Columns Patiently Awakened - A Column by Teresa Wright-Johnson Invisible Illness Awareness: The Struggle Continues Invisible Illness Awareness: The Struggle Continues by Teresa Wright-Johnson | October 31, 2017 Share this article: Share article via email Copy article link Last week was Invisible Illness Awareness Week, which ran from Oct 14-20. Awareness weeks are designed to bring attention to certain conditions, issues and situations. They are directed at creating consciousness and disseminating information. Sadly, invisible illness is a subject that needs much more attention. Those of us with chronic illness, whose symptoms are undetected by the human eye, continue to be scrutinized and judged unjustly. We are questioned publicly and often are made to feel as if we have to explain the scope of our illness. We believe we must substantiate our ailments sometimes feeling as if our failure to do so makes us look as if we are feigning illness. There have been several times when I felt as if I had to divulge my MS diagnosis and injuries. If I need assistance at the airport, I feel compelled to explain why. I can offer many other examples, yet I am certain you comprehend the gist. I still have situations in which my illnesses are questioned by insensitive people who just donāt understand. The ignorant belief that if you look fine then you must be fine prevails. I try to remain unaffected by the idiocy, but the plight still saddens me. It is difficult to live with diseases; it is torturous to be judged while ill, and placed in positions where we are always defending ourselves against bias and insensitivity. Others are not the judge or jury, and they cannot determine our mental, physical and psychological states by outward appearances. Most of us live with pain and/or discomfort daily and many of us donāt complain. The only times I may indicate that I am in pain is when it becomes intolerable. This is our reality. Invisible Illness Awareness is intended to deter people from making unwarranted and uninformed assessments. I would suggest that instead of focusing on how we look, please ask us how do we feel. If you really want to know, most of us will share. It is not our responsibility to conform to your perceptions and expectations. We are braving chronic illness and donāt have the tolerance or the desire to defend ourselves against people who are committed to devaluing, dismissing and misunderstanding us. As I have written before, if you donāt know me, please donāt judge me. Invisible illness is multifaceted and if we consciously seek to raise awareness, we must become enlightened. We must resist judgment and dismiss prejudice. My hope is that one day the misconceptions, rejection and isolation surrounding invisible illness will dissolve. I remain committed to representing the varying faces of invisible illness. My desire is that each and every one of us living with chronic illness can live in peace, free from disdain and with great support. āAlthough you cannot see, it doesnāt cease to be. Donāt make judgments or assumptions, for you are not me. Invisible Illness you donāt understand and you probably never will. Please donāt judge what you canāt comprehend, I am always climbing a hill.ā (from The Durability Of Invisibility by Teresa I. Wright-Johnson) You are invited to subscribe to my website at www.teresawrightjohnson.com *** Note:Ā Multiple Sclerosis News TodayĀ is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those ofĀ Multiple Sclerosis News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis. Print This Page About the Author Teresa Wright-Johnson Teresa Wright-Johnson is a congenital heart disease survivor and an MS warrior. Diagnosed in November 2014 with MS, Teresa relies on her faith, family, and friends. As a person with chronic illnesses, Teresa has learned the importance of being both patient in nature and present in each moment. It has also led her to boldly live her truth and walk in her purpose. Teresaās column will focus on her personal lessons and experiences with MS. Teresa hopes her column will inspire and encourage others to stand in the midst of adversity. She believes that even in the course of illness, we can find greater meaning to our existence and use our light to shine through our darkest hour. Tags awareness, chronic illness, invisible illness, judgment Comments SHARON CANNON amen to that~ Reply Diane taylor I have been living with MS for over 20 years. I have several invisible symptoms. I have vertigo, cognitive decline, and the worst MAJOR DEPRESSIVE DISORDER. I am often suicidal. I feel worthless and hopeless. I have no joy for life. Although uninformed people tell me I have a good life and should be thankful, I only want to cry or isolate and stare blankly at the walls. Why do they judge me? I look fine but scratch the surface and you will understand that I donāt feel fine. I am a failure and a foreigner in my own life. Reply Ann Marks RN are you getting treatment for your depression?? I also have major depression but have been helped tremendously by my psychiatrist Reply Leave a comment Fill in the required fields to post. Your email address will not be published. Your Name Your Email Your Comment Post Comment
April 24, 2024 News by Lindsey Shapiro, PhD Autoantibodies seen in blood years before MS diagnosis: Study
April 23, 2024 News by Mary Chapman Itās year 10 for MSAAās upcoming Improving Lives Benefit for MS
April 23, 2024 News by Margarida Maia, PhD AAN 2024: Subcutaneous Ocrevus led to nearly no relapses after year