Columns Fall Down, Get Up Again- a Column by John Connor Groundhog Day, Groundhog Day, Groundhog Day, Groundhog Day Groundhog Day, Groundhog Day, Groundhog Day, Groundhog Day by John Connor | October 15, 2021 Share this article: Share article via email Copy article link My wife, Jane, woke me up at 9 a.m., announcing, “Welcome to Groundhog Day!” Every day starts the same. Yes, I know the day always started at 6 a.m. in the film, but even 9 a.m. is a terrific shock to my system. Never in my life have I gotten up so early and regularly. As Iāve written in previous columns, I’ve always been a freelance worker, and engineered my life so I could sleep in as much as possible ā because I was always staying up as late as possible! Hey, it turns out this is a sign of intelligence. So there. In the last month, weāve had to stop taking weekends off from professional carers, as dealing with my level of disability was becoming too much for my family. It turns out Iāve inadvertently hit the sweet spot in ā letās use their proper name ā care practitioners’ availability. They arrive at 11 a.m. It’s their latest morning call, but just too early for lunch. No one else uses this time. Woo-hoo. Woo-hoo, indeed, as there is currently a massive shortage of care workers here in the U.K. According to The Guardian, there may be 170,000 vacant care positions by the end of the year ā the result of a toxic mixture of Brexit, low wages (many care workers are quitting to work in Amazon warehouses, where they receive higher wages and a 1,000-pound sign-on bonus), tax changes, and the government’s “no jab, no job” policy. Itās also an occupation one must study and train for. Recommended Reading January 8, 2021 Columns by Ed Tobias Can Amazon Lower Healthcare Costs? My life additionally resembles “Groundhog Day” because my morning routine can’t change. I spend an hour taking a vast quantity of medicines for my MS and innumerable comorbidities, usually with a freshly brewed coffee and toast. Peanut butter and jam is a fave. Yes, I might have picked up this predilection in the States, but as a Brit, there is no way I will ever call jam “jelly.” And donāt get me started on football! At 10 a.m., I go to the shower. This is relatively easy ā no lifting required! My profiling bed does it all. I can stand on my trusty Molift Raiser, and Jane wheels me to my commode/shower chair. I still maintain the strength to lower myself carefully onto it. My dead, lymphatic right leg is a lump. Itās better than it was, but thatās a story in itself. It’s too much for Jane to lift, but Iāve come up with a cunning wheeze. Iāve adapted how I use my leg lifter, and can pull it vertically with my arms. Then, I just need to gently push my leg backward onto the step. A quick drag to the wet room, and the routine continues like clockwork. Iāll draw a shower curtain over the next graphic bit, as it entails the use of my trusty anal catheter. I need an hour for it to do its work, and for me to have my requisite shower afterward. Et voilĆ ! By the time my care practitioners arrive at 11, Iām ready to start the day. Like Bill Murray, I get to make variations. These days, I can even venture out. There is even an upside ā I will never, ever be able to put my foot in that pesky puddle! Itās far worse for Jane. She now has to get up at 8 a.m. every day. Long before MS exploded into our lives, I was well aware that any sort of nursing was her biggest nightmare. I always kept my “man flu” to myself. Stress levels are high all around. At least my care practitioners have a laugh with me. Iām not going to waste a captive audience ā especially one I pay for! *** Note:Ā Multiple Sclerosis News TodayĀ is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those ofĀ Multiple Sclerosis News TodayĀ or its parent company, BioNews, and are intended to spark discussion about issues pertaining to multiple sclerosis. Print This Page About the Author John Connor In the ā80s, John Connor created the first regular column about the burgeoning London stand-up scene. In 1990 he wrote a book about its effect on the Edinburgh Festival: āComics: A Decade of Comedy at the Assembly Rooms.ā That year he also devised and ran a live topical stand-up team show at The London Comedy Store, The Edge (It was destroyed in 2020!). In 2009 John was diagnosed with relapsing-remitting MS, which cut short his main job as a TV casting director for āBlack Books,ā āMy Family,ā et al. Now, John writes āFall Down Get Up Again,ā an irreverent journey with MS. Tags anal catheter, routine Comments Wendy Hovey Try cashew butter. Far better than pb in my not-humble opinion. As an old friend used to say, "There is a god, and she has a weird sense of humor." Apparently you and God have at least one thing in common. Reply John Connor I'm an atheist. But if god did exist and was Trans, boy would Dave Chappelle be in one hell of a lot of trouble! Reply Leave a comment Fill in the required fields to post. Your email address will not be published. Your Name Your Email Your Comment Post Comment
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