living with MS

I have a friend who’s truly blessed. Aside from the typical struggles that come with being an adult, he has few problems. Seriously. Neither he nor a loved one has had any major medical issues. No one in his immediate family has passed away yet, and while he’s not rolling…

Photo courtesy of Shane Nicolich Day 21 of 31 This is Shane Nicolich’s story: I was on my first multiple sclerosis (MS) treatment for six years but experienced bad side effects. That sucked, since I’m a dishwasher at a busy restaurant and am on my feet all day.

Welcome to “MS News Notes,” a Monday morning column in which I comment on multiple sclerosis (MS) news stories that caught my eye last week. Here’s a look at what’s been happening: Study shows Ocrevus lowers risk of MS progression This seems to be just what the doctor ordered,…

Photo courtesy of Angie Gensler Day 20 of 31 This is Angie Gensler’s story: As a mom, wife, and business owner, I have always prided myself on juggling my crazy life. I was diagnosed with multiple sclerosis (MS) 18 years ago on Christmas Eve after suffering from blurred…

Photo courtesy of Ashley Ratcliff Day 19 of 31 This is Ashley Ratcliff’s story: Fatigued, sore, and tingling, yet determined. Every Friday I fight the urge to surrender to my ever-long list of to-dos and the voice in my head telling me to sit this one out. Instead,…

Photo courtesy of Jarika Winfield Day 18 of 31 This is Jarika Winfield’s story: My name is Jarika and I’m a 35-year-old queer, two-spirit person. My ethnic backgrounds are Metis and Ukrainian. I live in the unceded territory of the the Musqueam, Squamish, and Tsleil-Waututh people (aka…

If you noticed my sudden disappearance, it wasn’t because I was sacked. Surprising, I know. Just “MS MIA” — missing in action with multiple sclerosis. While raving in the hospital, I was suddenly moved to my own private room. In Britain’s National Health Service (NHS), this could only mean…

Choosing the best disease-modifying therapy (DMT) to treat your multiple sclerosis (MS) can be a tough decision.  When I was diagnosed with MS way back in 1980, it was easy. There were no DMTs to choose from. The first three — Avonex (interferon beta-1a), Betaseron…

Photo courtesy of Robert Munns Day 17 of 31 This is Robert Munns’ story: Hello! My name is Robert and I have multiple sclerosis (MS). I was diagnosed in 2008 and spent the next few years not really committing to life. I sometimes say that MS used…

I may not be able to turn in circles like a dog anymore, but I still have a few bedtime routines. Before I had an intrathecal baclofen pump, multiple sclerosis-induced spasticity would wake me up multiple times during the night. Whenever that happened, it was next to…

The Kanabo Group has established what it claims is the U.K.’s first online medical cannabis clinic to help people with multiple sclerosis and other conditions manage chronic pain. Called Treat It, the clinic is expected to help those whose conventional pharmaceutical medicines are ineffective or those…

A new podcast series called “A Campbell Never Quits” is telling the life story of Tyler Campbell, a patient advocate who was diagnosed with multiple sclerosis (MS) during his junior year at college. “The podcast aims to appeal to sports fans, people living with MS, and anyone who appreciates…

Photo courtesy of Scarlett Ward Day 16 of 31 This is Scarlett Ward‘s story: My name is Scarlett Ward, and I’m 29 years old. I was diagnosed with multiple sclerosis (MS) when I was 27, after a particularly nasty relapse left me in the hospital,…

Chloe Murphy fought for years to understand the cause of her physical and mental struggles. (Courtesy of Chloe Murphy) Day 15 of 31 This is Chloe Murphy‘s story: I am 27, from Cork, Ireland. I was diagnosed with multiple sclerosis in April 2021, but truly…

Nassira and her husband, Dwayne Howse. (Photo courtesy of Nassira Powell) Day 14 of 31 This is Nassira Powell’s story: I was diagnosed with multiple sclerosis (MS) in 2018. Like many, I knew nothing about the disease and was left with many questions. My first appointment with a…

Photo courtesy of Kerry Walkins Day 13 of 31 This is Kerry Walkins‘ story: At 36, I was diagnosed with relapsing-remitting multiple sclerosis. Looking back now, I realize I had symptoms for a few years before that. In early 2021, I began to…

Photo courtesy of Amber Cunningham Day 12 of 31 This is Amber Cunningham‘s story: Hi, I am Amber. I was diagnosed with multiple sclerosis (MS) in April 2019, a day I will never forget. I woke up on my daughter’s birthday and couldn’t see out…

Photo courtesy of Julie Wigley Day 11 of 31 This is Julie Wigley‘s story: In 2010, I started having numbness in my legs, specifically when I’d look down. I didn’t think much of it, but mentioned it to my primary care doctor during a…

You may not have heard of Judy Heumann, who died March 4 at the age of 75. Although she’s not directly connected to the multiple sclerosis (MS) community, you should know about her. Everyone who lives with a disability owes her a great deal. At just 18 months old,…

Photo courtesy of Cassidy V. Chapman Day 10 of 31 This is Cassidy V. Chapman’s story: I was diagnosed with relapsing-remitting multiple sclerosis in January 2004 at the age of 22, the day before my 23rd birthday. It happened during my first year of law school. Still,…

A little over three years passed between my multiple sclerosis (MS) diagnosis and my medical retirement from the U.S. Army. Even before the diagnosis, I knew something was wrong and had taken a desk job while searching for the reason. Since I was behind a desk in a…

Photo courtesy of Mohit Ojha Day 9 of 31 This is Mohit Ojha’s story: Life before MS: I was born into a traditional Indian family, so my childhood was a very typical one until the 10th grade. After that, I didn’t feel like studying so I dropped out of…

The “invisible” symptoms that are common with relapsing-remitting MS and many other chronic illnesses can be the bane of our lives. It’s difficult enough to manage them, as they’re constantly fluctuating like a changing tide. But in some ways, it’s even more difficult to explain them to…

Photo courtesy of Mia Suite Day 8 of 31 This is Mia Suite’s story: On the morning of March 10, 2020, I received one of the most gut-wrenching diagnoses of my life. The day started off normal. I had a 9 a.m. appointment with a neurologist to go…

Following a Mediterranean diet may reduce the risk of cognitive problems, including with memory and thinking skills, in people with multiple sclerosis (MS), a preliminary study suggests. The diet includes a high intake of fish, fruits, legumes, vegetables, and healthy fats (olive oil); and a low intake of meat,…

Photo courtesy of Derlene McPhail Day 7 of 31 This is Derlene McPhail’s story: Before my multiple sclerosis (MS) journey began, I worked for 15 years as a healthcare support worker for patients living with MS. The first time I heard the words multiple sclerosis, I had…

Welcome to “MS News Notes,” a Monday morning column in which I comment on multiple sclerosis (MS) news stories that caught my eye last week. In this column, I’ll be highlighting more MS News Today articles from the Americas Committee for Treatment and Research in Multiple Sclerosis…

Can Do MS has three missions for people with multiple sclerosis (MS) and their care partners — providing education about life with the disease, building connections among people, and activating them to be proactive about managing their condition. “Those are the three pillars that our programs are built…

Photo courtesy of Susan Payrovi Day 6 of 31 This is Susan Payrovi’s story: As a young person, physician, and new mom, I never expected to get sick. In fact, I considered myself to be the picture of health. What I failed to see were all of the factors…

Photo courtesy of Natalina Larsson Day 5 of 31 This is Natalina Larsson’s story: My name is Natalina. I’m 35 years old and live in Sweden. I was diagnosed with multiple sclerosis (MS) in June 2021. My MS symptoms are balance difficulties, dizziness, physical fatigue, tremor, spasticity in…