Columns The MS Wire - A Column by Ed Tobias Is MS Keeping Me from Smelling the Roses? Is MS Keeping Me from Smelling the Roses? by Ed Tobias | March 27, 2018 Share this article: Share article via email Copy article link For years, my wife and I have disagreed about smells. She smells something and I don’t. I tell her that her nose is too sensitive. She tells me to get out the air freshener. Over the 37 years since my MS diagnosis, this conversation has happened thousands of times. But I never thought that my MS might be the reason for this dichotomy of smell sensitivity. Then I came across a story on this website about how people with MS can have a reduced sense of smell, and how that reduction can begin early in the progression of their disease. Maybe that’s why the “smell meter” attached to my wife’s nose reads differently from mine. Smell may be a hidden MS symptom Our noses are connected to “smell meters” in our brains by the olfactory nerve. But unlike the nerves in our spine, the olfactory nerve, for the most part, isn’t covered with myelin. And lesions aren’t seen on it, either. That’s led some researchers to believe that the olfactory nerve isn’t involved with MS. However, other researchers think there may be a connection. The MS News Today article reports that “data from some [studies] indicate a 20% to 40% olfactory impairment in MS, mostly in patients with relapsing-remitting MS but also among those with primary progressive MS.” What does this mean? These doctors think that smell sensitivity, or the lack of it, may be able to be used as another indication that someone’s MS is progressing; less smell means more advanced disease. In our house, however, my wife will probably put it in simpler terms: It’s my smell meter that’s busted, not hers. You’re invited to visit my personal blog at www.themswire.com. *** Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis. Print This Page About the Author Ed Tobias People say to write what you know and Ed Tobias knows about MS. He's lived with the illness since 1980, when he was 32 years old. Ed's a retired, award-winning broadcast journalist and his column combines his four decades of MS experiences with news and comments about the latest in the MS community. In addition to writing his column, Ed is one of the patient moderators on the MS News Today Facebook, Twitter, and Instagram sites. He’s also the author of “The Multiple Sclerosis Toolbox: Hints and Tips for Living with M.S.” Ed and his wife split their time between the Washington, D.C. suburbs and Florida’s Gulf Coast, trying to follow the sun. Tags diagnosis, symptoms Comments Rose Yes, I agree with you. My sniffer is off. I use to smell everything, even as a child, my mother would complain I had to smell everything. We are still discovering more everyday about this disease and we both know that it takes its role differently in everyone. Best of luck and happy smelling. Reply Ed Tobias A Rose commenting on smelling the roses. I love it. :-). Thanks for dropping a note. Ed Reply Lois Flanigan I am just the opposite, I have such an acute sense of smell I hate it! I have been told that even that could be related to MS. I have a couple of cats and can tell which one is lying next to me, not by opening my eyes, but by their body odor. I can tell the difference between Coke and Pepsi (no joke) just by smelling the glasses. Drives me (and my husband I am afraid) a little crazy, because I am constantly cleaning due to something I smell. Reply Lori Hickey I too have an acute sense of smell although I have MS. Reply Jill P Exactly the same as me. I'm known as radar nose. My smell functions in hyper-mode. I instantly smell everything that's going on. This can be unpleasant and overwhelming. Additionally, I can taste every nuance in any dish and am famous in my family for knowing what's in a recipe. Reply Angela Wow, I always wondered if there was some sort of link. Many yrs ago, I got well and truely dressed down because the tubing with cyanide solution was leaking into the water bath and then into the lab. I could not smell it, but apparently everyone else could. Naturally, this is a health issue for us all. While being told to empty and diagnose the problem, I asked what it smells like..almonds. I had no idea almonds had a smell. They only have a taste for me. While standing outside a hash cafe in Amsterdam on a tour os, everyone else was sniffing deeply and commenting. Once again..’what smell?’.. Then I visited a friend who had just pain medicated. She was so embarrassed..but again..’what smell?’. I always wondered if it was attached to my blood group or something(a positive-recessive negative Ddccee) Reply Leave a comment Fill in the required fields to post. Your email address will not be published. Your Name Your Email Your Comment Post Comment
April 25, 2024 News by Margarida Maia, PhD Having MS may marginally increase likelihood of cervical cancer: Study
April 25, 2024 News by Marisa Wexler, MS MS patients prefer Tysabri injection to intravenous infusion: Study
April 24, 2024 News by Andrea Lobo, PhD Foralumab found to ease fatigue in SPMS patients in access program
