Columns

My three children inherited my inquisitive nature, which I hope they’ll never lose. The first word they learned as toddlers was probably “no,” but that was quickly followed by “why.” As they’ve grown and their vocabularies have expanded, that word, in turn, has been followed by increasingly complex and detailed…

A couple months ago, my partner and I took a 5-week-old kitten into our home. The decision was somewhat impulsive because we didn’t intend to adopt a kitten. We’d wanted an adult cat, because we were concerned that my resident cat, Lucky, wouldn’t take well to a new friend.

“The Longest Shortest Time.” The title of this parenting podcast says it all. How can it feel like your kids will never outgrow a stage, while simultaneously being way bigger than you remember them being just yesterday? Living with a chronic disease like multiple sclerosis (MS) reminds me…

I tend to be a pretty reserved guy. I don’t yell myself hoarse at my children’s sporting events or shout advice to athletes that I happen to be watching live or on TV. I don’t scream, “Look behind you!” or “Don’t go in there!” to characters in a movie either.

Have you ever been on a flight of stairs and misjudged the height of the steps, causing you to lose your footing? That happens to me more than I’d like to admit. This misjudgment stems from our depth perception, which is our ability to view the world in three dimensions,…

My daughter and I recently traveled to Belgium for a weeklong vacation. We enjoyed centuries-old architecture, world-renowned art, diverse cultures, and, of course, lots of chocolate and beer, which the country is known for. While Europe is rich in charm and history, much of its infrastructure was developed long before…

About 48 hours ago as I’m writing these words, I began to hear a strange, high-pitched tone. At first I thought it was one of the dog collars we use with our invisible fence, but it was a little odd that I heard it inside while the dogs were in…

Before 2016, I didn’t need to take any prescription medications, at least not regularly. But during my first episode of optic neuritis and a few years later, after my diagnosis of relapsing-remitting multiple sclerosis, I was forced to create a new habit. During that first episode of optic…

The night before I was supposed to teach an autoimmune nutrition class, I reentered a role I thought I’d finally outgrown. Instead of educating other practitioners in the functional medicine space, I found myself in the emergency room, listing symptoms I couldn’t fully untangle or explain. I wasn’t there…

Someone bumped into the footrest of my wheelchair at a crowded venue recently. They immediately stopped and apologized — which doesn’t always happen — and I quickly explained that they’d hit only a part of my chair and not me. This response prompted a pause, a look of concern, and…

Along with creating memories with loved ones and exploring new places, traveling can be exhausting. There’s packing beforehand, scheduling itineraries, and then the actual traveling, whether it’s on the road or in the air. It can be especially challenging for people living with multiple sclerosis (MS). As I write…

I went to see the neurologist last month for a routine follow-up for my multiple sclerosis (MS), anticipating no changes. After all, I’ve been on the same medication for my MS, fingolimod (which often goes by the brand name Gilenya), for about 10 years. I feel my…

It’s not as though I do well in winter either, but — with apologies to Mr. Shakespeare — now is the summer of my discontent. It’s a shame, because even though autumn is my favorite season, I’d always enjoyed summer. Frozen desserts, vacations, fun activities around the water, and just…

Comparison is generally considered an innate human tendency, whether we realize it or not. And it’s not necessarily a negative phenomenon, though we often think of it that way. However, comparison does have the potential to be a complex emotional process, especially in the context of living with multiple…

Here in the U.S., today is the last day that someone out there will have all 10 fingers. It’s probably wishful thinking to suggest that it’ll be only one person, but I’m trying to be optimistic. In anticipation of the holiday tomorrow, fireworks sales started picking up about a month…

For many Americans, the July 4 holiday is a joyful celebration filled with fireworks, barbecues, parades, and time spent outdoors with family and friends. However, for me, it can present unique challenges due to my multiple sclerosis (MS). From heat sensitivity and sensory overload to difficulty participating in…

Trauma is not stress, and you can’t meditate your way out of it. I’d never considered this before. Of all the talks I attended last month at the Institute for Functional Medicine’s annual conference in San Diego, the one that has stayed with me most as someone living…

I have a kilt. It’s just a simple, olive-colored utility kilt, and I don’t wear it because of family or cultural tradition. I wear it because it’s comfortable, looks right with my knee-high compression socks, is nearly perfect for wheelchair use, and quite frankly, makes me look even cooler than…

Dear current me, Not that long ago, I wrote a letter to our younger self, newly diagnosed with relapsing-remitting multiple sclerosis (MS). That letter was intended to let her know that her diagnosis was not the end-all, be-all and wouldn’t take away from the beautiful and…

For years, the date of June 22 marked the anniversary of an autologous hematopoietic stem cell transplant (aHSCT) that gave me back a kind of life I never thought I’d taste again. The date marked a milestone I clung to like a ribbon at the finish line, a sign I’d…

No one likes being volunteered against their will — especially when the person doing the volunteering uses the word “we.” I’m sure there’s a similar phrase in every language, but in English, a common reply is, “What do you mean ‘we’? Is there a mouse in your pocket?” I’m…

The summer months and the central Texas heat have arrived, and I feel indifferent about them. As someone with multiple sclerosis (MS) who experiences related heat intolerance, I try to avoid spending an extended amount of time outside. That saddens me because most of the summer fun occurs outdoors.

My family and I just returned from a vacation to the place I wrote about in my very first column for Multiple Sclerosis News Today, only not to the same house. I can’t make it up and down the stairs there anymore, so my wife found us a wheelchair-accessible…

I am not particularly hairy, but even having sparse and fine body hair pulled out by an adhesive is an unpleasant experience. During trauma training in a U.S. Army Special Forces medic course, we had to take turns pretending to be one another’s casualties, which involved a lot of tape…

Bouts of heightened anxiety come in forceful waves and hit me like a freight train. I live with a baseline level of anxiety, but at times, it worsens for no specific reason. All I know is that it’s one of the worst feelings. Anxiety is a common phenomenon in…

One of the most essential parts of living with multiple sclerosis (MS) is building support systems. They offer practical help, but better yet, they also consider and foster our emotional survival. MS is full of unknowns and can thus be characterized as unpredictable. But one thing we can predict…

It’s official: This is the year I aged — physically, emotionally, visibly. With menopause on the horizon and multiple sclerosis (MS) quietly lurking in the background, I’ve been thinking a lot about how best to care for my brain, body, and beyond. Aside from the 3 a.m. hot flash…

When presented with a drinking glass containing half the water it can hold, a pessimist would say that it’s half-empty while an optimist would say that the glass is half-full. A realist would probably demand to know who drank half of their water, and an idealist might simply be grateful…

My youngest child is home from college for the summer. She had a fantastic freshman year, or as I tell others, “She’s living her best life.” I missed her this past year in so many ways. She never went through the “bad” teenage years. She actually enjoys spending time with…

Who hasn’t found themselves in the following situation? A loose acquaintance, or even a total stranger, strikes up a conversation with you, and at first it’s just pleasant small talk. Then there’s the pause. Those of us who have been living with a disability for a while know what’s coming…