Columns

T-cells Targeting Epstein-Barr Virus at High Levels in MS Patients The evidence of a link between the Epstein-Barr virus (EBV) and multiple sclerosis (MS) continues to mount. The current thinking is that the immune responses that fight EBV may drive the attacks against the myelin nerve coating, which is…

Note: The second half of this column details digestive symptoms that may make readers uncomfortable.  In the five years that I’ve written this “irreverent journey with multiple sclerosis (MS),” quoting from my very own bio at the foot of this column, I think I’ve only covered this “quiet”…

I studied psychology in college, but haven’t thought much about Sigmund Freud since then. I did the other night, though. I had a couple of puzzling dreams. Thinking about them after I woke up and putting a little of that college psychology to work, the puzzle became less puzzling. I…

I guess the short answer to the headline’s question is “It depends.” After my primary progressive multiple sclerosis (PPMS) diagnosis in March 2021, when I was 58, I had many questions that could be collected into the five W’s: who, what, when, where, and why. I’ll throw in…

It’s in my nature to get a little reflective around significant dates, such as New Year’s and the changing of the seasons. I love that these occasions represent change and starting fresh. So celebrating my seventh wedding anniversary on Aug. 29 has made me rather contemplative, more so than in…

Immunoadsorption Better Than 2nd Round of Steroids for MS Relapse This is an interesting study, particularly because of the physical problems that can be caused by significant steroid use over the years. Of course, immunoadsorption is essentially a blood transfusion; it involves collecting a patient’s blood; separating out its…

It was a glorious summer for those of us lucky enough not to be engulfed by forest fires, face crop destruction by severe drought, or have to manage the debilitating effects of multiple sclerosis (MS), which are exacerbated by crippling heat. Over 60% of people with MS say…

It’s not easy choosing a multiple sclerosis (MS) medication. There are shots and pills and intravenous infusions. The National Multiple Sclerosis Society lists more than 20 disease-modifying therapies (DMTs) on its website. Some, such as Lemtrada (alemtuzumab), Ocrevus (ocrelizumab), and Tysabri (natalizumab), have proven to…

There’s a slight chance that I might be stubborn. I don’t really see it, but my wife, parents, siblings, relatives, friends, and former teammates all seem to think so. I personally think that they’re mistaking my drive and strong willpower for stubbornness, but I suppose I respect their opinions enough…

When I was a kid, I adored novelty. I always wanted something different to experience, a new place to go. In my mind, there was nothing worse than doing the same thing week in and week out. However, I’ve come to appreciate routines as an adult, especially because…

My weight went off the scale when my multiple sclerosis (MS) meant that I could no longer safely get on the scale. This was probably about four years ago. In them there halcyon days (for me, anyway), I still shared our second-floor bedroom (first-floor, for those of us here…

A little over a year ago, I wrote about whether Bruton’s tyrosine kinase inhibitors (BTKi’s) might be the next big thing in multiple sclerosis (MS) treatments. BTKi’s are small molecules that selectively block an enzyme that’s important for the activation of B-cells in the immune system and…

Epstein-Barr Virus and MS Risk: New Link to Mono Found in Study Add this study to the mounting evidence that there’s some type of association between the Epstein-Barr virus (EBV) — the virus associated with mononucleosis — and multiple sclerosis. I’ve never had mono, but several people with…

This headline is a bit of a cheat. OK, it’s a big cheat. When you’ve been writing a column for five years, there’s immense satisfaction when you’ve finished it each week. There’s even more when it’s passed through the editing process. Sometimes this can get somewhat tricky. The trouble is…

I often see posts on social media from people with multiple sclerosis asking if crying for no reason is an MS symptom. It can be. Laughing for no reason can be, too. Both can be severe, persistent, unremitting, and unpredictable. The medical name for this is…

It’s been a year and a half since I was diagnosed with primary progressive multiple sclerosis (PPMS). I still have use of my limbs and am able to walk, albeit shakily, without a walker. My eyesight has not been affected, I drive, and am able to carry on a…

For the last few months, I’ve been mired in something I can only describe as a funk. My job, my family, my faith, my entire life — no matter what aspect we’re talking about, I felt like I was stuck. I mean like soul-in-a-straitjacket stuck. Honestly, I hadn’t felt anything…

Early Detection of Pseudobulbar Affect May Help Ease MS Symptom I often see posts on social media from people with MS asking if crying for no reason is an MS symptom, because it happens to them. I didn’t know that apparently, it is. Laughing, too. This report says…

Now, I know the phrase “I’m going to do my own research” has become a catch-all for conspiracy theorists who are out to prove spurious nonsense, merely by finding even more spurious websites they can whirl down like Alice falling through that there looking glass. Proper research costs serious money…

I speak Morse code. It’s my second language, and I’m fluent. I’ve been speaking Morse code since I got my ham radio license nearly 63 years ago. (My call letters are KR3E.) At first, I received what was sent at a very slow speed of five words per minute,…

School started last week for our three kids. They got to see friends from the last school year, meet their new teachers, and sit at a new desk in their new classrooms. Per tradition, there was no homework assigned the first week, but they still brought home plenty of papers…

Last week, we welcomed a wonderful person into our family. My not-so-little brother got married! The wedding was beautiful — so beautiful that I couldn’t let myself feel it all in the moment. Who wants to hear the loud, ugly crier?! (I did my happy crying loudly in the ladies’…

Anti-CD20 Therapies Help Mount T-cell Response to COVID-19 Vaccines Since the start of the COVID-19 pandemic, there have been concerns that anti-CD20 therapies, such as Ocrevus (ocrelizumab), may interfere with the ability of a person with MS to fight a COVID-19 infection. But this report says that even if…

I only had my glasses for two years, yet reading anything on my phone was now nigh impossible. Still, it did cure my Facebook and Twitter addiction. Yer, yer, I’m old. (I’m 64, you know.) Sure, I’ve written this before — surely that’s a free pass for us aged folk.

Are you ready to buy your healthcare services from the same place you can buy almost everything else under the sun? Amazon hopes you are. Last month, the giant of online sales announced plans to acquire One Medical, a company that operates more than 125 medical offices across…

AM radio is infamous for bad reception, resulting in nothing but static. You can search the dial frequency by frequency, and it’s all static. Occasionally you will cross a station, but then the car moves, and the reception is lost again. When I’m overwhelmed with the heat, that’s what…

Having grown up in the countryside, I’ve been around animals my entire life. We always had dogs and cats, and I learned how to ride horses. It was tranquil and storybook. When I left home to take a trip or attend university, I experienced a void only the animals in…

Stem Cell Transplant Found to Reduce MS Relapses, Ease Disability This is excellent news for those of us who would like to see stem cell transplant for MS become more available and affordable. These researchers analyzed 50 studies covering a total of 4,831 people with MS, ages 26 to…

Unless you’ve been living under a rock or are somehow lucky enough to live on your own desert island, you’ve probably noticed that things are kinda difficult these days. I mean, COVID-19 is still a thing, and now we have monkeypox to deal with. Everyone seems to be…

In December 2019, I was stopped in my tracks, or rather wheels, as I was about to have my third infusion of Ocrevus (ocrelizumab), the multiple sclerosis disease-modifying therapy (DMT) that I’d been taking every six months for the past year. My neurologist had decided just a few…