September 21, 2023 Columns by Benjamin Hofmeister Learning the hard way that with MS, no infection is routine I’ve never been one to worry too much about what my purpose in life is. It’s not that I’m incapable of being philosophical, or that I was ever too egotistical to think I needed one. I suppose I just thought that if I had a purpose, it’d work…
September 1, 2023 Columns by John Connor Yet another urinary tract infection causes a complete change of plans What follows is something of an emergency column. All of yesterday’s writing had to be scrapped. Iām now down at the bottom of Column Mountain, squinting up through the clouds and mist, trying to work out again whatās the best route to climb. Last night, I knew the dreaded urinary…
July 21, 2023 Columns by John Connor Reflections from the front line, take 2: If only all hospitals were like this As last week’s column ended, Iād just negotiated with my ambulance driver and paramedics to take me to any London hospital other than the one where Iād spent the Christmas months. They offered me St Georgeās Hospital, which I knew to be the major trauma center ’round these…
July 14, 2023 Columns by John Connor Reflections from the front line, take 2: Back into the fray There was no column from me last week, and here follows the reason why: “In the wee small hours,” as Frank Sinatra so eloquently crooned, I, too, was abruptly awake. Only I hadnāt drunk my way there. Instead, my wee was indeed a real one, though painfully…
April 21, 2023 Columns by John Connor Reflections from the front line: Awakening to the new dawn COVID-19 had finally left me. Its only trace was a pair of slimy hands. For a month, I requested a towel in bed to wipe them dry. My wife, Jane, told me my hands were fine; my phoneās screen, however, didnāt agree. As my companion in the hospital…
March 31, 2023 Columns by Ed Tobias That UTI ā was it caused by MS or was it the meat? Many people with multiple sclerosis (MS) have experienced urinary tract infections (UTIs) at some point. It’s a common problem with MS and can be caused by a number of things, such as the inability to fully empty the bladder or the need to self-catheterize. Symptoms can include urinary…
November 10, 2022 Columns by Stephen De Marzo How I Survived My Odyssey With a Urinary Tract Infection Well, I survived! I would’ve never believed something so seemingly insignificant could cause such devastating and lasting effects on my health. Iāve had urinary tract infections (UTIs) before, as they’re a complication of self-catheterization with multiple sclerosis (MS). But this was the mother of all UTIs. It started…
August 26, 2022 Columns by John Connor Column Saved by the Same Olā Side Effect to an Antibiotic This headline is a bit of a cheat. OK, itās a big cheat. When youāve been writing a column for five years, thereās immense satisfaction when youāve finished it each week. Thereās even more when itās passed through the editing process. Sometimes this can get somewhat tricky. The trouble is…
August 19, 2022 Columns by John Connor MS and Sex: Everything You Wanted to Know but Were Never Told to Ask Now, I know the phrase “Iām going to do my own research” has become a catch-all for conspiracy theorists who are out to prove spurious nonsense, merely by finding even more spurious websites they can whirl down like Alice falling through that there looking glass. Proper research costs serious money…
August 3, 2022 Columns by Beth Ullah Sometimes Pushing Boundaries With My MS Management Pays Off My brother is getting married in two weeks, so last weekend, I attended my future sister-in-law’s bridal shower in London. When it came to managing my relapsing-remitting MS (RRMS) on the trip, I pretty much broke every rule I live by. Surprisingly, taking risks paid off for me, which…
April 1, 2022 Columns by John Connor Old Friends, Broken Chairs, UTI Admissions, and Redemption The week started with a bang, albeit with a hint of underlying anxiety. Friends and former work colleagues gathered during the first days of spring to chat in my sun-lathered back garden in South London. COVID-19 lateral flow tests had all been passed. Previously, weād spent years working together on…
March 18, 2022 Columns by John Connor Everything Last Week Did Come in Threes My week is never exactly easy, but it’s much harder for my family. Not only do they have to deal physically with my ever-enlarging lump of flesh, thereās also my verbal diarrhea to contend with. Then last Tuesday, it wasnāt just the verbal kind. Turns out my bowels began to…
August 13, 2021 Columns by John Connor MS Presents āHorror Weekendsā I have always liked the odd horror movie, the odder the better. I was a bit of a fan of the trash Troma Studio mob, where their tongue was so firmly in their cheek it usually stuck right through it. For you youngsters out there, think the “Sharknado”…
August 17, 2020 News by Forest Ray PhD Better Efforts Needed to Prevent Urinary Tract Infections in MS Patients Urinary tract infectionsĀ are a common cause of hospitalization among people with multiple sclerosis (MS), especially older patients with progressive disease, and more attention should be given to theirĀ bladder, catheter, and general physical care, a U.K. study reported. These infections are often linked to an emergency hospital admission, and…
June 26, 2020 Columns by John Connor A Morning With No Opera but Enough for a Small Choir! Last Wednesday my days of rest suddenly smashed to a halt. At one point it seemed like the majority of those who work for my local council’s social services (whom I should have also thanked for their immense help over the last few weeks, mea culpa) were squeezed into…
October 4, 2019 Columns by John Connor Saturday Night and Sunday Morning: A Weekend of UTIs For the last few months, urinary tract infections (UTIs) have been the main subject of this column. My current disease-modifying therapy, Ocrevus (ocrelizumab), has had a significant impact on my multiple sclerosis (MS). The only downside is that Ocrevus attacks B-cells in the body, increasing the risk…
September 20, 2019 Columns by John Connor I’m an Old Hand at Dealing with MS Mishaps “Events, my dear boy, events.” Because of my own political proclivities, I donāt tend to quote old Conservative prime ministers, unless, of course, itās Winston Churchill. In his semi-youth, he crossed the floor to join the Liberal Party twice: “Anyone can rat, but it takes a certain amount of…
November 30, 2018 Columns by John Connor In Real Time So, “it” started on Monday. I have no idea what I’m dealing with. Is it a urinary tract infection, a relapse, a bird, or a plane? The superhero metaphor is warranted because, just like in “Avengers: Infinity War,” there will be no resolution by the end. Hmm, I’ve…
September 28, 2018 Columns by John Connor The Morning After the Night Before Last Wednesday morning didn’t go according to plan. I’m lackluster every Wednesday morn because Tuesday nights are myĀ regular work gig at London’s Comedy Store. I laugh too much, drink too much, and don’t get home till about 11:30 p.m. Still, I had a good sleep. My new…
September 8, 2017 Columns by John Connor Disjointed: Living the New Netflix Sitcom I was going to write about something else this week and then … I got STONED! Those aren’t words I thought I’d ever write. I’d been a kid during the 1960s, but later on had duly done my literary homage by mainlining Jack Kerouac (yes, I know that…