Columns

A patient advocate shares how sudden vision loss in high school led to an unexpected MS diagnosis, profoundly shaping their resilience and deepening their commitment to supporting and guiding others through similar challenges.

Age is just a number, right? Most of the time, I don’t mind getting older, but it does occasionally bother me. One scenario is when I have to swipe more than three times to find my birth year on a website. Another is when a song I grew up with…

Because of the emotional and mental toll that my relapsing-remitting multiple sclerosis diagnosis had on me, I wanted a cat to help me cope with and navigate life with the condition. I knew having a pet would improve my mood and give me a reason to get out of…

I’ve noticed over the past three years that I choke more frequently. I did a little internet investigating and believe it may be associated with my multiple sclerosis (MS). I was surprised by that, as most of my MS symptoms are in my extremities. I hadn’t thought about…

As all good things must come to an end, so did our epic overseas adventure in a recreational vehicle that was too tiny to live in and too big to drive into any European village. We devoted those five weeks to quality time with family, unplugging from devices, and…

I’ve been afraid many times during my life, but I’ve almost always managed to get past the fear. One fear I haven’t gotten past comes with being handed a newborn child for the first time. Every birth might as well be twins: One nurse should hand you your child while…

Two weeks ago, I was notified that one of the lesions on my brain has grown. This led me and my care team to decide it was time to switch multiple sclerosis (MS) treatments. Soon after I was diagnosed with relapsing-remitting multiple sclerosis in 2017,…

Just before my last deployment, I remember sitting in a classroom with other Army Special Forces medics, listening to the representative from a supplier of chest injury dressings. It was common practice for suppliers to send someone to talk about or demonstrate their product as part of the contract.

My youngest recently left for college. It was hard to say goodbye, but I know it was time to let her go. I am now an empty nester, though I prefer to think of myself as a successful bird launcher. So what happens now? Many people get to know their…

Note: This column refers to the author’s own experience with Gilenya (fingolimod). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. On a recent Friday, all was calm and peaceful in my household. I was bundled up in my bed watching…

One thing I learned during my Army medic training is that I’m not particularly squeamish — with most things, that is. I have a theory that everyone has at least one thing that will turn their stomach. Every medical provider I’ve met either knows exactly what can make them gag,…

Before I was diagnosed with relapsing-remitting multiple sclerosis at age 17, I was just a young adolescent eager to attend college but uncertain about my path. However, after my diagnosis, which happened during my senior year of high school, just a couple months before college applications were due,…

A few years before I was married and had even thought about having children, I was at home alone when there was a knock at the door. I hadn’t lived there for long, and a small group of people had dropped by to welcome me to the neighborhood. I invited…

While watching the Olympics recently, l found myself reminiscing about the days when I played sports. I used to dream about becoming the next Shannon Miller in gymnastics or Mia Hamm in soccer. A more realistic dream was playing sports in college, but that goal quickly became unattainable. In eighth…

I spent the majority of my life wearing an Army uniform. As a result, I never had to worry about what I’d wear to work all those years. Come to think of it, I never had to worry about that during my civilian years, either. I’m the middle…

About a year after I was born, my parents decided to get my ears pierced. Little did they know, it would become an obsession of mine years later. But little did I know, my piercings would pose problems when it was MRI time. When I was 13, I continued…

My last magnetic resonance imaging (MRI) scan was on May 1, just ahead of an appointment with my multiple sclerosis (MS) healthcare provider six days later. The MRI showed that my MS was stable, meaning I had no new or active lesions. I was pleasantly surprised by these…

With just four more summers with all my kids still living at home, I’ve been making the most of our time together by throwing everyone in our trailer to visit state and national parks in the U.S. This summer we’re overseas in Europe, experiencing the lesser-known sights only accessible by…

I almost didn’t write this column. It might be a sensitive topic, but I’m not afraid of offending anyone. Even if I do, it’s not intentional. It’s not that I don’t understand the subject, either. I think I do, but I’ve been having a lot of trouble putting it into…

Searing pain and tears characterized my life for years because of multiple sclerosis-associated migraines. I remember those feelings as clearly as day because they diminished my quality of life. One radiant morning, my mom, friend, and I went to a coffee festival in our hometown. It was…

Like so many others, I have a bedtime routine. There’s bedside water to fill, sleep attire to change into, and bedtime stories to read. These days I’m not much more than a bystander, as nearly everything I do requires the help of another person. I suppose I should really say…

I’ve been on the same disease-modifying therapy (DMT), Gilenya (fingolimod), for my multiple sclerosis (MS) for several years. It’s worked well for me, as my last exacerbation was at least five years ago. I credit this DMT for stabilizing my MS and allowing me to live better with my…

A disease-modifying therapy (DMT) for multiple sclerosis (MS) is a form of treatment that alters how the disease develops over time. DMTs have the potential to impede the progression of MS and decrease the number of relapses a patient experiences. In MS, the immune system is…

I’ve been betrayed by my breakfast cereal. Other than eating it, I’m not sure what I did to deserve this. I always liked cereal and thought we had a good relationship. The only disagreement we’ve had was when I tried mixing two high-fiber cereals. The result was a bowl of…

Let me paint you a picture of a scenario that has stuck with me for years. It was my sophomore year at the University of Texas at Austin and I was having lunch with my best friend at the time. We were discussing my journey with relapsing-remitting multiple sclerosis…

I was once very good at getting out of the way. This skill served me well in dodgeball games when I was younger, and then later during my military career. Given my various injuries, you might be skeptical about that last comment, but I was actually renowned for my ability…

Note: This column describes the author’s own experiences with sleep medications and antidepressants. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Many years ago, it was brought to my attention that I suffer from insomnia and chronic fatigue.

I choose to fundraise for the National Multiple Sclerosis Society through Bike MS, which the society’s website says is “the largest fundraising cycling series in the world.” Approximately 50,000 cyclists and 5,000 teams ride each year, and the community has raised $1.4 billion to support the society’s…

A trip to Taiwan this summer has been years in the making for our family. Our kids have been in Mandarin immersion since preschool, so when their school offered a three-week program for true immersion in Taipei, we jumped at this once-in-a-lifetime opportunity. But dang it is hot and humid…

I had surgery on my right shoulder last month. I didn’t write about it at the time because compared with a shoulder replacement, the quick arthroscopic clean-out procedure wasn’t a big deal. The orthopedic surgeon removed some loose material from the joint area and cleaned it up without having to…