Columns The MS Wire - A Column by Ed Tobias Thanks to Caregivers Who Share Our MS Load Thanks to Caregivers Who Share Our MS Load by Ed Tobias | November 14, 2017 Share this article: Share article via email Copy article link The MS load we carry is heavy. Some of us, unfortunately, must carry it alone. But many of us are fortunate to have someone with whom we can share the weight. It’s National Family Caregivers Month and a new survey shows just how heavy that load can be. Caregivers, it will come as no surprise, are carrying their own problems and needs. Here are some of the key findings of that survey. It was sponsored by EMD Serono, which makes Rebif, as well as many non-MS drugs. Nearly half (49%) of unpaid caregivers surveyed have feelings of depression. Nearly half (45%) of unpaid caregivers surveyed feel that their physical health has suffered as a result of their caregiver duties. Nearly half (45%) of unpaid caregivers surveyed often don’t have time to book or attend medical appointments for themselves. 41% of female unpaid caregivers report that being a caregiver has put pressure on their financial situation, as compared to 28% of male caregivers. Almost half (47%) of female unpaid caregivers do not feel supported at all by the local community, and a third (33%) of unpaid caregivers do not feel supported at all by their local health system. Just 40% of unpaid caregivers feel supported by their employer in their role as a caregiver. No surprise there, nor in the depression and health problems that were reported. I am surprised, however, that the percentage of caregivers reporting these problems wasn’t higher. Caregivers shouldn’t have to go through this alone. Just as there are support groups for MS patients, there are organizations supporting caregivers. They include: Caregiver Action Network Carers Australia Carers UK Carers Worldwide Eurocarers National Alliance for Caregiving International Alliance of Carer Organizations Shanghai Roots & Shoots, China I’ve found some of the best resources for caregivers, however, are the personal blogs that are written by caregivers themselves. Here are a few that I’ve stumbled upon. Not all of these are specific to MS, and some are no longer active, but they all contain good information: Healthcare Journey/caregiver MS Caregiver Sharing The Caregivers Living Room (Australia) ArtsieSeph’s Junior Caregiver’s Guide (Young caregiver) Caregivingly Yours (A man with lung cancer cares for his wife with MS) And the National MS Society has published A Guide for Caregivers that’s chock full of good tips. But, sometimes all of the blogs and guides in the world might not be of much help to a caregiver who feels depressed. It may take a patient to provide the best medicine. Here’s the start of “An Open Letter to My Caregivers” that I discovered on the Life with an Illness blog, written by Mackenzie: “Having a chronic illness, a lot of people have vanished in my life, but you have never left my side. You have seen me through the good times and you havenāt left my side through the dark times.” Whether you’re a caregiver or a patient, it’s worth your while to go to Mackenzie’s blog and read the whole letter. Then, ask yourself when the last time was that you thanked the person, or people, who help you make it through your day. You’re invited to follow my personal blog at www.multiplesclerosisnewstoday.com *** Note:Ā Multiple Sclerosis News TodayĀ is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those ofĀ Multiple Sclerosis News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis. Print This Page About the Author Ed Tobias People say to write what you know and Ed Tobias knows about MS. He's lived with the illness since 1980, when he was 32 years old. Ed's a retired, award-winning broadcast journalist and his column combines his four decades of MS experiences with news and comments about the latest in the MS community. In addition to writing his column, Ed is one of the patient moderators on the MS News Today Facebook, Twitter, and Instagram sites. Heās also the author of āThe Multiple Sclerosis Toolbox: Hints and Tips for Living with M.S.ā Ed and his wife split their time between the Washington, D.C. suburbs and Floridaās Gulf Coast, trying to follow the sun. Tags caregivers, depression, resources Comments ArtsieSteph Thank you for sharing my caregiver's journal! It's really nice that my musings get to help other people who are also sharing the load of cancer. Reply Leave a comment Fill in the required fields to post. Your email address will not be published. Your Name Your Email Your Comment Post Comment
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