July 8, 2022 Columns by John Connor Living With MS: ‘That Was the Week That Was’ Truly Awful Monday Unlike Prince, my Monday wasn’t manic. It was barreling along quite sedately until my wife, Jane, casually noted, “Remember, you’ve got a dental appointment on Wednesday morning.” Er, no, I hadn’t remembered. It was somewhat churlish of me, as I’d been waiting for this appointment for nigh on…
January 28, 2022 Columns by John Connor Having My Own ‘Long Bad Friday’ In truth, my long, bad Friday started on Thursday afternoon at 5 p.m., although it seems wrong in the middle of a black, midwinter night to still call it afternoon. Still, if you live in Alaska, summer nights never even start! (OK, I’ll stop musing about the vagaries of Earth’s…
August 16, 2021 Columns by Ed Tobias MS News That Caught My Eye Last Week: Mavenclad, Sativex, Mistreatment, Patient Survey Trial Will Test Mavenclad for Advanced Progressive MS I often think that researchers have forgotten about people whose MS has progressed to an advanced stage. But MS patients who have moved into a wheelchair deserve treatment with a disease-modifying therapy as much as those who are just beginning their…
July 23, 2021 Columns by John Connor ‘He’s Fallen in the Water!’ Any British comedy aficionados among you will know “He’s fallen in the water” is the most famous of all the innumerable catchphrases of “The Goon Show.” That show was the root of Monty Python and every bit of the new wave of comedy that swept through our country.
June 18, 2021 Columns by Jamie Hughes You Don’t Always Need to Fix It I don’t know if you’ve noticed, but most people don’t like a problem without a solution. If something isn’t working correctly, they’d rather fix, alter, or throw it out and start all over than live with “wrongness.” Now, that’s great when it involves garage door openers, burnt-out lightbulbs, or shoddy…
February 26, 2021 Columns by Ed Tobias The Disturbing Trend of Caregiver Abuse in the MS Community This is disturbing and, unfortunately, not surprising. More than 50% of people with advanced multiple sclerosis reported they’ve been mistreated by a family member or friend who cares for them, according to the results of a survey published last September by researchers at the University of California, Riverside. Much…
February 19, 2021 Columns by John Connor Here’s What Our Alternative Valentine’s Day Is Like With MS Ah, timing. It was early Saturday afternoon on Feb. 13, and my wife, Jane, had just flushed the toilet for me. The doorbell rang — my flowers had arrived. An early romantic gesture. On the morning of Valentine’s Day, Jane countered with hers, a bottle of Laphroaig Quarter Cask…
May 31, 2017 News by Joana Fernandes, PhD #CMSC17 – Many Caregivers of MS Patients Say the Disease Exhausts Them Physically and Emotionally Most people who care for multiple sclerosis (MS) patients are happy to be caregivers, but they admit that their own emotional and physical health — as well as their financial security — suffer as a result. That’s according to the online vsMS Survey, supported by Sanofi Genzyme, which assesses the physical…
