Hidden symptoms of migraine pain and MS make self-advocacy important

A headache can come and go. You take a break, drink some fluids, and eventually it fades away. But a migraine is not that kind of a headache.

Migraines are not “bad headaches.” They are a neurological condition that can affect how someone sees, thinks, feels, and functions. A migraine can bring much more than pain, and can include sensitivity to light or sound, nausea, dizziness, visual changes, difficulty concentrating, and a feeling of being completely drained. Sometimes the migraine itself is only part of the experience. Recovery can take hours or even days.

I get migraines and I live with multiple sclerosis (MS), which also affects my nervous system. With both conditions, I contend with symptoms that others may not see, adding another layer of unpredictability to everyday life.

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Importance of advocating for yourself

Someone may look fine while silently trying to manage intense symptoms. They may need to cancel plans, leave an engagement early, or need time in a quiet, dark room. This might look like unreliability or avoidance, but migraines are not a choice. They are not something someone can always push through.

This is why self-advocacy is an important part of managing life with chronic illness. That might mean telling a healthcare provider about new or changing symptoms. It might mean tracking migraine patterns to identify possible triggers. It might mean communicating with loved ones, co-workers, or friends about why you need accommodations or extra rest.

People with chronic illnesses are often encouraged to focus on what they can still do. That mindset can be empowering, but it is equally important to acknowledge the moments when your body needs care. Rest is not a setback. Adjusting your plans is not a failure. Listening to your body is part of managing your health.

For those living with MS and migraines, there is no single experience that defines what these symptoms look like. Some people may experience migraines often, while others may only encounter them occasionally. Some may notice connections between migraines and stress, sleep, medications, or other factors.

Adding migraines to your MS journey can feel frustrating and overwhelming, but understanding the connection can help you feel less alone. Sometimes, the most important step in managing an invisible symptom is simply having it seen.

Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, Bionews, and are intended to spark discussion about issues pertaining to multiple sclerosis.