March 18, 2024 News by Andrea Lobo, PhD MSAA, Lumina partner to provide MRIs to MS patients in Ohio Lumina Imaging has partnered with the Multiple Sclerosis Association of America (MSAA) to provide affordable brain and spinal cord MRI scans to multiple sclerosis (MS) patients. The partnership makes Lumina the preferred provider for the MSAA’s MRI Access Program in northeast Ohio. The program is designed…
February 28, 2023 News by Mary Chapman Personal stories of life with MS highlight March awareness month From participating in educational programs to sharing stories that illuminate the multiple sclerosis (MS) experience, people nationwide are poised to participate in MS Awareness Month, observed each March. Multiple Sclerosis Awareness Week starts on March 12. The disorder, thought to affect about one million U.S. residents, can cause…
April 22, 2022 News by Mary Chapman MSAA Plans In-person and Virtual Events for May The Multiple Sclerosis Association of America (MSAA) is presenting virtual and in-person ways to support its eighth annual Improving Lives Benefit, which will showcase more than a half-century of efforts for the multiple sclerosis (MS) community. The virtual event, themed āTogether at Home,ā will be held at…
June 17, 2021 News by Mary Chapman $1M Gift Will Expand Adventure-based Healing Program A $1 million gift from Velocity Global will help expand First Descents, an adventure program for young adults living with multiple sclerosis (MS) or other serious chronic conditions. The money will go toward program development and is expected to help First Descents reach 1,000 MS patients over…
May 3, 2021 News by Mary Chapman MSAA Hosts First Virtual āImproving Lives Benefitā on May 13 Despite the current challenging times, the Multiple Sclerosis Association of America (MSAA) will host its annual Improving Lives Benefit this year, albeit virtually. The May 13 event will spotlight the nonprofit organizationās community efforts over more than 50 years. The affair will be hosted by multiple sclerosis (MS)…
March 5, 2021 News by Mary Chapman It’s March – Make Time for MS Awareness Note: This story was updated March 8, 2021, to note that tickets for MSAA’s Virtual Art Tour are still available for purchase.Ā Activities are underway to mark Multiple Sclerosis Awareness Month, set aside each year to call attention to the neurodegenerative disorder estimated to affect almostĀ 1 million U.S.
January 6, 2021 News by Marisa Wexler, MS MSAA Hosting 8th Webinar on COVID-19 and MS The Multiple Sclerosis Association of America (MSAA) is hosting a webinar in which experts will discuss the COVID-19 pandemic and its impact on multiple sclerosis (MS). The webinar, “What You Need to Know About COVID-19 and MS: Program 8,” will take place at 8 p.m.
December 22, 2020 News by Mary Chapman MSAA Asks Patients to Take Survey Into Opinions on Clinical Trials People with multiple sclerosis (MS) are encouraged to complete a survey aimed at understanding the experiences and expectations of those with a chronic illness who have either participated in a clinical trial or may in the future. The questionnaire was created by Kayentis, an electronic solutions company, in…
November 2, 2020 News by Teresa Carvalho, MS People With MS Invited to Submit Their Art for 2021 MSAA Art Showcase People with multiple sclerosis (MS) are invited to submit their artwork to the Multiple Sclerosis Association of America‘s (MSAA) annual Art Showcase. The online event aims to share the work of artists with MS and their life stories. Applications are opened till Dec. 14 and are restricted to…
July 16, 2020 News by David Melamed, PhD MSAA Opens ‘COVID-19 and MS Pathfinder’ Online Informative Platform The Multiple Sclerosis Association of America (MSAA) teamed withĀ Wondros, a creative production company, to launchĀ COVID-19 and MS Pathfinder, an onlineĀ platform offering theĀ multiple sclerosis (MS) community accurate and regularly updated information to help in safely navigating the COVID-19 pandemic. Topics covered range from managing MS symptoms…
May 26, 2020 News by Vanessa Pataia MS Association of America Opens COVID-19 Webinars, Other Resources to Community The Multiple Sclerosis Association of America (MSAA) is opening its resources to people with multiple sclerosis (MS) duringĀ COVID-19, including a webinar series on the pandemic and easier access to its support programs, the association…
March 17, 2020 News by Larry Luxner TV Personality Montel Williams Launches ‘My MS: Second Act’ A little over 20 years ago, Montel Williams learned once and for all that he had multiple sclerosis (MS). But that determination should have happened long before then, said the well-known TV personality ā whoās made fighting the neurodegenerative disease his lifeās mission. Williams, 63, was the star attraction…
March 11, 2020 News by Mary Chapman MSAA Events Focus on Mind-Body Connection to Mark MS Awareness Month The Multiple Sclerosis Association of America (MSAA) is offering a host of educational activities on wellness strategies that address both the mind and body in its efforts to mark Multiple Sclerosis Awareness Month. Each year, a month is set aside to heighten awareness of multiple sclerosis (MS),…
February 3, 2020 News by Marisa Wexler, MS MSAA Marks 50th Anniversary with Benefit Evening, New Logo and More The Multiple Sclerosis Association of America (MSAA) is celebrating 50 years of work and dedication to improving the lives of people affected by multiple sclerosis (MS). Some changes are underway and initiatives being launched to commemorate this milestone. MSAA, a nonprofit organizationĀ founded in 1970, aims to provide…
October 18, 2019 News by Alice MelĆ£o, MSc MS Mindshift Brings Brain Health Effort, ‘Brain Bulb’ Hot Air Balloon to Atlanta Area Festival The MS MindShift: A New View of MSĀ initiative is continuing its travels to raise awareness and educate people about brain health in multiple sclerosis (MS), with the next stop for its āBrain Bulbā hot air balloon the Owl-O-Ween Hot Air Balloon FestivalĀ in Kennesaw, Georgia. This weekend’s event, Oct. 18ā19,…
July 26, 2019 News by Joana Carvalho, PhD MS MindShift Campaign Uses Balloon Festival to Raise Awareness About MS Brain Health Celgene and the Multiple Sclerosis Association of America (MSAA) are working together to bring the “MS MindShift: A New View of MS” campaign, which is raising awareness about the importance of brain health in multiple sclerosis (MS), to the 37thĀ AnnualĀ QuickChek New Jersey Festival of Ballooning in Readington,…
July 10, 2019 News by Mary Chapman My MSAA Community Marks 3 Years of Supporting and Connecting People with MS This summer marks three years since the Multiple Sclerosis Association of AmericaĀ (MSAA) launched its free online forum, designed to support, inform, and uplift members of the multiple sclerosisĀ community.Ā The organization encourages all affected by MS to make use of this resource. Called My MSAA Community, the platform…
June 5, 2019 News by Mary Chapman 12-part Video Series, ‘Understanding Multiple Sclerosis,’ Available Online In partnership with @Point of Care, the Multiple Sclerosis Association of America (MSAA) is offering a comprehensive educational video series about multiple sclerosis (MS). The concise, 12-part series ā titled āUnderstanding Multiple Sclerosisā ā Ā features neurologist and MS expert Michelle T. Fabian, MD, and covers…
May 6, 2019 News by Mary Chapman Artists and MSAA Mark 10 Years of Showcasing Original Works A bird in flight, a field of flowers, a dog surrounded by butterflies, a portrait of a toddler ā they’re all part of the artwork by the multiple sclerosis (MS) community done for aĀ Multiple Sclerosis Association of America (MSAA) showcasing program, now marking its 10th year. Through its…
March 28, 2019 News by Larry Luxner MS Patient Groups React Favorably to Mayzent Approval, But Question Therapyās Price Tag National organizations that represent patients with multiple sclerosisĀ (MS) welcome the U.S. Food and Drug Administration’s March 26 approvalĀ of Novartis’Ā oral therapy MayzentĀ (siponimod) ā but they complain that, at $88,500 per year, the treatment is overpriced. The Multiple Sclerosis Society of AmericaĀ (MSSA) is clearly upbeat about the…
March 28, 2019 News by Alex Coletta Fatigue is Normal When Caring for a Loved One with MS but it’s Unsustainable, Expert Says Caring for a loved one with multiple sclerosisĀ (MS) can be exhausting, resulting in crankiness, sleepless nights, and excessive sadness, but many resources are available to help deal with the daily challenges of caregiving, said social worker, therapist, and wellness educator Lara Krawchuk. āCare partner fatigue is a normal and…
March 22, 2019 News by BioNews Staff Caregivers of MS Patients Should Not Neglect Own Needs, Expert Says in MSAA Webinar People who take care of their own needs while caring for a loved one with multiple sclerosis (MS) are more likely to be successful, and enjoy a mutually rewarding relationship. And the best way to ensure that partnersā needs are met is for them to communicate openly and often.
March 19, 2019 News by BioNews Staff Sex and Intimacy Is Focus of MSAA Webinar Sex and intimacy are good for people with multiple sclerosis (MS), just as they are for anyone without the disease. And while fear of talking with a partner about possible sexual challenges created by MS is perfectly normal, there is help available to deal with potential problems. Thatās according…
March 10, 2019 News by Larry Luxner MS Patients Share Their Stories at NYC Event Featuring Montel Williams After months of preparation with storytelling experts, three ordinary Americans with multiple sclerosis (MS) took the stage in New York late last year to share their MS journeys. The three joined TV personality Montel Williams at an event inaugurating My MS: Second Act, a joint effort co-sponsored by…
October 18, 2018 News by Alice MelĆ£o, MSc #ECTRIMS2018 – Role of Brain Atrophy in MS Progression Poorly Understood by Patients, MSAA Survey Finds Although brain atrophy ā the loss of brain volume ā is an increasingly important measure in multiple sclerosis trials and treatment outcomes, MS patients have a limited understanding of its role in disease progression,Ā a survey reveals. This finding was detailed in the presentation ā…
June 29, 2018 News by Patricia Silva, PhD Updated ‘My MS Manager’ App Now Offers More Features, MSAA Announces The Multiple Sclerosis Association of America (MSAA) recently launched a new version of the My MS Manager, a mobile app designed to provide convenient services to the multiple sclerosis (MS) community. The app is powered by @Point of Care and is available as a free download…
June 21, 2018 News by Kara Elam Webinar Focuses on Importance of Maintaining Independence for Progressive MS Patients When a progressively debilitating disease like multiple sclerosis (MS) causes a patient to feel physically āwiped outā after a simple daily activity, such as a shower, it is of utmost importance for these individuals and the people in their support system to understand how they can maintain independence for…
June 18, 2018 News by Patricia Silva, PhD MSAA Expands Financial Aid Fund for MRI Scans to Meet Growing Demand TheĀ Multiple Sclerosis Association of AmericaĀ (MSAA) announced that it will expand its MRI Access Fund to help meet the growing demand for magnetic resonance imaging (MRI) tests within the multiple sclerosis (MS) community. The fund is designed to help cover the costs of brain and spinal MRI scans…
June 15, 2018 Columns by Ed Tobias Getting Help Paying for Your MRIs It’s not unusual for someone with MS to have an annual MRI exam. Sometimes it’s even semiannual. And it’s not cheap. According to the website Healthcare Bluebook, an MRI of the brain, with and without contrast, can cost you anywhere from $826 to $4,780, depending on where youĀ live…
March 5, 2018 News by Jose Marques Lopes, PhD MS Progression Focus of MSAA Events, ‘Ask Experts’ Sessions for Awareness Month Understanding multiple sclerosis (MS) progression will be the focus of theĀ Multiple Sclerosis Association of AmericaāsĀ (MSAA) campaign for MS Awareness Month 2018. March has been recognized asĀ MS Awareness MonthĀ since 2003. Across the U.S., MSAA events aim to raise public awareness about the disease, and increase involvement in…