Can January March? No, but April May! OK, well, I thought it was funny. Nothing beats the January blues like bad puns, right? Let’s face it. For most people, January sucks. The end of the year is full of excitement. There are…
DISabled to ENabled — Jessie Ace
Jessie is the host of the DISabled to ENabled podcast and author of the “ENabled Warriors Symptom Tracker” book. She’s also an illustrator working with MS charities and magazines worldwide. She’s interviewed paralympians, radio DJs, chronic illness bloggers, marathon runners, and more. Jessie, based in the U.K., was diagnosed with MS at 22 years old and was told by a doctor to “go home and Google it” to find out what MS was for herself. Her own experience of being newly diagnosed so young was negative and scary, so she fills the internet with positivity for other anxious MS Googlers to stumble upon.
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It’s with a heavy heart that I write this. I don’t want to, but I have to do what’s right. This will be my last column. Lately, things have been crazy busy for me, with a mix of expected events, such as moving to a new home, and a few unexpected…
“Ooh, I found some of your artwork in the loft. Did you still want it?” My mum’s beautiful, melodic voice sang through the phone during our regular chat. “Heck yes! Can I pick it up tomorrow?” I replied. I didn’t know what had happened…
How do you feel at the start of a new year? I love it, because I enjoy defining my intentions and setting my goals for the coming days. Everything seems fresh and new, and the possibilities are endless. I make a point to avoid New Year’s resolutions, though.
“She smelled amazing!” I commented to my oblivious husband as we walked our muddy dog back home after our daily walk. “Did you smell that lady as she walked past us?” Unfortunately, the lady was too far gone for me to awkwardly run up and ask…
What would happen if you switched off all of your devices for a day? Phones, tablets, laptops, TVs — all of them switched off. Could you do it? How would it feel? What would you do instead? My…
For many of us, odd symptoms and strange feelings may fill our lives for years before we are diagnosed with multiple sclerosis. Others may be diagnosed more quickly, which flips our world overnight. I was diagnosed in three…
“I’m too hot!” My brain was turning to mush as my body seemed to grow heavier. I could feel the energy draining out of me. This isn’t an uncommon complaint when the weather grows hotter during the summer. Most people…
A pet is the most loyal companion a person can have. I’m currently sitting in my dad’s home office and typing away on my laptop. It’s nice to have a change of scenery. I brought my tiny dog, Lucy, with me as usual.
The end of the year is incredibly difficult. We already have to put up with more than others because of our MS. In addition to that, the weather changes, the clocks turn back, and there is less sunlight, meaning vitamin…
Annually, I’m frustrated by the changing of our clocks due to the end of daylight saving time. It seems so straightforward: Time either goes backward or forward by an hour. That’s it. It doesn’t seem so challenging to comprehend. Or does it?…
Did you know that there are various types of fatigue, and each makes us feel slightly different than the others? A long while ago, I was at an MS seminar listening to a nurse talk about fatigue. She…
It doesn’t take much for us to feel uncertain. It could be the result of a new symptom or doing something you’ve never before done, such as attending a telehealth appointment. Maybe the election causes you uncertainty. Perhaps current events or new…
Finding an understanding community makes such a difference to people diagnosed with multiple sclerosis (MS). Our partners, families, children, and friends do their best to listen and empathize, but at the end of the day, they can only empathize so much. Unless they have an illness…
When I was first diagnosed with MS, I didn’t have a choice about what disease-modifying therapy (DMT) I could take. My neurologist held up his hand and pointed one by one to each finger, with each…
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