Columns The MS Wire - A Column by Ed Tobias MS news notes: Older MS patients, Lucid-MS, dysphagia, MS progression MS news notes: Older MS patients, Lucid-MS, dysphagia, MS progression Columnist Ed Tobias comments on the week's top MS news by Ed Tobias | February 13, 2023 Share this article: Share article via email Copy article link Welcome to āMS News Notes,ā a weekly Monday morning column where I comment on multiple sclerosis (MS) news stories that caught my eye last week. Hereās a look at whatās been happening: Older patients and DMTs The title of a report by MS News Today‘s Patricia Inacio notes that “Older MS patients with stable disease may safely stop DMTs: Study.” Well, that’s what the study says, but as someone who is 74, has lived with MS for 42 years, and has been treated with four disease-modifying therapies (DMTs), I have to ask if people should stop. The study reports that people over 60 with MS whose illness is stable may stop their DMTs without increasing their risk of relapse or worsening disability. But there are some caveats. The study included only 35 people and their mean Expanded Disability Status Scale (EDSS) score was only 3. When I began treatment with Lemtrada (alemtuzumab) several years ago, I was 68 and my EDSS was 6.5. I think the treatment held my progression in check and helped to improve a couple of symptoms. I’d hate to have a neurologist tell me, “You’re 60 years old, so we shouldn’t consider a DMT any longer.” Recommended Reading February 9, 2023 Columns by Benjamin Hofmeister How multiple sclerosis leads to what I call ‘microinjuries’ Lucid-MS trial to start in Canada Lucid-MS is a very interesting experimental MS treatment. If I correctly understand what Andrea Lobo writes in “Health Canada clears Phase 1 trial of Lucid-MS in healthy volunteers,” rather than trying to treat MS by attacking immune system cells, Lucid-MS attacks proteins that damage the myelin coating of our nerves. The immune system is not suppressed. Also, unlike most of the other DMTs, this experimental treatment is designed to treat all forms of MS, not just relapsing-remitting MS. I hope the trials are successful. Difficulties swallowing Lindsey Shapiro’s story,”Swallowing problems are common for MS patients, review study finds,” reports nearly half of us have difficulty swallowing. That percentage is a lot higher than in people without MS. The problem is due to MS lesions impacting the function of muscles required for proper swallowing. It’s called dysphagia, and it’s possible that standard dysphagia treatments can help people with MS. Fortunately, it hasn’t affected me, but I’m always on the alert when I’m eating and try not to rush or do something else that might trigger an attack. Tracking MS progression Want to track MS progression even when no relapses or other signs of it occur? Marisa Wexler writes that “Levels of GFAP protein in blood may predict āsilent progressionā of MS.” Progression without outward signs is a problem that people with MS need to be aware of. According to these researchers, being better able to track silent progression can lead to better patient care and the development of new MS medications. Note:Ā Multiple Sclerosis News TodayĀ is strictly a news and information website about the disease. It does not provide medical advice,Ā diagnosis, orĀ treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those ofĀ Multiple Sclerosis News TodayĀ or its parent company, BioNews, and are intended to spark discussion about issues pertaining to multiple sclerosis. Print This Page About the Author Ed Tobias People say to write what you know and Ed Tobias knows about MS. He's lived with the illness since 1980, when he was 32 years old. Ed's a retired, award-winning broadcast journalist and his column combines his four decades of MS experiences with news and comments about the latest in the MS community. In addition to writing his column, Ed is one of the patient moderators on the MS News Today Facebook, Twitter, and Instagram sites. Heās also the author of āThe Multiple Sclerosis Toolbox: Hints and Tips for Living with M.S.ā Ed and his wife split their time between the Washington, D.C. suburbs and Floridaās Gulf Coast, trying to follow the sun. Tags MS News Comments Leave a comment Fill in the required fields to post. Your email address will not be published. Your Name Your Email Your Comment Post Comment
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