After more than 7 years, ‘The MS Wire’ column is moving on
Ed Tobias thanks his readers while saying goodbye to weekly deadlines
This is my 823rd column for Multiple Sclerosis News Today. It is also my last.
Over the past seven and a half years, I’ve written about multiple sclerosis (MS) fatigue and frustration, about treatments and travel, about neurologists (good and bad), stress, and, of course, unpredictable bladders. I’ve shared my experiences about living with MS for 43 of my 75 years, hoping that some of what I’ve learned over those four decades would be useful to you.
You are why I write. Your comments on my columns have been my fuel. You’ve made my day when you’ve written that you can relate to my experiences, thoughts, feelings, criticisms, and suggestions — even when we might have disagreed about a few things.
In addition to writing these “MS Wire” columns, it was exciting to help create the MS News Today Forums, and I was fortunate to have been the first patient community manager for the site’s Facebook page. I’m grateful for the opportunity Bionews gave me to use those platforms to communicate information about MS, and I tried to make sure it was accurate, timely, well sourced, and practical.
I hope that some of what I wrote gave some people with MS the ability to live better lives and, as part of that, to better communicate with their neurologists. Treatment decisions should always be collaborative. The conversation should never be one-way.
But I’m tired. Writing a couple of columns almost every week, under a deadline, has taken its toll on my energy, and sometimes on my mood. It’s time to back off a bit.
I’ll still be writing, but not as often. The MS treatment landscape is changing quickly, so my book, “The Multiple Sclerosis Toolbox,” already needs to be updated. I’ll also continue posting items on my personal blog, “The MS Wire,” a few times a month, and I’m investigating some other things I can do to stay involved with the MS patient community.
Thank you for being a large part of my life for many years and for allowing me to be a little part of yours.
Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, Bionews, and are intended to spark discussion about issues pertaining to multiple sclerosis.
Comments
STEVEN GREENWOOD
Ed,your comments have been very helpful.Thank you.
Ed Tobias
Thanks, Steven. Knowing I helped a bit makes my day.
Ed
Jilly PPMS CC
Hey Ed, you are such an inspiration, thanks for all your work.
Ed Tobias
Thanks, Steve. I'm glad what I wrote was useful. A bientot.
Ed
Star Belcher
I was diagnosed in 1993, your column has been extremely informative and exciting. Thank you for sharing your journey with the MS community!!. God bless you and your family.
Ed Tobias
Hello Star,
I'm very glad my columns have been useful to you and I hope you'll continue to follow what I write on my blog: www.themswire.com.
Happy holidays to you and your family,
Ed
Abbey (UK).
Sending Love and Good Luck wishes to you, Ed.
Your words have helped so many of us over the years.
With heartfelt gratitude, Abbey xx
Ed Tobias
Thanks for your note, Abbey. I'm so glad what I wrote helped you. That's what it was all about for me.
Ed
John McCann
Ed
Let me thank you from the bottom of my heart for all of you time and energy in writing such a brilliant column. It has helped me hugely in my journey though life with MS so far. I wish you well in anything and everything that you do.
As we say in Ireland "go n-eiri an bothar leat".
John
Ed Tobias
Hi John,
I don't think my work has ever been called "brilliant" before, certainly not when I was a student. Thanks so much for letting me know my words have been a help.
Ed
geoff harkess
go well
Ed Tobias
I'll try, Geoff. But I certainly won't go quietly. I'll still be doing some writing on my own blog and with my book.
Thanks,
Ed
Marie Gravelle
Thanks so much - you were very helpful!
Marie Gravelle
Ed Tobias
I'm very glad, Marie. Helping some other folks to live with this disease is why I've been writing.
Ed
Kathy Reagan Young
Ed - your contribution to the MS space has been vast and appreciated. I'm personally grateful for the ongoing support and great information that you've provided us all for years. I'm happy for you that you're valuing your own health enough to recognize a need to step back a bit. I'm happy for the rest of us that you are not saying goodbye completely. I'm glad to have the opportunity to continue to enjoy your posts on the MS Wire. And I'll look forward to reading and promoting the updated version of your book. Get some rest. And thank you so much for all you've done for our community over the years.
Ed Tobias
Hi Kathy,
Your words mean a lot to me, coming from someone else who's regularly telling MS "FU." I feel better, already, operating at a less stressful pace and will holler when the second edition of "The Multiple Sclerosis Toolbox" is ready for a look, which could be a while. Would you be willing to look at a draft and give me your thoughts when I get to that point?
Alison Procter
Thank you. Your columns have helped me with my MS journey.
Ed Tobias
Thank YOU, Alison. I'm delighted what I wrote was useful.
Ed
Jim O'Neil
Thank you for providing your thoughts an the results of your research over the years. I am currently 76, and like you I have lived with MS since the early 1980's. Since retirement I have been involved as a volunteer in the wildlife conservation movement in Canada. Thank you for sharing your MS journey. It has been helpful.
Ed Tobias
Hi Jim,
Thank YOU for your wildlife conservation work. It's as important as anything I've written. I'm glad that my columns have helped you and wish you well as your journey continues.
Ed
Merlene Cook
Ed,
I cannot thank you enough for all the interesting articles and comments you have made. I have always looked forward to your comments. You made the right choice for yourself. Stress is a high trigger for the disease progression. All the best on your journey. Many thanks.
Ed Tobias
Hi Merlene,
Thanks for taking the time to drop a note. I'm so glad you found my columns useful and hope that you'll do well on your MS journey.
Ed
Brian Watson
Ed,
I have found your columns to be very informative and your weekly summaries very helpful.
Thank you.
Joan Dalessandro
You have written thoughtful, empathetic posts that us MSers really valued. There's nothing like the view from the trail up the MS mountain to create community.
Cynthia MacFarlane
Ed , your column has been a great source of information and encouragement.
Thank you
Enjoy your retirement !
Kim Flores
Thank you for your dedication to keep us MSrs Informed!!
Jane Grossman
Thank you so much, Ed. You've helped me with my MS. Grateful. Enjoy your next chapter!
Cay Borduin
I'm glad we'll still get to hear your voice now and then. Best fortune to you.
Ann Finegan
Thank you for your positive and practical approach to living with MS issues. Your suggestions for taking control or finding a workaround for a limitation have been uplifting. I look forward to future updates!
Jeffrey Gullang
Ed....thanks for everything you have done for the MS community. Your messages and insights have been important for those newly diagnosed, those who have been diagnosed for many years, and the support team helping those with MS on their journey.
Thanks for these past 7 years of keeping us informed!
Ilona thomson
Thank you for your dedication and wisdom. I am convinced that we have as much to learn from our fellow MS travelers as from the professionals. Often, a lot more. Again many thanks. ❤️
Virrginia Gill
I have looked forward to your news about MS for quite sometime. Thank you for providing information that I often didn't find elsewhere. You will be missed.
Ed Tobias
I'm glad that my columns were useful for you, Virrginia. I'll still be posting on my MS Wire blog, but not as frequently as here. I hope you'll continue to be a reader.
Ed
Kim Ahmed
Thank you, Ed, for your views and comments. You’ve been very helpful in my MS journey.
Now take that well-deserved rest!!!
Ed Tobias
I'm glad I was a help to you, Kim. Our dog keeps me from sleeping late but, other than that, I'm relaxing a bit. Travel smoothly on your MS journey.
Ed
Norma Johnston
Thank You for all the information you have passed on!
Norma
Ed Tobias
It was my pleasure, Norma. Thanks for your thanks.
Ed
Larry williams
What can be done for a person who has moved to secondary progressive and steadily getting worse with walking difficulty, etc
Ed Tobias
Hi Larry,
There are lots of answers to that but the short one is, several things. There are many medications that can slow progression and others that treat symptoms. There's also physical therapy, exercise, and various diets. All of these are good things to discuss with your neurologist.
Ed
Tony Casella
Thank you Ed for all the work you have done over the last 7 years (I think you said 7). As a younger man, (I was 27) who was officially diagnosed with RRMS in 2015, though my first symptoms were in 2012, your articles and publications have been a source of comfort for me. From the encouraging day-to-day life articles to the more scientifically detailed publications, I can absolutely say that they have made a big difference in my life. Thanks again!
Tony
Ed Tobias
Hi Tony,
It makes my day to know that I made a difference in your life. I tried to write a mix of the personal and the medical, so I'm glad it was a good combination for you. Remember, as I've said before, life isn't about hiding from the storm, it's about learning to dance in the rain.
Ed
Rebecca Taus
Ed: Thank you for all the hard work you put into your column. It has been filled with so much helpful information over the years. MS is a journey I certainly would not have minded missing. However, since I do have to deal with the ups and downs you have been a wonderful resource for helpful information. I am always digging around looking for the newest in research. I believe that will be our salvation in putting this dreadful disease to rest.
The best to you in future undertakings.
Ed Tobias
Hi Rebecca,
Yes, researchers will be our heroes. It's just frustrating that their work takes so long. Thanks for letting me know that my columns have been a good resource for you. That means a lot to me.
Ed
Molly
Thank you. I will miss your insights. Cheers!
Ed Tobias
Thanks, Molly.
Ed
Marybeth Cully
Ed,
We will miss your voice and all your helpful stories. My first thought was, good for him making a really healthy choice. All the best always!
Ed Tobias
Hi Marybeth,
I'm not known for my healthy choices, at least not in my food selection. :-) But it does feel good to step back, a little, from the deadline pressure here. Thanks for letting me know my columns have been a help.
Ed
Karen A. Collins
Ed, Thank you for all your helpful, informative and timely information while having this horrible disease. Enjoy your time cutting back a bit and we thank you.
Ed Tobias
Hi Karen,
Thanks for taking the time to let me know I helped. Helpful, informative and timely was what I'd hoped to be each week...and accurate, of course!
Ed
Jackie Hajji
Ed, you deserve to step back a bit after helping all of us get used to living with MS. I hope you are able to enjoy life while you and your wife chase the sun. Stay well and know that we will miss the difference you've made in our lives!
Thank you, Jackie
Ed Tobias
Hi Jackie,
Knowing I've made a difference makes my day, whether the sun is shining or not. I'll still be writing on my MS Wire blog, of course, so you can still get an occasional dose of "Ed" there.
Ed
Ginny
I'm sorry to hear it, I will miss your columns. But yes, time for a well deserved step back, for you. You have helped so many of us and created a supportive MS community. Luckily for us, we have your archived columns, which we can still access for knowledge and insight. And we'll look forward to those times when you do submit a new column. Congratulations, Ed, on your new path and enjoy yourself this Winter, there in warm, sunny Florida. All the best!
Ed Tobias
Hi Ginny,
It was windy and only about 55 degrees here in FL this morning, but it warms me to know that my columns here have been a help. It's hard to know, sometimes when at the keyboard, whether the work is worth it. Your nice note encourages my fingers to keep typing.
Best regards,
Ed
Chris Jackson-Smith
Ed, thank YOU for all that you've written about - the good, the bad, and the ugly sides of having MS! You will be missed my friend, all the best to you and your wife.
Ed Tobias
Thanks, Chris. It's bittersweet to know that I'll be missed but it's good know that you liked what I was writing. I'm also glad that you agree that MS has a good side, as well as the bad and the ugly. I wish you more good than the other selections.
Ed
Kelli Knight
Good day Ed,
You have been a light in this challenging MS world and you will be missed. I am happy for and totally support you from way down here in Texas. I wish you well in your next chapter of this book called Life. Take care and my very
Best regards,
Kelli "LEGGZ" Knight
Ed Tobias
Hi Kelli,
LEGGZ? I bet there's a whole story behind that nickname! Thanks for your well-wishes from deep in the heart of Texas.
Regards,
Ed
Judy Slater
Ed, I always looked forward to reading your columns. They will be missed. As someone older with MS, I can identify with what you are going through. I understand your fatigue and thank you so much for all your efforts to help us by providing useful information.
Ed Tobias
Thanks for your thanks, Judy. I'm glad you enjoyed the columns and that they were useful. Knowing that puts a smile on my face.
Regards,
Ed
Kathryn Hewett
Ed, thanks for your weekly article. We have the same MS Neurologist! Enjoy that freed up time and lower stress from deadlines.
Ed Tobias
Hi Kathryn,
Thanks for your note. You're in good hands with Dr. C, whether or not you're reading my column. I probably won't see her again until my yearly check-up next June, so please say hello if you see her before then.
Ed
Catherine Kelly
Thank you for being a beacon in the middle of my MS storms. I've been reading you since I was diagnosed 8-8-08. I never took the time to respond to your wisdom, knowledge, strength or humor before. Reading today's headline brought me to tears because it felt like I was reading a dear friend's obituary. I allowed myself to release the torrent of tears, and after blowing my nose several times and wiping away the river of tears I was finally able to read the full article. I'm relieved to know that I'll still be able to get my "Ed" fix from your blog. Thank you for sharing your incredible writing style all these years.
Ed Tobias
Hi Catherine,
No tears in my eyes. Your note brought a big smile to my face. I'm delighted I was able to share a few things about MS over the years and that I was able to do it in a way that was appealing. I'm looking forward to giving you your fix via my blog, although it won't be as frequently as you got it here. So smile, no tears.
Ed
Mary
I will miss your columns so much. You have been a great guide for me as an older MS patient. All the best to you.
Ed Tobias
Thank you, Mary.
Ed
Nancy McBride
I will miss your columns Ed. Thank you for all you have done and especially for writing about the TravelScoot years ago. It has really improved my quality of life and dog walks!!
Ed Tobias
Hi Nancy,
I'm so glad that a column helped improve your QOL. I'm sure your dog also appreciated it. And now, it's time to walk my dog...again. Glad I'm not on a deadline for a column :-).
Ed
Jeff
I understand. Take a break; kick back, relax and cruise for a while. Writing is both stressful and very cathartic. I've appreciated your column, as has so many.
I'll check out your web page from time to time just to see what you're up to.
Again, thanks.
Ed Tobias
Hi Jeff,
Thanks for your note and I'm glad you liked what I was writing. I'm also glad you'll keep an eye on the blog. I need to hang onto some of my audience :-).
Ed
Indulge
Thankyou Ed, your comments have increased my understanding of this disease and provided directions to resources etc, plus you have helped " make my day" also. Good luck with all your future endeavours. You do indeed make a difference. Indulge.
FlyBoy
Hello Ed, thank you for your insights and perspectives over the past years, you will be missed. God willing there will continue to be medical advancements to help all of us battle this disease. I recently turned seventy-seven years old and was diagnosed at age thirty-eight, similar to you it has been an interesting journey.
Two things I have learned for certain, do not give up hope and never, ever, lose your sense of humor!
Ra
Job well done- you deserve a break.
Paul
Ed, your regular columns have been a constant help for me since my diagnosis a bit more than three years ago. We don't know each other but I read yor articles very often. You helped me get through the initial shock of the diagnosis, then through the start of my treatment and now through the hope of a definitive cure. Your column have constantly given me hope in this time of my life. Now that I hear you're slowing down on the writing, I want to take a second to tell you how crucial it has been for me. Thank you for everything, and please do enjoy this well deserved rest! :)
Paul
Ruth Hoham
SNIFF - sorry to hear this news 😢. You’ve been very helpful with your columns!
Go live fearlessly….
Claudia C
Thank you, Ed. I've enjoyed your columns!
Charlotte Bahn
Thank you! Best wishes!
Nancy Bergstrom
Ed, thank you for your writing. If has been a pleasure and informative to read your insights. Enjoy! Nancy
Kim Anne
Ed, I have much appreciated your columns — thank you for giving so much of yourself to supporting the rest of us on our MS journey. I’m glad to know I can still look forward to sometimes reading you elsewhere. Take care of yourself!
Judith S Hillock
Thanks for sharing your journey..
RITA WHITE
I have not got MS but have read your columns with interest as being a retired Nurse trying to keep up with the latest news to help with a member of my family who was diagnosed i 2015.
I have also followed Dr Bolster, Dr Gavin G and few other neurologist who have helped me to understand this unpredictable condition.
Thank you Ed for your comments and hope you can have more time to relax.
Jack
Thank you ED.
Carolyn
Thank you. Sad to see you go.
MrswithMS
Job well done, my friend. Enjoy your rest.
MADELINE l NEWTON
i can understand where you are coming from for the energy is priceless ..you have often in many ways helped to understand things about MS ...thank you and enjoy more of the day with what ever it is you would like to do ...love and happiness...
Belinda
Ed, you have been a beacon of hope often. Your dedication to helping all of us has helped more people than you can even imagine. Thank you!
Retta Yorns
Ed
Congratulations on stepping away to make taking care of you your top priority. Although it is comforting to know that you won’t be gone completely but will still impart, occasionally, your very thorough research & often personal observations. Enjoy the sun.
EVELYN L DROZEN
Ed, your column will be missed. Good luck to you as you continue your MS journey.
Annette Calderon
Thank you for helping show that people was MS can keep living and thriving. Be well and thank you for helping this community with your writings.
Ed Tobias
It's been my pleasure, Annette. Thanks for taking the time to drop a note.
Ed
Deborah Mills
Thanks Ted for. all your columns. My MS story is very similar to yours Starting in 1985 and changing into Secondary progressive just 3years ago. When asked how I am, I say doing well I’m still walking and taking. Sometimes feeling guilty for not being worse. I know how lucky I am. I do have problems with fatigue, bladder issues,numbness in my legs,hands feet and face. I have the Ms hug most of the time . Sometime worse than others.
I’m married with two girls. I have a wonderful husband and very supportive girls and family.
Sorry it took me so long to connect but I typing isn’t always easy,one finger has become more acceptable. Just another thing Ms has me doing differently. I won’t complain about all my problems.
You’ll be missed by all us quiet readers.
Best of luck wherever you land.
Debbie
Ed Tobias
Hi Debbie,
Thanks very much for breaking your silence and taking the time to write. Your comments mean a lot to me. When someone asks me how I am I frequently answer, "I'm slow, but I still get where I'm going." That's the attitude I've tried to display when writing my column. I hope you'll drop by my MS Wire blog once in a while, even if you just lurk in the background. But, your comments are always welcome.
Ed
Kathleen Fulghum
Thank you for all your wisdom, Ed, and careful news assembly. I've definitely recommended your column over the years.
Ed Tobias
Hi Kathleen,
Thanks for your note, for reading, and for recommending my column. I hope you'll become a reader of my MS Wire blog posts (and maybe even my book) :-). It's really nice to know that you, and others, have liked what I've been writing.
Ed
Deborah Lattimore
Thanks for sharing your thoughts and experiences,,they have helped me a 74 year old.
Ed Tobias
Hi Deborah,
I'm glad what I've written has helped. Remember, 70 is the new 50. Those of us in our 70s can still rock 'n roll, at least in our minds.
Ed
Austin Dial
Thanks Ed. Take it easy and well wishes!
Ed Tobias
Thanks, Austin. I'm not very good at taking it easy, but I appreciate your well wishes.
Ed
Joellen Hoelting
I appreciate your dedication to this site. Since I don’t know anyone with MS, I rely on this site for new information. I live in an assisted living, and some of the nursing staff understand MS. Other residents have become aware of my disability & some know how I need help before I do! Thank you.
Ed Tobias
Hi Joellen,
I may be leaving but there's still a lot of good information on this website, both news articles and columns. I appreciate your thanks.
Ed
Debbie O'Rourke
Always enjoyed reading your column Ed. Gained so much information from you. Thank you for all you have done. I am so grateful.
Ed Tobias
I'm grateful that you're grateful, Debbie, and really glad that the columns were useful to you. Thanks for your note.
Ed
Tom A
Good Luck to You. Thanks for letting me post.
Ed Tobias
Thanks, Tom.
Ed
M. Davis
Thanks for all the great information you’ve passed on to me. You have made my life easier.and enlightened me about new products that have really improved my life.
I wish you all the best,
M. Davis
Ed Tobias
I'm so glad what I wrote was useful to you. Knowing that something I wrote has bettered your life makes my day.
Ed
Wanda Wynder
Ed, Thank you for your service and commitment to better the lives of so many in our MS community! I appreciate the work you've done through your writing talent.
Wanda
Ed Tobias
Hi Wanda,
Thanks for taking the time to write your note. We're all in this together and I'm glad that I've been able to help through a little bit of writing.
Sandy Power
Thank you Ed for your time and commitment to helping our community to deal with the challenges of MS, I really appreciate it. I wish you well in your future endeavors, you certainly deserve lots of time for yourself. Sandy Power
Ian
Ed,
Remember that sloth is a deadly sin and the Devil finds work for idle hands to do! But I suppose you’re entitled to a bit of a break.
I was in Florida (Englewood) last month on holiday (from the U.K.) and should met up with you.
Thanks for all your efforts.
Best wishes
Ian
Ed Tobias
Hi Ian,
I'll certainly remember that!!
Yes, you were right up the road....well about 45 minutes or so. Sorry you couldn't stop by but I'll come knocking on your door if I ever get to the UK again.
Thanks for being reader.
Ed
Catherine
Ed, thank you so much for your columns. I have enjoyed reading them, and I hope you will enjoy the extra time you will have going forward. Take care!
Ed Tobias
Hi Catherine,
I'm glad you enjoyed what you read and I hope some of it was useful to you.Thanks for taking the time to let me know.
Ed
Bram Platel
Thank you for your immense contribution over the years!!!
Ed Tobias
Hi Bram,
I never thought the word "immense" would be used in relation to me but I'm certainly pleased that you think what I've written rates it. I just hope some of my columns were useful. If so, I'm a happy guy.
All the best,
Ed
sharon stahlberg
I want to thankyou as a specialist MS Occupational Therapist here in Denmark with over 20 years working with patients with MS your columns have been more than just useful,you have directed me to new research,articles and other more personal journeys that I have given further to my own patients with great success. Time is limited in my job to find new info/ideas and you have helped tremendously. So a big thankyou from me and all my Danish patients at my hospital.
Ed Tobias
Hi Sharon,
I'm so glad that you thought my columns were useful, especially since you're a healthcare professional. I hope you'll continue to follow what I write on my blog, www.themswire.com. BTW, my wife and I had a very enjoyable, but too brief, visit to Copenhagen a few years ago. MS shouldn't keep someone from exploring the world!
Happy holidays,
Ed
Heather S Ryan
Ed,
You have helped me keep up-to-date on what's happening related to ms for so many years - I thank you often for your accurate and well written newsletters; now, I want to THANK YOU directly...you have made a huge difference in my life. I first read about the Neural Sleeve in your column, and ordered it and waited for it to come to market. It is the best piece of ms technology I have ever bought. I also use a standup rollator (the second best piece of ms tech,) and if you ever need one, I'd be happy to share my expertise on them with you. (I have advised more people about rollators than I have fingers and toes.)
I am happy you are giving yourself more of a break, but I am thrilled you will write an occasional column. May you get into more, good trouble, as you spend a bit more time doing, rather than writing. And if you're ever heading to Boston, feel free to give me a yell. ENJOY!
Heather
Ed Tobias
Hi Heather,
Thanks for your very kind note. I'm thrilled that I could help make a difference in your life and I hope the neural sleeve keeps you on the move. Interestingly, I just happen to be sitting here with one on my left leg, waiting to speak with a Cionic PT via their app. I'm testing the sleeve as part of a study about Cionic's ability to train someone to use one via a video call. I've only had it about ten days, so I'll reserve judgement for now. But, after I've used it for a longer period of time, I'll be writing about it in my blog. Please keep in touch via [email protected] because I'd like to be able to include the experiences of others, as well as my own, in what I write.
All the best for the holidays,
Ed
Robin
I wanted to thank you for your column and wish you well on your retirement. I have appreciated your writing over the years.