What Keeps Me Going — and Smiling

What Keeps Me Going — and Smiling

john connor

Shooting the breeze after work has been part of my professional life for 27 years.

We’re all winding down, yes, but I’m actually still working. New ideas, niggles, gossip are thrown together over drinks. True, many of the younger generation’s beverages these days are non-alcoholic, so they tend not to hang. But, helpfully, they do occasionally.

It’s an informal forum, when anarchy can sometimes get a lot done.

Admittedly, my work is somewhat different from the norm ― I’m surrounded by creative artists, often the club owner, his staff and, occasionally, punters who’ve come to congratulate the team.

I still produce and direct a live, satirical stand-up show.

We gather around a corner table at the bar of The Comedy Store in central London, post-gig. The only difference now that I have MS is that I never have to search for a chair as I’m rolled to the bar in one!

I realized, chatting to a comic whom I’ve worked with for some 25 years, that there is now a difference for me. Not the way I’m treated ― backstage in comedy anything goes. If no one joked about my disability, I’d be worried. Don’t worry, I give as good as I get. I’m also in charge of the bookings ― so watch it!

It’s a fact that I now get something on top of creativity and a touch of moola from the job.

Every week, it’s an effort to get there; sometimes going is a Herculean task.

But it centers me.

Too often with MS you’re understandably focused on yourself. How am I to do even the simple things?

The clocks changed weeks ago, for example. I always adjusted the central heating timer before getting ill. It’s situated in an awkward position in the utility room cupboard. My wheelchair is in the house ― usually it lives in the car ― so I am going to tackle that today. It’s not much, but it’s something I can attempt on the household lists of things to do. And it’s a bit more than getting to the toilet on my own.

But actually working with others outside the safe confines of my house has turned out to be deeply therapeutic. Sure, I have to adjust physically to the restrictions of my MS, yet I don’t let it stop me. Only if a UTI has ground me to a standstill do I succumb. Rarely am I fully fit, but I drive myself on. Going to work has turned out to be my way of fighting MS.

Running a comedy show also means I get to have a good laugh while doing it.

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2 comments

  1. Roberta Sloniker says:

    What a beautiful attitude! I have learned that a big smile lifts my mood as well as the recipient of my smile. There are so many wonderful people in this world. Sadly the one who aren’t so wonderful get all the attention!

  2. Barbara Dalziel says:

    Fabulous attitude and one which I can fully understand. I love being in the company of people who make me laugh my disability disappears when I’m with my friends and only a UTI can floor me now but apart from that I do,push myself to get on with things that I can still manage and this and being out there make me think less of my MS and more of those who are that bit worse off than myself. I can help people and will do as long as my mind set allows me to do so.

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