Short and Sharp

Short and Sharp
4.1
(32)

This column will be short as I am quite ill. That’s nothing too unusual for those of us with MS.

Oh, the joys of a relapse. A while back, it stopped me from walking. Now it’s stopped me from standing!

Transferring anywhere is now a nightmare. I have to use my Hannibal Lecter Molift Raiser but often don’t have the energy to climb into it. That’s where having two strapping lads living at home during lockdown comes in handy. Any chance of keeping a social distance has long gone.

My right arm only works these days when I take diazepam. Typing after taking this medication would be a lot easier, as hitting the question mark key currently is a nightmare. The trouble with this solution is that diazepam also sends me sleepy-bye. I only dare take it when I’m going to bed, and even then only if my right arm is hurting.

It’s been an awful long time since I knew anything about the drug scene, but I’m pretty sure it’s quite addictive. I’d rather leave my addiction to whisky, which I haven’t tried in weeks! I seem to have been afflicted by various ailments for quite a while.

The lowlights this week included four hours trying to self-catheterize. My wife tried to help but even that failed. Waiting and persistence eventually worked. There was a lot of “just a couple more inches.”

I just missed the commode while starting to write this. A herculean effort, or maybe a surge of adrenaline, helped me to stand for the first time in three days. But it was too late. Maybe this is a lower lowlight than the catheter — it’s difficult to tell anymore.

It’s possible the C. diff finally has left me. My wife dropped a stool sample of mine at the lab for testing yesterday. I have new antibiotics to fight C. diff infection, but I think I’ll wait for the lab results.

Actually, I’ve a correspondent from a previous column to thank for this. “RG” wrote a forceful email that I refused to publish because I thought it was too aggressive! Mea culpa — I dug it out and quoted it to my doctor. It was out of his knowledge range, so he phoned the microbiologist at our local hospital and the drugs appeared.

There aren’t any highlights to report except maybe I’ve encouraged my wife and eldest son to start watching the crime drama series “Justified” on Amazon Prime. My wife wasn’t sure about it, but when she found out Elmore Leonard was involved, all doubts were lost. My eldest son just loved the hat. He’d stolen a straw one just like it from me years ago.

At least I now felt justified!

***

Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to multiple sclerosis.

In 1982 John Connor was a stand up, sketch writer & journalist – ‘Crap at all three he decided whilst watching a man performing with a paper bag on his head that as nobody else was going to write about stand up he would’. ‘Comics: A Decade of Comedy at the Assembly Rooms’ by John Connor. Papermac 1990. In 2009 John Connor was diagnosed with MS. In 2020 John Connor stopped producing & directing his own devised live 30 year old resident topical comedy show at London’s Comedy Store – ‘The Edge’. Ironically destroyed by the biggest news story to hit the world since 1939! He was also a UK TV Casting Director specializing in comedy – including one of the hippest shows ‘Black Books’ [double BAFTA winning Situation Comedy Award] & for at least a decade the biggest sitcom on British TV ‘My Family’. TV & MS was a step too far – and we know how hard any step can be. Now he can’t even manage a step! John also writes “Fall Down Get Up Again” – an irreverent journey with MS for Multiple Sclerosis News Today. And is now the Co-Moderator of MSNT’s MS Forum.
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In 1982 John Connor was a stand up, sketch writer & journalist – ‘Crap at all three he decided whilst watching a man performing with a paper bag on his head that as nobody else was going to write about stand up he would’. ‘Comics: A Decade of Comedy at the Assembly Rooms’ by John Connor. Papermac 1990. In 2009 John Connor was diagnosed with MS. In 2020 John Connor stopped producing & directing his own devised live 30 year old resident topical comedy show at London’s Comedy Store – ‘The Edge’. Ironically destroyed by the biggest news story to hit the world since 1939! He was also a UK TV Casting Director specializing in comedy – including one of the hippest shows ‘Black Books’ [double BAFTA winning Situation Comedy Award] & for at least a decade the biggest sitcom on British TV ‘My Family’. TV & MS was a step too far – and we know how hard any step can be. Now he can’t even manage a step! John also writes “Fall Down Get Up Again” – an irreverent journey with MS for Multiple Sclerosis News Today. And is now the Co-Moderator of MSNT’s MS Forum.
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18 comments

  1. Cyn says:

    Thanks ,John
    Sorry to hear that you have been facing such awful challenges
    Hope there will be major improvement soon

  2. Judy Wilson says:

    Love your taste in TV, I’m also a fan of Justified. I do hope you feel better, as someone with SPMS I can appreciate some of the same challenges. I really hope you feel better soon.

  3. Emma says:

    I’d watch justified again in a heartbeat. Your struggles sound much like my husband’s, maybe I should go out drinking with your wife! Stay safe.

      • Emma says:

        Ah, if only! Australia a little too far to stumble drunkenly home. Shame, unusual to find others of the same generation/ un chosen lifestyle choices. I’ll have an imaginary drink with her tonight!
        Stay safe.

  4. Debra Carlyon says:

    hello, I was wondering why you do not use dragon to write for you? when my MS affects my hands. I can put my ideas down. I hope you feel better soon, I hate falling also.

  5. Dan MADDEN says:

    Sorry also about your terrible time. Please let us know how well you bounce back. (You WILL bounce back).
    In my healthier days , I was scheduled for a dental cleaning. I got a call the day before and the was told that the cleaning lady had to cancel because she had a kidney stone. I found this information a bit odd to give out, but she was kind of a strange girl (nice, but a little different). The next day another call back to reschedule for the next day, as the stone had passed! More news to never forget.
    So when I was talking to the “cleaning lady” the next day, she told me about the experience, and how painful it was. I told her that as bad as it was for her, it’s a lot more painful for a man, with that extra quarter inch to go. She kind of looked away, eyes glazed over, and said “mhmm”.

  6. kay welsh says:

    Got my 5 stars rating in this time!
    Have you tried IVIG for your C diff and relapse? I know of many more MS’ers getting IVIG for all sorts of issues including relapses and C diff.Take care

  7. Wendy Hovey says:

    I follow you with great interest and pray for you often. I’m always amazed that you have any sense of humor left. My daughter-in-law has MS, which is how I got to this site and found you. Here is a little Haiku to remind you that spring has come, or at least it has in the Finger Lakes region of NY state, where I live.
    So many shades of
    green, my emerald heart sings.
    My tears taste of mint.

    • John Connor says:

      That’s sweet of u!
      I’m afraid with my background I’d be tempted to write a rude one but maybe age has now tempered me…..

  8. Michael Kamenjarin says:

    Hi John, I’m sorry to hear about your symptoms. Hopefully the relapse will abate soon, have you thought about using voice dictation? Unfortunately that’s what I have to do these days.

    • John Connor says:

      Not yet. If Siri is any example I’d spend a lot of time writing about British ‘80s New Wave bands. Now I happen to like them but I worry about constantly clashing with the software and wanting to strangle it! Still s’pose the Drury’s out. Course may just be having a Blondie moment! (Yes, know they were out of NY – don’t Ramone about it & give me the CBGB’s) x

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