The Detriment of Unsolicited Advice Regarding MS and Chronic Illness

The Detriment of Unsolicited Advice Regarding MS and Chronic Illness

Patiently Awakened

I am sure many of us have had instances where someone “offered” their advice on what is the best way to manage our illnesses. They are not medical professionals and many of them don’t suffer from the disease themselves. They present their beliefs as scientific dogma, often referring to something they have read or  heard and have formed an opinion about.

I have had people ask why I choose to take traditional MS medication as opposed to holistic or natural therapy. Their opinion is emboldened by their belief that the approved therapies for MS damage the body over time, that they are a conglomerate of pharmaceutical companies, insurance companies and medical professionals for financial gain, and they do not guarantee the disease will not progress. My response is that nothing is guaranteed.

I have been told, as if I am uninformed, that MS is an inflammatory disease. A few have declared that reducing the inflammation in my body will “cure” my disease. That is not the case. While there is a multitude of evidence to support that symptoms of MS can be reduced and/or alleviated by eating foods that reduce inflammation, I have not yet seen any empirical evidence to prove that belief.

More important, I am well aware there are people with chronic illness who employ different treatment options, and I feel confident avowing that treatment is a personal choice. It is totally up to individuals, their families and/or their medical providers to determine what is best.

MS and chronic illness are frustrating enough. There are plenty of scenarios to imagine and decisions to make without any unnecessary outside influences. Most of us living with this disease, or any chronic illness, are well-versed. We have done more research than you can imagine. We actually live with the disease and that is the reason we have the autonomy to decide what we think is best. I know there are people who refuse to take the approved medications and they consider other options. There also are those, like me, who choose to take approved courses of therapy.

While I can acknowledge that diet and exercise are important and may afford a better quality of life, for anyone to proclaim a cure for a disease that has none is detrimental. It is a fallacy. Most of us are trying to survive the best way we know how. Please be reminded that if you’ve heard of these “remedies,” chances are we have, too. We are awaiting the day a cure is announced.

Until then, please refrain from spreading false information. I am not telling you what to believe; I am simply asking you to be mindful of inflicting your beliefs upon others and declaring they are factual. What works for some may not work for others. It is not our decision to make, and it is not our right to form an opinion, about what others decide regarding their personal journey with MS and chronic illness.

I am politely asking that you carefully consider the magnitude of your unsolicited advice. Concern is genuinely appreciated, but your your advice may not be best, and your opinions may be offensive.

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Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis. 

Teresa I. Wright-Johnson is a married Multiple Sclerosis Warrior and Congenital Heart Disease Survivor. She was born with a heart murmur and an Aortic Valve Defect. Teresa has endured multiple open heart surgeries and cardiac procedures. She was diagnosed with MS in November of 2014 and is under the care of an esteemed MS Specialist. Teresa knows there is a calling on her life and she fully embraces that. Teresa uses her illnesses as opportunities to further rely on her faith, walk in her truth, raise awareness and educate others. She believes that she is purposely on purpose. Teresa offers a solid background in Criminal Justice and Social Services. A graduate of Rutgers University in New Brunswick, NJ and a retired Sr. Parole Officer for the State of New Jersey, Teresa uses her life to empower and inspire others. She embodies community service, is a member of Zeta Phi Beta Sorority, Inc and is active with several other organizations. Teresa aspires to be a light that shines in dark places. Teresa is an author, poet, inspirational speaker and a community activist. She enjoys writing, reading, listening to music and spending time with her family and friends. Teresa acknowledges the unwavering love of her wonderful parents throughout her life and her supportive and loving husband Marvin who is beside her through every trial and triumph.
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Teresa I. Wright-Johnson is a married Multiple Sclerosis Warrior and Congenital Heart Disease Survivor. She was born with a heart murmur and an Aortic Valve Defect. Teresa has endured multiple open heart surgeries and cardiac procedures. She was diagnosed with MS in November of 2014 and is under the care of an esteemed MS Specialist. Teresa knows there is a calling on her life and she fully embraces that. Teresa uses her illnesses as opportunities to further rely on her faith, walk in her truth, raise awareness and educate others. She believes that she is purposely on purpose. Teresa offers a solid background in Criminal Justice and Social Services. A graduate of Rutgers University in New Brunswick, NJ and a retired Sr. Parole Officer for the State of New Jersey, Teresa uses her life to empower and inspire others. She embodies community service, is a member of Zeta Phi Beta Sorority, Inc and is active with several other organizations. Teresa aspires to be a light that shines in dark places. Teresa is an author, poet, inspirational speaker and a community activist. She enjoys writing, reading, listening to music and spending time with her family and friends. Teresa acknowledges the unwavering love of her wonderful parents throughout her life and her supportive and loving husband Marvin who is beside her through every trial and triumph.
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2 comments

  1. Ellen Hopson says:

    This was a welcome article. I have PPMS so although some days are better than others, I never remiss. I become so discouraged and try to hide my symptoms when well-meaning friends, casual acquaintances and even family provide advice based on junk ads, junk research or even old wives tales. At times it’s as though they think it’s my fault I have MS because I don’t follow the paleo diet or won’t take supplements they “heard” about. It can be very isolating. One relative set up an introduction to an acquaintance who had MS for 9 years. He assured me her life wasn’t impacted at all & thought she could tell me how to get past the MS. What she actually shared was she had been hospitalized twice in the past 3 weeks and was so depressed over her never ending struggle with symptoms that she was considering suicide. Just because we put on a smiling face and don’t share our MS experience with everyone we encounter don’t assume MS has no impact our lives!

    • Teresa Wright-Johnson says:

      Hi Ellen,
      Thanks for reading the column and sharing your thoughts. I can totally identify with how you feel at times. It can be very frustrating when people don’t really understand all that we must ensure. I am learning to politely ignore people who think they know what’s best for me. Stay encouraged and take care of you as best as you know how.

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