How I Survived My Odyssey With a Urinary Tract Infection

Well, I survived! I would’ve never believed something so seemingly insignificant could cause such devastating and lasting effects on my health.

I’ve had urinary tract infections (UTIs) before, as they’re a complication of self-catheterization with multiple sclerosis (MS). But this was the mother of all UTIs. It started out like a sneak attack — subconscious, clandestine. I wasn’t feeling right and assumed I probably had a UTI. My symptoms were standard for a urinary infection: fatigue and weakness. I initially tried to ride it out myself using common over-the-counter medications.

In the second week, I went for lab work to confirm my suspicions. I wasn’t getting better, but the first call about the lab work said I didn’t have a UTI. Slight panic set in. If it wasn’t a UTI, what was it?

After several more days and follow-up phone calls to my doctor, I was advised that it was a UTI after all and that a prescription was waiting for me at the pharmacy. Good thing I was somewhat proactive; waiting much longer could’ve been disastrous. I was given Augmentin (amoxicillin and clavulanate potassium), which I took twice a day for seven days.

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Into week three, I found that my symptoms were getting worse. I had chills and lower back pains along with the fatigue and weakness. I was also irate and could barely focus on anything. I was spending a significant amount of time in bed trying to sleep it off.

Finally, as I was taking my last dose of Augmentin, I felt a little better and thought I was turning the corner. Perhaps the medication was working?

The day after completing my medication, on a Saturday, I went to the farm to do some final tasks and shut it down for the remainder of the year. I was home by 2 p.m. and immediately felt a relapse coming on. That night it all came back: chills, fatigue, pain, and weakness. I couldn’t get out of bed and slept through dinner and most of the night.

Sunday morning, I was unable to move. No church for me. My wife came home at noon and found me flushed, extremely weak, and barely able to speak. She called the doctor to see if I could get more Augmentin at the 24-hour pharmacy nearby, and he asked if I had a fever. She told him I was extremely flushed and warm.

The doctor told her that I had to go to the hospital immediately because he thought I might have a kidney infection. At this point, I was completely incapacitated and unable to get out of bed. My wife and daughter carried me to the car.

The hospital confirmed that I had a fever. I was also incoherent. I underwent tests and was given broad-spectrum antibiotics, fluids, and steroids by IV. The urine culture was sent out for testing, and it was a waiting game to define what bacteria it was.

Wednesday afternoon, we learned that the bacterium was ESBL-producing Klebsiella, for which the doctor prescribed the antibiotic Invanz (ertapenem) in a seven-day intravenous regimen. He told me that this specific strain of bacteria was very resistant to most antibiotics, and for 10 days I’d been taking the wrong medication. He reprimanded me for not being more diligent in understanding my symptoms, as I was moments away from sepsis. He advised me that this type of Klebsiella was highly contagious, so I had to be quarantined.

Say hello to another seven days in the hospital. I ended up having this UTI for 24 total days! Now for the recovery.

Oh, brother! The first night after coming home from the hospital, my wife and I reflected on how seriously ill I’d been.

She read a recent Multiple Sclerosis News Today article by Patricia Valerio titled “Infections Nearly 4 Times as Likely for Patients With Progressive MS.” It stated that a recent study had found that older age and male sex are associated with the significantly higher rate of infection-related hospitalizations among primary progressive MS (PPMS) patients, with infections affecting the respiratory system, urinary tract, and reproductive organs being the most commonly reported serious infections.

I’m happy to report that I’m getting better. However, this recovery hasn’t been like the others and will take much more time. I’m fortunate that I’ll improve, but words of caution for all of us with PPMS: UTIs can be quite serious and must be addressed as quickly as possible.

Note: Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Multiple Sclerosis News Today or its parent company, BioNews, and are intended to spark discussion about issues pertaining to multiple sclerosis.