (ACP) will use its platform to advance research in multiple sclerosis (MS)Ā by bringing data collected through clinical trials, biobanks and the like directly to researchers and other experts in the field. Microsoft is also a project partner,…
September 14, 2017 Columns by Laura Kolaczkowski Thereās an App (Maybe Too Many) for That! How many hours do the pharmaceutical companies think we have in our day? I ask because almost all of them have come up with very slick tools to use, particularly mobile apps, to help us improve our daily lives with MS. Not coincidentally, these apps also provide their…
June 7, 2017 News by Patricia Silva, PhD Bringing More Minority MS Patients into Research Is Project’s Goal, Starting with 15-Minute Survey The MS Minority Research Engagement Partnership Network is calling for all multiple sclerosis (MS) patients, ages 21 and older, to respond to a 15-minute online survey. Investigators are hopingĀ to better understand how people with MS from different ethnic backgrounds and races viewĀ medical research, so as to engage them in…
October 27, 2016 News by Patricia Silva, PhD Getting More Blacks and Other Minority MS Patients into Clinical Studies Is Goal of ACP Project Getting more African-Americans and other minority groups to take part in clinical research into treatments for multiple sclerosis (MS), andĀ identifying and tackling continuing disparities in efforts that affect patient care, will be the focus of a project led by the nonprofit groupĀ Accelerated Cure Project for Multiple Sclerosis (ACP)Ā and supported…
September 21, 2016 News by Patricia Silva, PhD REAL MS Inviting Patients to Join Research Project Aiming to Promote More Personalized Care Accelerated Cure ProjectĀ is still recruiting forĀ itsĀ iConquerMSĀ project, REAL MS, an alreadyĀ 3,000-strong patient-powered research network for people with multiple sclerosis (MS). REAL MS (ResearchĀ EngagementĀ AboutĀ Life withĀ MultipleĀ Sclerosis)Ā isĀ a longitudinal research study, designed partly by MS patients themselves, intending to answer critical questions about individualĀ experiences of livingĀ with MS from among a large and heterogeneous group…
February 12, 2015 News by Patricia Silva, PhD Accelerated Cure Project to Increase Participation in MS Trials Nonprofit organization,Ā Accelerated Cure Project for Multiple Sclerosis, is launching a national campaign called iConquerMS,Ā which was designed by and for multiple sclerosis patients to raise awareness ofĀ the importance of health data and supporting research. OnĀ the iConquerMSĀ portal, patients can…
September 19, 2014 News by Patricia Silva, PhD Accelerated Cure Project for MS, EMD Serono To Study Treatment Outcomes The nonprofit organization Accelerated Cure Project for Multiple Sclerosis is going to sponsor the launch of theĀ Optimizing Treatment – Understanding Progression (OPT-UP) study in collaboration with biopharmaceutical companyĀ EMD Serono, Inc, a subsidiary of the german Merck KGaA. The study will enroll 2,500 MS…