Happy Lemtrada anniversary to me!
It’s been two years since I completed my second round of Lemtrada (alemtuzumab) infusions, and I’m happy to say that the results have been good. Not everyone’s experience with Lemtrada will mirror mine, but I don’t think I’m much different than most.
My brain MRI hasn’t shown any new, enhanced, or active lesions since before my first treatment, although that had been stable for several years before I began Lemtrada. More importantly, my symptoms haven’t worsened. In fact, some have improved a bit.
I generally feel better. I’m more alert and my physical fatigue is less than it was before my treatment. I have some lower back and hip pain, but it’s not as severe as it was a year ago. Nighttime foot and leg cramps are easing a little.
My bladder problems have improved, which is a biggie. For years, I’d wake up about three times a night for a trip to the bathroom. But since the start of this year, I’m getting up only once on most nights. A few times a month, I actually sleep through the night a full eight hours!
During the daytime, I have less urgency and frequency. When I urinate, I usually feel like I’m emptying my bladder completely.
Bowels are also better. I’ve gone from a “regular” of every three to five days to actually being pretty regular, every day or two.
The neuro tests agree
Various neurological tests confirm that it’s not all in my head. I walked slightly faster on my last two 25-foot walking tests. My neurologist said my gait has improved. My speed is better on the nine-peg test that rates finger dexterity. These improvements aren’t dramatic, but they are improvements.
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